All Blog Posts (5,826)

?? would I be interested in Alopecia Medical Study.

Hello < Give me one good reason why? When i have already lost every hair on my body which started while in the Military at the age of 57
now i will be 63 next month. So why a study that does not or may not bring results??

Added by Benjamin on February 14, 2021 at 10:08am — No Comments

#YourAutoimmunityIsGorgeous - Part 2

part 2



#girlpower #YourAutoimmunityIsGorgeous

     The Day Had Come...
    Friday morning, May 26, 2017 I woke up late. I was supposed to be in Memphis at 5:30 in the morning to start my makeup. Imagine my…
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Added by Shannon Hyden on February 4, 2021 at 7:00pm — 2 Comments

Looking back to when I developed AU

Right after I lost my hair this week in 2008 at age 56, I was in contact with two women who were putting together a documentary or a blog about alopecia - I don't remember what - named Margaret and Laura, out of NYC.  They interviewed me via Skype but I never found out what, if anything happened with that production.  Recently I did find a Facebook page for them: …

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Added by RenéeJK on January 27, 2021 at 11:00pm — No Comments

Would you do an Alopecia medication study?

I signed up to participate in an alopecia study I thought why not what could it hurt ? I’ve already lost all my hair so there’s nothing to worry about there . But then I think what if my hair grows back? Then I think if it doesn’t help me maybe it will help someone else someone young.Alopecia is devastating for me as an adult I can’t imagine having it as a child or a teenager.But now I’m kind of having second thoughts. I’m kind of worried about the medication I’d be putting into my body…

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Added by HarlyQ on January 26, 2021 at 12:35am — 44 Comments

REGISTER TODAY - Adulting 101 with Alopecia Webinar

Join me and a group of incredible women with alopecia in a Let's Talk webinar!

Adulting can be described as learning to navigate grown-up things and have responsibilities, such as finding full-time employment, paying bills, dating, and relationships, and more. Adulting can be filled with many ups and downs, let alone navigating it with alopecia.

We invite all who identify…
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Added by Cheryl, Co-founder on January 15, 2021 at 1:30am — 2 Comments

New stem cell treatment AAPE for hair loss

Hello all,

I have come across a site hairstemstore.com that sells topical stem cells which seem to be gaining a lot of attention the last few years.
Has any one heard of this?

Added by derryterry on December 2, 2020 at 1:33pm — No Comments

Got Instagram? Link to us!

Follow us on Instagram @alopeciaworld and we will follow…
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Added by Cheryl, Co-founder on November 10, 2020 at 4:11pm — No Comments

Embracing Yourself

An old quote goes “the worst loneliness is to not be comfortable with yourself.” When it comes to coping with insecurities after hair loss, you’ve got to embrace positivity. Remember that you yourself, as much as anybody in the entire universe deserves your love and affection.

As every cloud has a silver lining, always take things positively. Don’t…

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Added by Ericka on November 1, 2020 at 5:00am — No Comments

Alopecia universalis baby

Hi All,

My baby girl was 11 months when she lost all of her her within a couple of weeks, then two months later eyebrows and eyelashes. She is 20 months now and she has white little fuzz hair and white eyelashes and eyebrows. We have another appointment with pediatrician dermatologist in January, till then I would love to connect with parents who have same problem and I hope to find out more stories. 

All the best to everyone!

Added by Maggie on October 10, 2020 at 4:00pm — 10 Comments

Musings on Spraying Your Bald Spots

It’s possible to conceal early signs of balding by using a concealer or bald spot spray. This is a temporary fix and might come in handy if you’ve just started shedding. They don’t get to the root of the problem. A good bald spot spray typically contains nanofibers and dyes.

So, when you apply it on the affected spots, it entwines with your existing hair provide coverage to areas where it’s needed most. These nanofibers are made from keratin which is the exact same natural material…

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Added by Ericka on September 24, 2020 at 12:28pm — 1 Comment

Did you submit your photo?

Added by Cheryl, Co-founder on August 13, 2020 at 2:56pm — No Comments

Happy International Alopecia Day!

BE PROUD AND BE VISIBLE by flooding social media

with your International Alopecia Day photos and greetings!

 

IAD is a way to raise public awareness, AND to…

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Added by Cheryl, Co-founder on July 29, 2020 at 1:30pm — No Comments

Married to Mental Illness, a story about Alopecia from the other side.

I don’t have Alopecia, anxiety or depression. I haven’t had suicidal thoughts roam the sacred space of my mind, nor have I been bullied for my appearance. I am not familiar with the feeling of a panic attack or crippling social anxiety and, I have never felt so deeply overcome with mental pain that I couldn’t breathe. But - I was there for Leon through all of the above and this absolutely devastated me.

When you love someone, everything becomes a simultaneous…

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Added by Jess Tsigros on July 25, 2020 at 11:16pm — 1 Comment

The day I shared Leon's Alopecia story...

We hope our story raises awareness about the devastating psychological and physical effects of alopecia, brings some comfort to others dealing with mental health issues and is a reminder to never question, assume, judge or comment on someone’s appearance.

“Sorry, I didn’t recognise you mate” – the unintentional and heartbreaking words that Leon has heard daily for quite some time now. Also a strong motivator that it was time to go public with this.

So, what did happen to Leon?…

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Added by Jess Tsigros on July 20, 2020 at 2:00am — No Comments

It's NOT "JUST" Hair - Alopecia & Depression

People with depression often feel like they can’t express themselves without judgement. There is a stigma that mental illness isn’t as worthy as a physical illness. People are less forgiving and sympathetic when it comes to mental pain. To me they are two of the same, except physical illness isn’t loaded with shame. It’s easier to comfort someone when they say “my stomach hurts” rather than “my heart is broken” and the reality is most of us would prefer to call in sick with a “migraine”…

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Added by Jess Tsigros on July 20, 2020 at 1:58am — 1 Comment

International Alopecia Day 2020!

SATURDAY, AUGUST 1 will be the 11th annual International Alopecia Day (IAD) - the day to celebrate worldwide who we are.

This year, due to the pandemic, International Alopecia Day organizers request that we all will need to follow CDC and your local health department guidelines about social distancing and safety.

But, even if you can't have the…

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Added by Cheryl, Co-founder on July 13, 2020 at 10:00pm — No Comments

Alopecia areata after pregnancy - advice

Hi All,

I’m looking to get some advice regarding treatment. I was diagnosed with alopecia 5 months postpartum, I had a big patch on the sides of my scalp. Doctor said it could turn into alopecia totalis, so I was on Kenalog injection 5 months and all my hair grew back. Within a month of the last dose alopecia areata recurred and  this time I lost 75% of my hair in a month . Due to covid-19 doctors recommended me to take oral dexamethisone for a month and unluckily there was no…

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Added by AlAm on June 21, 2020 at 6:00pm — No Comments

Eyebrow Hair Loss?

Has anyone had success with treating eyebrow hair loss?

What products/drugs did you use?

I have been using generic Elidel for 2.5months and I am not seeing any success/change.

Added by Shannon H. on May 21, 2020 at 11:47am — 1 Comment

12 Honest Questions About Alopecia Featuring My Mom!

Parenting has difficult moments. When a child is diagnosed with alopecia, the whole family is swept up into a whirlwind of change. There are doctor appointments, questions, treatments, and you are just looking to assure your child will live a happy life in a world that can be very cruel. Through honest conversations, we are…

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Added by Gabe on May 14, 2020 at 9:36pm — No Comments

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