"I suggest you join the Facebook group “JAK inhibitors for alopecia”. Many members are from the UK and there is a wealth of information regarding meds, shipping, NHS."
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NicoleT
- Female
- Brooklyn, NY
- United States
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NicoleT's Discussions
Update: 1 year on Tobacitinib!
Started this discussion. Last reply by Apple Oct 12, 2023. 472 Replies 6 Likes
HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue
Tags: universalis, totalis, tofacitinib, xeljanz
Tofacitinib Results after 9 Months
Started this discussion. Last reply by Dan Mar 7, 2019. 91 Replies 6 Likes
Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue
Tofacitinib Results after 7 Month
Started this discussion. Last reply by sampeckard Jul 8, 2021. 92 Replies 8 Likes
HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue
My Xeljanz REsults after 6 month
Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies 0 Likes
Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue
Tags: xeljanz
NicoleT's Page
Latest Activity
"I received one last month with no issues. Took about two weeks"
"I used a standard doctor online service from a google search. The doctor emailed me a prescription. I tried to avail of the medication on an Irish & then UK drugs scheme but was rejected in every turn I made. They told me the medication is still…"
"Hi all
I made an order from beacon today aftee not ordering from them for nesrly 2 years. They have told me they will send my order via DHL and not like in the past they used EMS for shipping.
I'm in the UK and was want to know if…"
"I used zoomdoc and asked them to write a referral letter stating that I take Tofacitinib"
"Is Beacon still requiring prescriptions? And if you have a prescription, is it written for Tofacitinib or Xeljanz?"
"For anyone wanting to buy Tofacitinib from India, because we do get it for much cheaper here. Kindly contact me on whatsapp. I will procure them for you and send them to you via courier of your choice. You can reach me on +9-1 6-2-8-2-6-6-7-8-8-5 on…"
"Hi, can you please share who the doctor is?
thank you "
"I did the same thing and have ordered from Beacon with no problems"
"I’m going to order from beacon again. After 12 months on Jaknat from NIBA I have concluded it is nowhere near as potent as Tofacinix from beacon. I’ve a prescription I’ve sourced from an online European doctor. I’ll…"
"I received a response from showmik@beaconmedicare.com.bd"
"Has anyone been able to contact Beacon recently? If so, who did you email?
I'm emailing mouree@beaconmedicare.com.bd and shamiul@beaconmedicare.com.bd but not getting any response."
"Hello everyone!I'm wondering if anyone has any extra Tofacitinib that I can buy from them in the US. I won't be able to place a large order with Beacon for a while but I've run out and honestly one of the benefits of the medicine…"
"Guys what bloods are you getting done? Id like to get them done more frequently - Ive been on Tofa 20mg for about 2 years, i basically had Alopecia totalis for about a decade (suspect i genetically have alopecia runs in the family for several…"
"Hi BA. how did you get on with your order from NIBA ? Did you go with EMS or Fed Ex ? "
Profile Information
- Relationship Status:
- Married
- About Me:
- Developed AT during IVF and pregnancy.
Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
- Do you have alopecia?
- Alopecia totalis
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (21 comments)
- At 7:22pm on October 12, 2023,
Apple said…
WELL I JUST STARTED ON TOFAJAK FROM CIPLA ILL KEEP YOU GUYS POSTED. NIMBA TOOK LONG TO GET BACK TO ME AND I WAS SO PANICED I ORDERED FROM WELLWORLD TOFAJAK FROM CIPLA IT SAYS TOFACITINIB CITRATE. ILL LET YOU GUYS KNOW I BOUGHT 6 MONTHS SUPPLY.
- At 7:03pm on October 12, 2023,
YES NICOLE I SURE DO!
- At 5:50pm on October 12, 2023,
HI NICOLE I RECENTLY BOUGHT MED FROM INDIA TOFAJAK FROM CIPLA- HAS ANYONE ORDERED FROM THEM? MY DERMATOLOGIST GAVE ME ONE MONTH RX FOR LITFULO NEW PRODUCT FROM PFIZER SPECIFICALLY FOR ALOPECIA- DEVASTATING RESULTS MY HAIR IS FALLING OUT. I JUST STARTED MY TOF. MED FROM INDIA. I THINK MY DEVASTATING EFFECTS ARE FROM LITFULO, BUT OF COURSE I AM SO NERVOUS THAT THIS MED IS FAKE. PLEASE HELP. LITFULO BLOCKS JAK3, OLUMIANT BLOCKS JAK1, JAK2, XELJANZ (TOFACITINIB) BLOCKS JAK1, JAK2, JAK3- THIS IS THE ONE THAT WORKS FOR ME. HOPEFULLY MY NEW INSURANCE COVERS IT. THANKS FOR ALWAYS LISTENING TO MY WORRIES. LOVE YOU GUYS.
- At 7:09pm on July 30, 2023,
That’s wonderful, the only medication that works for sure, for me too.
- At 4:49pm on November 3, 2022,
Ben said…
Hi,
I'm having problems ordering from beacon to Europe. Normally I just placed an order with Abdullah Manun but for some reason he will not respond. How is everyone else placing orders.
Thanks
Ben
- At 11:58am on October 4, 2022,
Tatiana said…
Hi EveryoneI
I have about 15 packs of Tofacinix left from Beacon. I decided to stop taking it. Please let me know if anyone is interested to purchase it. I live in Brooklyn, NY, USA
- At 2:52pm on September 22, 2021,
Hi Nicole,
I finally got my generic Xeljanz from Beacon. Mouree was great, super professional and the ordering process was really no hassle at all after I got in contact with him. I’ve made an appointment with my PCP- but I do not know yet if they will test the meds. I called a few compounding pharmacies and the cost was outrageous— $1500, requiring 5 pills to be sent in.
is there an alternative? I don’t want to shell out more money than I have to but know the testing is necessary before I start the process. Any guidance/advice would be much appreciated.
All the love and gratitude!!
-Sara
- At 11:59pm on October 5, 2020,
I have been so thankful fir prescription Hope which has been able to get xeljanz for me at no cost. This program in based in USA if anyone wants to contact them for help it’s amazing. It is really evaluated yearly and you will have time where you don’t have the medication right away that’s why I needed other sources to obtain the only medical treatment that works for alopecia.
- At 11:51pm on October 5, 2020,
I am also concerned about reparation date. I have medication that will expire by 10/2021. Trying to juggle meds expiring to take first.
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