All Blog Posts (5,825)

Has it really been 12 years?

Yup.

It has been over 12 years.  Over 20% of my life has been spent with AU.

Mostly I don't think about it, easier to do if a guy.

My oldest child doesn't really remember me with hair (she was 2 when she helped me shave it off with the clippers.....).  And both kids say they prefer me bald and wouldn't want me to grow my hair back if I could. :-)

I still fantasize about re-growing hair every now and then, but not that often.

I pay attention…

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Added by swillard on August 2, 2024 at 11:47am — 5 Comments

Celebrating International Alopecia Day: Join the Global Movement!

SATURDAY, AUGUST 3, 2024

15th ANNUAL INTERNATIONAL ALOPECIA DAY!

Every year on the first Saturday of August, people from around the world come together to celebrate…

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Added by Cheryl, Co-founder on July 22, 2024 at 9:39pm — No Comments

Dermatology Visit

I just saw my dermatologist. I had a bump on my scalp that itched and was scaly. Its seborrheic keratosis which he froze with cryotherapy. It should slough off and be fine in a few days. My primary care MD thought it might be actinic keratosis, which would be pre-cancerous. I am glad it was not. It’s important to see a dermatologist if you find changes on your bald head. It was interesting he kept pushing Olumiant, the recent “wonder drug” for hair regrowth. I’ve researched the drug and…

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Added by Lili Añel (aka Eulalia) on July 1, 2024 at 1:00pm — 3 Comments

How I saved most of my hair when I had FFA

Jan of 2019 I noticed that my hairline was gradually moving backward.  I saw my Dermatologist in March and he started me on steroid shots, ear to ear about 6 weeks apart.  I had 3 sessions of the shots -he warned me that it could thin my skin ( my temple veins are evident now, but a small price to pay to try to save my hair).  During this period I researched online about FFA,  I found a study at the University of Warsaw that tried 3 different medications on 54 women ( divided into 3 groups).…

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Added by Lagunachris on May 26, 2024 at 1:35pm — 2 Comments

Graceful Responses: 9 "Kinder" Comebacks for Navigating Rude Bald Comments

I came up with 9!  Can you sugggest another?

  • "I appreciate your concern for my hair, but I'm comfortable wth my look."
  • "Bald and…
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Added by Cheryl, Co-founder on April 16, 2024 at 7:00pm — No Comments

The Secret to Shutting Down Alopecia Haters for Good – One Bold Approach Can Transform Your Confidence!

Dealing with unwanted comments about your alopecia can be challenging, and many may suggest responding with a quick comeback. However, diving deeper into the issue reveals a fundamental truth – you cannot control what others say about you. True empowerment comes from within, allowing you to navigate through the comments with grace and confidence.…

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Added by Cheryl, Co-founder on January 6, 2024 at 9:29pm — 1 Comment

Navigating the Crossroads: Balancing Alopecia Treatments, Self-Acceptance, and Unanswered Questions

In the ever-evolving narrative of alopecia, a noticeable shift has occurred. Once rooted in the empowering realm of self-acceptance, the conversation now centers around the "promising" developments in alopecia treatments. While these advancements offer a glimmer of hope, I believe we should still tread carefully and maintain a balance between progress and the pursuit of self-acceptance.



The discovery of new alopecia treatments undeniably brings a sense of optimism…

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Added by Cheryl, Co-founder on January 4, 2024 at 7:30pm — 2 Comments

Wishing You a Bright and Happy New Year, Alopecia World Members!

Dear Alopecia World Members,

As we bid farewell to the old and embrace the new, We wanted to take a moment to extend my warmest wishes to each and every one of you. As we step into the dawn of a brand new year, may it bring you joy, prosperity, and endless possibilities.

May this year be a canvas of new experiences, filled with moments of…

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Added by Cheryl, Co-founder on December 31, 2023 at 11:00pm — 1 Comment

How Do You Slay Holiday Fashion with Alopecia?

The holiday season has always been a time of joy, laughter, and the challenge of finding the perfect festive outfit. However, for someone navigating the twists and turns of alopecia, getting dressed up takes on a whole new layer of complexity. Alopecia, with its unpredictable hair loss, throws a unique set of challenges into the mix when deciding what to…

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Added by Cheryl, Co-founder on November 29, 2023 at 2:00pm — No Comments

Webinar: Men & Alopecia Areata: Our unique experiences

Webinar - Virtual Event
Organizer:  NAAF



Wednesday, November 15

4:00 PM, PST

7:00 PM, EST…

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Added by Cheryl, Co-founder on November 13, 2023 at 2:28am — 2 Comments

Your not alone!

It is essential to recognize that you are not alone in this, as there are 6.5 million people in the US affected by Alopecia. Embrace your new bald appearance and find happiness within yourself, appreciating the journey you have undertaken. Allow Alopecia to be your beautiful cure

Added by 559Courtney on November 13, 2023 at 2:04am — 2 Comments

Your Personal Path to Embracing Self-Acceptance

When I was first diagnosed alopecia, the idea of self-acceptance felt like an impossible mountain to climb. There were no quick fixes or easy solutions. I didn't wake up one morning, glance at my bald reflection, and suddenly embrace it with unwavering courage. It took me years of struggling with my insecurities, facing my fears head-on, and gradually…

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Added by Cheryl, Co-founder on October 25, 2023 at 1:14am — 2 Comments

Embracing Empowerment: Sharing Your Alopecia Journey

Living with alopecia presents a unique set of challenges. The emotional turmoil, the physical changes, and the constant search for acceptance can challenging. However, I believe that every individual's experience is a testament to strength and resilience. By sharing your personal alopecia story, you have the power to inspire and support others who may be…

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Added by Cheryl, Co-founder on October 16, 2023 at 3:00am — 1 Comment

Embracing the Journey and the Challenge Ahead

The "Call to Adventure" in the world of alopecia is undeniably daunting, but it is also a call to self-discovery, resilience, and personal growth. It's a journey that no one chooses, but it can be transformed into a path of empowerment and acceptance. As you navigate the challenges, emotions, and uncertainties that come with living with alopecia, I leave you…

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Added by Cheryl, Co-founder on October 3, 2023 at 6:42pm — 1 Comment

The reason I am bald . Ok I had fire an some of my hair was burnt off...

The reason I am bald . Ok I had fire an some of my hair was burnt off . So I decided to keep shaved off smooth. Then I decided to tattoo my head . From them on I go an an shaved every two weeks. Wow I really love it bald . I really prefer bald any day of the week . I really the the people are bald because of alopecia or some else . I really love women are bald an some day I would love date a lady with a bald head then I probably want to get married to her . But I will promise her I will keep…

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Added by Gup on October 3, 2023 at 10:30am — No Comments

"To all those living with alopecia, I am one of you, and I want to share some words with you. We all face common challenges, but you are not alone on this journey. Alopecia may be a part of our liv…

"To all those living with alopecia,

I am one of you, and I want to share some words with you. We all face common challenges, but you are not alone on this journey.

Alopecia may be a part of our lives, but it does not define us. We are capable of achieving our dreams and goals, regardless of this condition.

There will be no limits to what we can do. We are here to prove to the world that we are strong and resilient. Despite the challenging…

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Added by Abde on September 28, 2023 at 9:28pm — No Comments

CBD and hair growth

Has anyone had any luck with using CBD to help with hair regrowth. My peach fuzz is starting to grow back thicker and it just might turn into actual hair. The only thing I have changed is consuming small dose of CBD daily.

---------------------------

AW:  Other Post across Alopecia World on CBD Oil:

https://alopeciaworld.com/main/search/search?q=cbd+oil

Added by Jeannie Terrel on September 21, 2023 at 3:00pm — No Comments

Week 3 - Alopecia Awareness Month - 30 Days, 30 Facts: Spreading Alopecia Awareness

30 Days, 30 Facts: A Social Media Initiative

One innovative way to participate in Alopecia Awareness Month is by joining the "30 Days, 30 Facts" campaign. This initiative involves sharing graphics that feature a different alopecia-related fact each day of the month. 

Alopecia Awareness Month is an annual campaign that takes place in September, dedicated to raising awareness about alopecia, a condition that affects millions of people worldwide.…

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Added by Cheryl, Co-founder on September 15, 2023 at 11:00am — No Comments

Eve Betts, Alopecian and Former Reality TV Star, faces online abuse

Alopecian, Eve Betts, a reality TV contestant from the show First Dates from 2007 says she receives abuse and sexually explicit material over social media.

Eve shared, "I get a lot of death threats. People saying that I should just die because of the way that I look." Her decision to remove her wig on camera during the show made her a…

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Added by Cheryl, Co-founder on September 8, 2023 at 8:00pm — No Comments

Week 2 - Alopecia Awareness Month - 30 Days, 30 Facts: Spreading Alopecia Awareness

30 Days, 30 Facts: A Social Media Initiative

One innovative way to participate in Alopecia Awareness Month is by joining the "30 Days, 30 Facts" campaign. This initiative involves sharing graphics that feature a different alopecia-related fact each day of the month. Here's why this campaign is so impactful:

Alopecia Awareness Month is an annual campaign that takes place in September, dedicated to raising awareness about alopecia, a…

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Added by Cheryl, Co-founder on September 8, 2023 at 4:05pm — No Comments

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