Brock
  • Male
  • Charlotte, NC
  • United States
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Brock's Friends

  • Ricky_1008
  • alopeciaguy1990
  • TC
  • NicoleT
  • singh

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Latest Activity

Brock replied to NicoleT's discussion Xeljanz from India
"That’s unfortunate.  I wonder if anyone had it tested against xeljanx."
Jan 27
Brock replied to NicoleT's discussion Xeljanz from India
"Has the experience with Nina been ok?  I’ve thought about switching to them but want to make sure the meds are legit."
Jan 27
Brock replied to Youknow's discussion Is there anyone else used Xeljanz got his/her hair back and stopped taking Xeljanz??
"Has anyone had luck dosing down.  I’m currently on 20mg and would like to reduce to 15"
Oct 5, 2020
Brock replied to NicoleT's discussion Xeljanz from India
"No movement yet.  You could try reaching out to Beacon.  Not sure who delivers to you but I know EMS has had problems.  I figure it’s on it’s way but going to take some time."
Aug 11, 2020
Brock replied to NicoleT's discussion Xeljanz from India
"Mine has been in that status since mid July.  Shipping is very slow due to Covid.  I live in the US.  If my status changes I’ll let you know"
Aug 7, 2020
Brock replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I talked to Mouree last week.  The offices are closed until at least April 12rh... maybe longer due to the virus."
Apr 7, 2020
Brock replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Could you email the new contact as well?  Shamiul was always so helpful!"
Mar 26, 2020
Brock replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Both my parents don’t have autoimmune problems and I do.  I’m sure there is some correlation genetically but I know someone who is AU who had 4 children who are all in their 40s now and have never had any Alopecia in their lives ."
Mar 15, 2020
Brock and Ricky_1008 are now friends
Nov 1, 2019
Brock and alopeciaguy1990 are now friends
Oct 21, 2019
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Since dec 1st.  There are people on this site that have taken for 5+ years"
Sep 17, 2019
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I plan on staying on it for awhile.  To me it is worth the risk.  I know that there are a lot of studies out there about being on it long term.  I personally believe them but I also think that my autoimmune system is out of whack and…"
Sep 17, 2019
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I take 15mg a day.  In all honesty I know it is “just hair” but it was also highly depressing and playing a huge impact on my life.  As much as I tried not to care... I did.  It was impacting my social life and created…"
Sep 17, 2019
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I was shaving my head everyday so it was hard to pinpoint the exact time everything grew back.  I will say that it grew back the same way it fell out.  So the last spots to fall out were the last to regrow.  They would grow back white…"
Sep 16, 2019
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Everything is pretty much back to the way it was prior.  Thickness is definitely back.  I have a more salt and pepper look but that’s no big deal.  I probably had 40 percent hair loss.  It started in June of last year and…"
Sep 16, 2019
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Understand.  It took me about 6-7 months to fully recover.  About 2-3 to see white hairs starting to come in.  (All mine came in white at first).  Not going to lie... it was tough on me.  I shaved my head down and just came…"
Sep 16, 2019

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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