Madison is very cute, especially in her dress up clothes. Since you said you are participating in the M.D. Anderson study I was wondering if you live in Houston?. We live locally and would love to meet if you do! My daughter is about to be 4 next month. She has had it since her 3rd birthday. She wears hats when we go out and nothing when inside. Occasionally she takes off her hat with close friends & family. As we approach the 1 year mark, I have kind of been thinking about maybe getting a hair hat in case she wants to wear it sometimes? What do you think of those? When did you start discussing/ accepting that her hair might not come back with Madison? Lynn
Hello! Welcome to the website. This place seems unlike any other, with so many supportive people. I, too, have a daughter with alopecia. She's adorable, sweet natured and confident. (Can't say the same for myself some days) lol. She's going to be 3 in July, and has had it since the age of 8 months. Madison looks like a little princess!
She's so BEAUTIFUL!!! Thanks for the comment, I'm so happy I have found this site it makes everything a little bit easier to know are not the only ones going through this.
Nice to meet you...Your daughter sounds comfortable with who she is..I am glad to hear she is having a good experience in school. I have to say that I admire your daughter and all the other kids out there who have the courage to go to school hairless..Samantha does not leave the house without her wig on. She loves it so I am lucky..I never allowed her to be seen with patches and once we could not cover them any longer we got her a wig..We did not have to push her to wear a wig..She thinks it is cool and I think Hannah Montana helped. I am private about her AA and only our close friends and family know..It is my choice, but of course I can't stop Samantha from sharing if she chooses to do so. Samantha has had AA for almost a year now and once summer was over she aggressively lost her hair..It has been hard and now she has almost no lashes or brows..It will be nice to get know some of the other parents on this board who are facing the same issues...I hope to see you around..Cindy
I've had alopecia since I was 4 years old; during that time I have lived mostly with alopecia totalis, but more recently I have dealt mainly with severe alopecia areata. I have a special affinity for children with alopecia, seeing as how I was a child with alopecia myself.
My name is maria and my daughter Savanna to has AA/AU, she is 6yrs old and has had it since she was 3 yrs old, she has adjusted well with it, but she still has some issues and ask many questions..How has your daughter handled school? Does she wear any wigs? I hope to talk to you, this has been a great site for me i have met several parents on here who have daughters with AA and I have learned of diffrent things to possible help her....
Hi Madisonsmom..
I have a 6 yr old with Aleopica..I hope to see you around? Is your daughter is 1st grade? My daughter is in Kindergarten and has AA for a year. We hope to see her hair come back in the future...Samantha wears a wig and is well adjusted. How has your daughter dealt with her aleopica?Cindy
Hello again, of course I remember you and Madison. I'm so glad to see you. The group is Alopecia Areata Support Community and I am currently a manager there. You should get back in touch. I run a weekly chat there on Wednesday nights, 6 - 8 pm EST. Hope to chat more often. Give Madison a big hug for me.
Love and Hugs,
Dotty
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Madisonsmom's Comments
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How are you?
Amanda
I have had au for 20 years. Just wanted you to know that if you need support, I will help...
LeslieAnn
Does this mean you she will soon be sporting a wig? What does she think of about it? Lynn
Madison is very cute, especially in her dress up clothes. Since you said you are participating in the M.D. Anderson study I was wondering if you live in Houston?. We live locally and would love to meet if you do! My daughter is about to be 4 next month. She has had it since her 3rd birthday. She wears hats when we go out and nothing when inside. Occasionally she takes off her hat with close friends & family. As we approach the 1 year mark, I have kind of been thinking about maybe getting a hair hat in case she wants to wear it sometimes? What do you think of those? When did you start discussing/ accepting that her hair might not come back with Madison? Lynn
your friend, Samantha
I look forward to getting to know you both!
Nice to meet you...Your daughter sounds comfortable with who she is..I am glad to hear she is having a good experience in school. I have to say that I admire your daughter and all the other kids out there who have the courage to go to school hairless..Samantha does not leave the house without her wig on. She loves it so I am lucky..I never allowed her to be seen with patches and once we could not cover them any longer we got her a wig..We did not have to push her to wear a wig..She thinks it is cool and I think Hannah Montana helped. I am private about her AA and only our close friends and family know..It is my choice, but of course I can't stop Samantha from sharing if she chooses to do so. Samantha has had AA for almost a year now and once summer was over she aggressively lost her hair..It has been hard and now she has almost no lashes or brows..It will be nice to get know some of the other parents on this board who are facing the same issues...I hope to see you around..Cindy
My name is maria and my daughter Savanna to has AA/AU, she is 6yrs old and has had it since she was 3 yrs old, she has adjusted well with it, but she still has some issues and ask many questions..How has your daughter handled school? Does she wear any wigs? I hope to talk to you, this has been a great site for me i have met several parents on here who have daughters with AA and I have learned of diffrent things to possible help her....
Maria mother of Savanna
I have a 6 yr old with Aleopica..I hope to see you around? Is your daughter is 1st grade? My daughter is in Kindergarten and has AA for a year. We hope to see her hair come back in the future...Samantha wears a wig and is well adjusted. How has your daughter dealt with her aleopica?Cindy
I wanted to welcome to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.
Cheryl
co-founder
Love and Hugs,
Dotty
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.