At Alopecia World, we’ve always celebrated the beauty of authenticity, and this recent story perfectly captures that spirit. An Indian bride, Neehar Sachdeva, made headlines for ditching her wig on her wedding day, boldly embracing her alopecia in front of family, friends, and the world.

You can read her story and…

Whole in the Mirror

From Fractured Identity to Fierce Self-Acceptance

What happens when the mirror no longer reflects who you thought you were?

In RJ Jones’ novella, Whole in the Mirror, meet Talia Rivers—a gifted photographer whose life is upended by a diagnosis of alopecia. As Talia confronts fear, loss, and…

For many in the alopecia community, wigs can provide a practical solution for everyday life, helping to address the physical…

Turning Alopecia Into Empowerment

Chloe Bean has done something truly remarkable. She’s taken what many of us with alopecia feel…

Hello, my friends,

As I write this, I’m reminded of how far we’ve come together. Many of you have been with us since the early days of Alopecia World when alopecia felt like an isolating experience. Over the years, we’ve built a community that’s been a source of strength, understanding, and empowerment. Today, I’m thrilled to share something deeply personal—our new book, Whole in the…

We are so excited to share some big news with you.

Our new book, Whole in the Mirror, is NOW available!…

Yup.

It has been over 12 years.  Over 20% of my life has been spent with AU.

Mostly I don't think about it, easier to do if a guy.

My oldest child doesn't really remember me with hair (she was 2 when she helped me shave it off with the clippers.....).  And both kids say they prefer me bald and wouldn't want me to grow my hair back if I could. :-)

I still fantasize about re-growing hair every now and then, but not that often.

I pay attention…

SATURDAY, AUGUST 3, 2024

15th ANNUAL INTERNATIONAL ALOPECIA DAY!

Every year on the first Saturday of August, people from around the world come together to celebrate…

I just saw my dermatologist. I had a bump on my scalp that itched and was scaly. Its seborrheic keratosis which he froze with cryotherapy. It should slough off and be fine in a few days. My primary care MD thought it might be actinic keratosis, which would be pre-cancerous. I am glad it was not. It’s important to see a dermatologist if you find changes on your bald head. It was interesting he kept pushing Olumiant, the recent “wonder drug” for hair regrowth. I’ve researched the drug and…

Jan of 2019 I noticed that my hairline was gradually moving backward.  I saw my Dermatologist in March and he started me on steroid shots, ear to ear about 6 weeks apart.  I had 3 sessions of the shots -he warned me that it could thin my skin ( my temple veins are evident now, but a small price to pay to try to save my hair).  During this period I researched online about FFA,  I found a study at the University of Warsaw that tried 3 different medications on 54 women ( divided into 3 groups).…

I came up with 9!  Can you sugggest another?

• "I appreciate your concern for my hair, but I'm comfortable wth my look."
• "Bald and…

Dealing with unwanted comments about your alopecia can be challenging, and many may suggest responding with a quick comeback. However, diving deeper into the issue reveals a fundamental truth – you cannot control what others say about you. True empowerment comes from within, allowing you to navigate through the comments with grace and confidence.…

In the ever-evolving narrative of alopecia, a noticeable shift has occurred. Once rooted in the empowering realm of self-acceptance, the conversation now centers around the "promising" developments in alopecia treatments. While these advancements offer a glimmer of hope, I believe we should still tread carefully and maintain a balance between progress and the pursuit of self-acceptance.



The discovery of new alopecia treatments undeniably brings a sense of…

Dear Alopecia World Members,

As we bid farewell to the old and embrace the new, We wanted to take a moment to extend my warmest wishes to each and every one of you. As we step into the dawn of a brand new year, may it bring you joy, prosperity, and endless possibilities.

May this year be a canvas of new experiences, filled with moments of…

The holiday season has always been a time of joy, laughter, and the challenge of finding the perfect festive outfit. However, for someone navigating the twists and turns of alopecia, getting dressed up takes on a whole new layer of complexity. Alopecia, with its unpredictable hair loss, throws a unique set of challenges into the mix when deciding what to…

It is essential to recognize that you are not alone in this, as there are 6.5 million people in the US affected by Alopecia. Embrace your new bald appearance and find happiness within yourself, appreciating the journey you have undertaken. Allow Alopecia to be your beautiful cure

When I was first diagnosed alopecia, the idea of self-acceptance felt like an impossible mountain to climb. There were no quick fixes or easy solutions. I didn't wake up one morning, glance at my bald reflection, and suddenly embrace it with unwavering courage. It took me years of struggling with my insecurities, facing my fears head-on, and gradually…

Living with alopecia presents a unique set of challenges. The emotional turmoil, the physical changes, and the constant search for acceptance can challenging. However, I believe that every individual's experience is a testament to strength and resilience. By sharing your personal alopecia story, you have the power to inspire and support others who may be…

The "Call to Adventure" in the world of alopecia is undeniably daunting, but it is also a call to self-discovery, resilience, and personal growth. It's a journey that no one chooses, but it can be transformed into a path of empowerment and acceptance. As you navigate the challenges, emotions, and uncertainties that come with living with alopecia, I leave you…