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Started by NorthCarolinaMama. Last reply by lordiron Nov 25. 10 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
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Hi Elizabeth! Oh my goodness you have been through a lot! Hopefully the clot situation is resolved. My question for you is have you been losing hair diffusely (all over, not in patches)? I ask because while I have a seven year old diagnosis of FFA, I developed telogen effluvium after a Covid infection TE is a self resolving diffuse hair loss. I lost hair in handfuls over a six week period. And what was left was dry and just a generally yucky texture. It seemed really thin, but it was really just because I lost hair density, losing approximately 60 to 70% of my hair. Again, telogen effluvium is self resolving, and the hair grows back. It generally hits 2 to 3 months after a very stressful situation, like having a baby, enduring a significant death loss or a serious illness.
Hoping the best for you!
Jamie
In February I had hip replacement surgery and developed blood clots on Memorial Day weekend. This past week my hair's texture seems to be thinner and more like a baby's hair. Has anyone experienced a similar situation? I was diagnosed with FFA in 2018.
Hi Louise, I am responding to your message here since I could not figure out how to send a private one either. I'm sorry you are feeling so down. FFA is definitely an ongoing struggle. Just know that there are other people out here feeling the same way. Sending you a big hug.
Hi, I would like to comment on Louise's comment but I'm not sure how. I've tried clicking on her name highlighted in blue but I get a page saying that what I'm trying to do is not allowed. I just wanted to tell her how much I appreciate her honesty. Everyone on here is so positive but for me FFA really sucks and really hurts and it's feels good to know that someone else feels the same way I do.
Hi,
Just started the 7th year with FFA.
Soo.. many treatments, nothing works.
Soo.. many hair pieces, no one works
Soo.. many therapists, no one works
Soo...many lost years
Soo..much hatred
Soo.. Isolated
NO love
Wasted life
Biggest fear to die bold
Anyone here with the same feelings
Tessa,
Most individuals will qualify for a tax rebate on their wig under the Taxation Ruling TR93/34. Section 159P of this ruling allows for tax rebates on net medical expenses. Those expenses include the cost of medical or surgical appliances that are prescribed by a qualified medical professional, such as a medical or surgical wig. Individuals are entitled to a rebate for net medical expenses that exceed $1,000. I've known about this for awhile and haven't done it yet but this year I will. I've been keeping my receipts and will give them to the accountant at tax time. Sometime between now and then when I'm seeing the doctor for some other reason I'll ask him for a note just in case it's needed to prove I've got alopecia.
Also, sometimes it can get covered in part by private health insurance depending on provider and extras cover. I'm not covered by mine with NIB.
In NSW there is a program called Enable NSW but it's a government program so it's not the easiest to figure out. enable.health.nsw.gov.au I haven't used this program. I was just looking at the criteria and I'm shocked to see that FAA is not on the list, I thought it was. If you have Alopecia Areata, Tichotillomania, Androgenic Alopecia, cancer or temporary hair loss it's seems pretty cut and dry but FAA might need a further application or at least a discussion with someone in that department. Looks like it would be worth the ring around. As a side note QLD , NT and ACT don't have any programs that I'm aware of.
When it comes to the next tax year I'll let everyone know how I got on with mine.
Nerida, How do we access that money in Australia? No one has suggested that to me. I live in Sydney.
Time of a laugh everyone. I think Elon Musk has been on this website. He has stolen my haircut! I may yet get "I love Elon" tattooed on the side of my balding head. Screen%20Shot%202022-01-06%20at%208.35.24%20pm.png
I hope someone was able to message Louise to give her a little support. When I search up Louise there is only one that comes up in our group. Swedish Louise? Push through Louise. We are here if you need to talk more as I'm sure many in this group have had similar experiences. If things are really at that their lowest please make the courageous step and talk to a health professional such as a psychologist. A psychologist isn't going to judge you, they are going to want to help you. Do you have any government support for financial assistance with purchasing wigs? In Australia when it is over $1000 a year you can claim them on Tax and if you are of low income there is other help available to assist with purchase. My favourite wig cost $400 AU (synthetic). We are all here if you need us Louise. Take care.
@illustr8r @CurlyK - OK, thank you. :-)
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