Carrie & Nicky Johnson
  • Female
  • Berea Kentucky
  • United States
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Carrie & Nicky Johnson's Friends

  • Jen
  • 10yr old Jada and her mommy
  • Richard Tuck
  • Mylia Jennings
  • Jenna4
  • Tracy Hild.
  • Tracy and Amanda
  • Ben Lainhart
  • Cindy (Duncan's Mom)
  • Karine , Xavier
  • Mylia Jennings
  • Paula Bowman
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  • Jasmine and mommy

Carrie & Nicky Johnson's Groups

Carrie & Nicky Johnson's Discussions

Crazy Hair Day

Started this discussion. Last reply by Deana DG Dec 5, 2011. 5 Replies

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Welcome!

Profile Information

Relationship Status:
Married
About Me:
My name is Carrie. We live in Berea Kentucky. I have three sons, my youngest son Nicky is almost 10 years old, he was diagnosed with Alopecia when he was about 1 year old.
Do you have alopecia?
I do not have alopecia
Are you age 18 or older?
Yes

Carrie & Nicky Johnson's Photos

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Carrie & Nicky Johnson's Blog

November 2011

Posted on November 8, 2011 at 3:46pm 1 Comment

We have not been on here for quite some time. Nicky is 10 now and doing pretty well with his alopecia, he has been growing several really large patches of black hair since early summer and has very thick eye lashes, the last week or so though he has noticed his eyebros getting thinner, he's feeling upset about that but we have tried encouraging him as much as possible, anyway he is wanting to take over this page that I had originally set up a few years ago so I'm sure he will be on here soon… Continue

As we venture into 3rd grade

Posted on August 27, 2009 at 2:43pm 1 Comment

Nicky went back to public school this year. He started 3rd grade on Monday. I went in with him today and we did a little 5-10 minute presentation all about Alopecia. I was very nervous standing up in front of 70+ 3rd graders as I'm sure Nicky was too. But we got through it and it really seemed to help. When I took questions one little girl asked me if she could catch it from Nicky, another asked if he would die, once I went back and explained that he was otherwise very healthy and not… Continue

Nicky's new school

Posted on November 6, 2008 at 8:29am 1 Comment

Nick started his new school today. He goes to a private Christian school a stone throw from my work. We just could not get him adjusted in his last school. His self esteem had gotten better, but some teasing still persisted and the staff just wouldn't deal with that in a effective manner. Which I truley believed caused Nicky to be a "class clown", thus causing some of his negative behavior.



He went into his new classroom today, which was 14 other children from the ages of 8-16, they… Continue

update

Posted on October 19, 2008 at 12:00pm 5 Comments

Wow, is all I think each time we look on this site. I am still in awe for all of you wonderful people. I wanted to post an update on the dilema that Nicky is facing at school. It seems as if this site as opened up a new world for Nicky. He doesn't concentrate on his alopecia as much anymore since he has seen a whole world of people that live with his diagnosis. It seems as if when he gained more self confidence/self acceptance that his peers accepted him more. Things are going better for him.… Continue

Thank you,

Posted on October 3, 2008 at 3:11pm 1 Comment

I wanted to say thank you to all those who responded to our last post and accepted us as friends. Thank you all for your lovely comments.

Comment Wall (19 comments)

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At 8:46pm on February 12, 2011, Richard Tuck said…
I just want to say that your story is inspirational. I began to loose my hair to Alopecia about 3 years ago and have been forced to shave the rest of it all off ever since. when I first lost it I went looking on the Alopecia world web sight berore becoming a member and happened to come accross the story about nicky which I found to be quite touching. I thought Nicky and your family handled this very maturely. At the time it helped me to realize that it must be a harder thing to go through as a kid than as a grown man. I am now happy to go around with a completely bald head and have come to really like it. I dont think there has ever been a more fashionable time to have a bald head if you are a guy anyway. My name is Richard Tuck and I come from a very sunny part of New Zealand so I have to remember to put on pleanty of sun block. Hopeing that nicky is doing really well I wish you all the best
At 2:39pm on August 27, 2009, Samantha said…
Hi Carrie, great photos'..How is Nicky doing? It has been awhile..Cindy
At 4:40pm on August 20, 2009, Tracy and Amanda said…
Hi Carrie,
How are you and Nicky? My daughter Amanda also has AA. I hope to chat with you soon.
Tracy
At 2:55pm on January 12, 2009, Cindy said…
I know what you mean...I think we owe Nicky a letter and I keep telling her to get on it, but something always seems to get in the way. Sam is very scheduled during the week so we write letters in between weekend activities..One is coming though..How is Nicky adjusting to school?
At 7:47pm on November 28, 2008, Cindy said…
Hi Carrie, I hoped you and your family enjoyed a nice thanksgiving. Samantha just loves the card Nicky sent her. How is Nicky doing in his new school? I hope he is continuing to make friends and find his comfort zone among peers. Cindy
At 3:16am on November 15, 2008, MONIQUE said…
HI! JUST WANTED TO SAY THANKS FOR COMMENTING ON MY BLOG. I STILL HAVENT WENT THROUGH WITH ANY TREATMENT. WE AS A FAMILY HAVE BEEN DOING WELL DEALING WITH HAYDEN HAVING ALOPECIA. HE HASNT STARTED SCHOOL YET AND I AM SURE THAT A WHOLE OTHER CHAPTER WE WILL FACE WHEN IT COMES. I AM SO HAPPY TO BE INVOLVED WITH THIS SITE! AND I AM ALSO HAPPY TO KNOW THAT WE CAN SHARE EACHOTHERS GOOD AND BAD TIMES WITH EACHOTHER AND KIND OF RELATE. I FEEL HONORED TO KNOW PARENTS WHO HAVE KIDS WITH ALOPECIA, BECAUSE I KNOW WHAT IT IS LIKE. AND I CANT WAIT TO GET TO KNOW ABOUT YOU AND YOUR SON! HE IS SOO CUTE. YOU HAVE A BEAUTIFUL FAMILY!
At 8:47am on October 13, 2008, Cindy said…
Samantha would love to...I will email you..
At 1:11pm on October 5, 2008, Children's Alopecia Project said…
We are based outside of Reading, PA and have CAP Kid Meeting in Southeren Illinois/Missouri, PA and NY.

visit www.childrensalopeciaproject.org and register so you get our emails and you can check out upcoming events.

Take care,

Jeff Woytovich
At 3:39pm on October 4, 2008, Cindy said…
Thanks Carrie..Samantha always enjoys looking at the pages on this website too. Nicky his a sharp looking young man and I think he will be fine. If he is interested in having a pen pal, Sam always has room for one more...I hope things are getting better for Nicky at school. I read your blog to Samantha and she was mad. She told me to tell Nick he should bully back..Sam is spunky..Cindy
At 4:15pm on October 1, 2008, LeslieAnn Butler said…
Hi Carrie and Nicky,
How are you guys today? I just wanted to say hello!
LeslieAnn
 
 
 

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