Stacey Benioni's Comments

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At 9:30pm on April 27, 2010, Cheryl & George said…
hey, sorry for the late acceptance of your friend request...i haven't been on here in months!!! good to see another kiwi on here =) my husband grew up in otara!! whitley cres, he went to yendarra primary then his family moved back to samoa.

cheryl
At 11:40pm on January 28, 2010, jonvon willis said…
you cought my eye ,cool , well you can see my profile , if you got time , peace
At 2:50pm on October 10, 2009, Sharon said…
Hey Stacey how r u? We missed you last weekend hope all is ok. Had a great day. Take care
Sharon
At 3:47am on September 6, 2009, Kath said…
HI - we are organising a get together in Auckland on the 4th of October from 1-5pm. If you are interested in attending drop me a line on here and I will get back to you with directions. Will be really nice to get together, meet other alopecians, make new friends and have some fun.
Look forward to hearing from you. Kath
At 6:37pm on June 10, 2009, Karina said…
Stacey...Did people ask you what happened to your hair?
At 9:03pm on June 1, 2009, Julia said…
Loved your video Intro... stay in touch and we all can work together to raise this awareness.
At 2:48pm on May 21, 2009, Sharon said…
Hi Kath and Stacey. Last time we met when Dotty was over we met at a restaurant which was great.......We are keen to come down if you need any help let us know.

Sharon
At 4:52am on May 13, 2009, Kath said…
Looks like quite a few people are keen to catch up - 9 so far. So you want to organise it together if you need some help. I am not sure where we should hold it - in a restaurant or at someones house - what do you think? talk soon
Kath
At 4:59am on May 8, 2009, Kath said…
Hi there - looks like the other NZers are keen to catch up - shall we organise something??? What do you think - drop me a line. PS your video is great!. Kath
At 4:17am on April 2, 2009, Kath said…
Hi Stacey - how are things going? I havent been on here for ages so just through I would say hi. Kath
At 11:50am on December 2, 2008, Sharon said…
Hi Stacey how are things with you? Are you all ready for xmas? I'm not but am looking forward to the holidays. Anyway just wanted to say hi.

Take care
Sharon
At 5:44am on November 21, 2008, Kath said…
Hi there - either weekends or evenings are best for me. Give me a call if you want and we can organise a time - I can come and see you if that would be easier, or come here or meet somewhere. Would live to meet you mum too... Give me a call when you are free. Kath
At 1:34pm on November 13, 2008, Kath said…
Hi Stacey - how are you? Not sure if you got my email the other day. I tried to send you an email into your inbox with my number, but not too good at this and dont know if I did it right. Anyway thought you may want to catchup as you are close by, and I coul show you my silicone wig. Thought you might like to take a look since you are thinking about them. Also there is a subsudy that you can get which will cover it all, so we can chat about that. Anyway talk soon. Kath
At 10:40pm on November 11, 2008, Sharon said…
Hiya Stacey good luck for the exam tomorrow........I remember those days vividly lol so can appreciate the sense of relief once they are all over and you have a lovely long hot summer in front of you. YES that is a great sign having lil white hairs growing awesome I hope they continue to grow and stay put!

Camp was so much fun we had a blast. Take care and go do something really nice to treat yourself after that final exam. Take care
Sharon
At 12:32pm on November 10, 2008, Sharon said…
Hiya Stacey just popped by to say howdy, how are you? Hope things are good. We have just all got back from school camp...........had a blast it was so much fun. Talk soon. Luv Sharon
At 9:54pm on November 6, 2008, Sharon said…
Hi Stacey. I have just got back from school camp so catching up on all my messages. It is normal, it comes back as fine white hairs and will darken as it gets longer. Awesome news. Hope all is well, we are heading down your way tomorrow to go see phantom of the opera can't wait. Take care Sharon
At 2:26pm on November 6, 2008, Jessica said…
hi stacey how have you been? how is everything these days?
doing well here, well write when you can

jess
At 3:20am on November 6, 2008, Kath said…
hi there great to hear from you. In answer to your questions, as I was 30 when my hair feel out I was well into my career by then. I have always worked for large companies and meet with lots of people and so I think that is why I have my "wig" look for the office. In fact noone that I work with even knows that I have a wig as I have always been like this in this job. All my friends know though and I normally go without the wig in the weekend. It is strange I know but I just want to concentrate on my job at work and not have to face the looks and explanation in a work environment. Everyone is different though and looking at people on this site some are far braver than I am with going out and about without an hair. I admire them. You to will develop your own style and the way that you want to be seen. In my experience people soon accept you for whoever you are. It does take a while to get used to the whole thing, but you will develop your life around it and I am sure that it will make you a stronger person. keep smiling. kath
At 3:09am on November 4, 2008, Kath said…
Hi Stacey- just saw your discussion on the NZ page and thought i would write. I live in Greenlane and so not far and if you would like to chat I am certainly around. I have had AU for 8 years now, was 30 when I got it. I know what you mean about wigs and the choice but you dont need to make a choice really - you an have the best of both worlds, I do. A wig for when you are out and about - in the office, AUT etc and when you feel comfortable just be you - no hair or scarf etc. I certainly do both. You can actually get a synthetic wig straight away. In NZ you get a subsidy of $2500 (from memory) every 10 years for diagnosed alopecia people. A good synethic wig costs around $250-300 (there are cheaper options probably but this is what I had). If you choose to go for a natural hair wig, and custom made that is a lot more expensive around $2500 and takes about 3-4 months to make. I first got a synthetic wig when my hair feel out and I couldnt hide it anymore with scarves and hats, and had these for around 5 years. It was a good first option for me because I didn't have to pay anything and got setup straight away. I have moved to a silcone vacuum wig just in the last few years. I went to Haircreations in Newton, just of Symonds Street in town for my synthetic wigs. They were great and really helped me out. Let me know if you want to get in touch. I really don't mind. Stay positive. Kath
At 5:31pm on November 3, 2008, LeslieAnn Butler said…
Hi Stacey,
How are you doing today?
I wanted to stop by and say hello and welcome!
LeslieAnn

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