GLMV
  • Female
  • Miami
  • United States
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Latest Activity

GLMV replied to 2Dachshunds's discussion Botox and FFA in the group Frontal Fibrosing Alopecia
"Notice that this study is about FIVE women. Thats an extremely small number. It also seems to be We're also unaware of other confounding factors such as their sunscreen use, family history of FFA etc. I don't find that study convincing .…"
Feb 2, 2020
GLMV replied to 2Dachshunds's discussion Botox and FFA in the group Frontal Fibrosing Alopecia
"Sorry Botox for excess sweating in FFA Donovan hair clinic "
Feb 2, 2020
GLMV replied to 2Dachshunds's discussion Botox and FFA in the group Frontal Fibrosing Alopecia
"The Donovan hair clinic in Canada has an article about Botox for excess swearing in FFA.  Just google Donovan excess sweating FFA and you’ll find it quickly "
Feb 2, 2020
GLMV replied to 2Dachshunds's discussion Botox and FFA in the group Frontal Fibrosing Alopecia
"I’ve heard of Botox being used to treat excess sweating associated with FFA, I don’t think the majority of alopecia specialists see an association. "
Feb 1, 2020
GLMV joined Kathy in Denver's group
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Frontal Fibrosing Sucess and Burnout Stories

A site dedicated to tracking success separate from a broadly focused site on FFA. When people are new to the diagnosis and searching for info, the success side of things is elusive while the dark side is at every turn. I think this is in part because with success, one moves on. I want to make a plea for people to leave their good stories --- timeline and treatment --- here as those of us who are early in the process need the hope and understanding that success and burnout do happen.
Feb 1, 2020
GLMV commented on Celia UK's group Frontal Fibrosing Alopecia
"And yet I wonder if all those meds and treatment will even make a difference. My mother had FFA, didn't know it and never treated it. Fortunately for her it ' burned' out and she didn't look too bad when she passed away at 90.…"
Jan 26, 2020
GLMV commented on Celia UK's group Frontal Fibrosing Alopecia
"I find the ointments to be just awful, Ive had greasy bangs since Ive started "
Jan 26, 2020
GLMV commented on Celia UK's group Frontal Fibrosing Alopecia
" Ive been recently diagnosed although I calculate Ive had FFA for approximately five years. That's when I lost my eyebrows. Looking back at the pictures of my mother I believe she had it too. I'm seeing Dr. Antonella Tosti at the…"
Jan 26, 2020
GLMV replied to cwdiede's discussion Kyani Sunrise
"I think you're right "
Jan 25, 2020
GLMV replied to Anne Louise's discussion oral isotretinoin (Accutane), FFA and facial papules in the group Frontal Fibrosing Alopecia
" I took Accutane last October for the facial papules on my chin. They were misdiagnosed by a Derm , here in the US  as sebaceous hyperplasia. I know what they were now. Anyway, I took 40 mg a day for three months and they disappeared. The…"
Jan 21, 2020
GLMV commented on Celia UK's group Frontal Fibrosing Alopecia
"She's incredibly brave. Good for her, I hope more women come forward. I don't think her hair loss is from traction alopecia though, it looks more like alopecia areata "
Jan 20, 2020
GLMV replied to Irisheyes's discussion Finesteride, Cellcept results? in the group Frontal Fibrosing Alopecia
"  I'm so glad it slowed down. I'm hoping mine does or in a perfect world burn itself out as my mother's did."
Jan 20, 2020
GLMV replied to Irisheyes's discussion Finesteride, Cellcept results? in the group Frontal Fibrosing Alopecia
"I'm new and so I just read this post. That pharmacist could get in a lot of trouble for his thoughtless advice. They are licensed to dispense, not prescribe. The one mg a day is the dose for men treating male pattern baldness. Unbelievable that…"
Jan 18, 2020
GLMV commented on Celia UK's group Frontal Fibrosing Alopecia
" I guess doing a transplant makes sense depending on your disposable income. If 10,000 AUD is what you make in a week then I say it makes some sense. If that's your income for a month then I don't know? Jeffrey Epstein, our local…"
Jan 5, 2020
GLMV commented on Celia UK's group Frontal Fibrosing Alopecia
"From what I've read hair transplants do well initially if your FFA is somewhat inactive but the long term results are variable with the majority of recipients loosing most of the transplanted hair after four years. There was a case of a woman…"
Jan 5, 2020
GLMV commented on Celia UK's group Frontal Fibrosing Alopecia
"Ive been recently diagnosed as well and just joined the forum. I'm reading about a lot of members stopping botox and various skin products. Well I inherited FFA from my mother . She passed away two years ago at 90. Her FFA stabilized without…"
Dec 31, 2019

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Married
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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