All Blog Posts (5,811)

5 Things You Should Never Say to Someone With Alopecia

According to an article on Everydayhealth.com:  

"Commenting on someone’s appearance is rarely a good idea. And saying these things to someone experiencing hair loss can be unhelpful at best — and hurtful at worst."

1. ‘Do You Have Cancer?’…

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Added by Cheryl, Co-founder on November 29, 2022 at 7:30pm — 6 Comments

'I had my breasts removed to avoid cancer, and I won't have them rebuilt': Woman, 29, with alopecia, reveals why she refused a reconstruction

"A woman who lost her hair to alopecia and then had a double mastectomy

says she tattooed her flat chest to take control

and create a body that felt 'most like her'…

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Added by Cheryl, Co-founder on November 26, 2022 at 9:48pm — 2 Comments

"AI helps researchers design microneedle patches that restore hair in balding mice"

According to the American Chemical Society:

"researchers reporting in Nano Letters have used artificial intelligence (AI) to predict compounds that could neutralize baldness-causing reactive oxygen species in the scalp. Using the best candidate, they constructed a proof-of-concept microneedle patch and effectively regenerated hair on mice."

AI helps researchers design microneedle patches that restore hair in balding mice

"When the levels of oxygen free radicals are too high, they can…

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Added by Cheryl, Co-founder on October 31, 2022 at 5:53pm — No Comments

FDA and EMA Accept Regulatory Submission for Pfizer’s Ritlecitinib for Individuals 12 Years and Older with Alopecia Areata

Filings based on clinical data demonstrating significant scalp hair regrowth versus placebo 

NEW YORK--(BUSINESS WIRE)-- …

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Added by Cheryl, Co-founder on September 15, 2022 at 8:00am — No Comments

“Sharing my experience may be a beacon of hope for anyone who is battling any sort of mental or physical battle.”

"For Amon Ogyiri, a twenty-four-year-old fashion designer and entrepreneur, being diagnosed with alopecia areata at the age of twenty-four was an unexpected blow. The New-York based creative, whose fashion line Nomä New York has been…

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Added by Cheryl, Co-founder on September 14, 2022 at 8:00am — No Comments

Five Lessons from the Jada and Will Situation

 *Please note that these points apply to adults, not children.

As I imagined it would be, the Oscar slap heard around the world was news for a few days and then it was on to the next things. But I have been mulling it over for the past few weeks and came up with five life lessons that this situation can teach all of…

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Added by Cheryl, Co-founder on September 12, 2022 at 10:00pm — 2 Comments

Alopecia Areata Universalis Precipitated by SARS-CoV-2 Vaccine

"Knowledge about SARS-CoV-2 vaccine safety and benefits is evolving to support decision-making about use of these vaccines. Although benefits of these vaccines greatly overweight risks associated with acquisition of infection, the benefit-risk balance should be communicated to patients."

A Case Report and Narrative Review…

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Added by Cheryl, Co-founder on September 11, 2022 at 3:00pm — 15 Comments

Struggling with your insurance company to cover your hairpieces and or treatments?

Navigating Prior Authorization and Insurance Appeals for Wigs,…

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Added by Cheryl, Co-founder on September 1, 2022 at 9:00am — No Comments

Your Guide to Microblading, Eyelash Extensions, and More

"Hair loss due to alopecia can be discouraging. It impacts not only your outward appearance, but often your self-esteem as well. While many people who have alopecia feel confident in the visible display of their condition, others may be interested in camouflaging or disguising hair loss."

Click here to read…

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Added by Cheryl, Co-founder on August 31, 2022 at 11:30am — 2 Comments

Are you missing out on life?

A friend of mine, Ann-Margaret Hovsepian, recently included this quote her newsletter from a post I posted on Facebook …

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Added by Cheryl, Co-founder on August 30, 2022 at 10:00am — No Comments

We need your input

My first bout with Alopecia was about 8 months after the death of my father. I just turned 10 years old. We were still living in the old country, and I was treated with novocaine injections under my scalp in the area affected. Within 6 weeks, this new hair resembling a rough brush was growing like crazy. 

Fast forward to 1972. In 1970 we came to the States with our mother, an American citizen. It was tough not knowing the language, not having the many friends we left behind, trying to…

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Added by Lilly on August 29, 2022 at 9:17pm — 4 Comments

Relationship and Financial Challenges of Alopecia Areata

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Added by Cheryl, Co-founder on August 27, 2022 at 12:00pm — No Comments

About Us . . .

ABOUT:  Joli Caméléon™ designs, manufactures & markets the industry's finest collection of luxury European & multi-ethnic natural hair creations.  We offer the selection and value to meet the needs of most women & children with hair loss & alopecia. And the educational content creation, product inventory and marketing support to service our growing network of independent professional hair studios worldwide. We live by our mantra: Whatever…

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Added by Michael Leigh on August 26, 2022 at 1:00pm — No Comments

Charlotte, NC: Brand Ambassadors / Models Wanted for Joli Cameleon Line Sept 10-12. Compensated

Hi.  Are you based in Charlotte, NC?  Joli Caméléon is looking for 1-3 Models with Alopecia Totalis or Universalis, or Areata with very little current hair growth, for an industry event in Charlotte, Sat 10 - Mon 12 September.  You would be modeling our Joli Dancer specialty cranial prostheses, for amateur and professional female athletes, (and yoga enthusiasts, spinners, zumba zombies and mad dancers :-) as well as other hair creations for active women.  If not available all 3 days, we may…

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Added by Michael Leigh on August 26, 2022 at 12:59pm — 6 Comments

Did you know there is an International Alopecia Day?!

If so, did you celebrate it?  How?

International Alopecia Day was originally started with Mary Marshall on Alopecia World and has grown to a worldwide event!

If you participated feel free to share your photo here, and on Instagram tag @alopeciaworld so that we can connect, view and share it on Instagram.…

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Added by Cheryl, Co-founder on August 10, 2022 at 2:30pm — No Comments

NAAF Webinar: Identifying Bullying and Standing Up to It Safely

"IDENTIFYING BULLYING AND STANDING UP TO IT SAFELY"

Thursday, August 25, 2022 - 4:00 PM PDT / 6:00 PM CT / 7:00 PM EDT…
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Added by Cheryl, Co-founder on August 6, 2022 at 9:45am — No Comments

You're One Of Them

I was at Hobby Lobby a couple months ago when a woman came up to me and asked how my chemo treatments were going. I was wearing a ball cap. When I looked at her, I saw that she was wearing a bandana and must have been going through chemo herself.

When I explained that I suffered from Alopecia Universalis, she looked me dead in the eye and said, "Oh, you're one of them," and walked away.

Now, I have been mistaken for having cancer and going through chemo many times, but it has…

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Added by TurboK on July 5, 2022 at 1:18am — 11 Comments

I May Not Love How I Look... But

What if you do not consider yourself as one of the young, seemingly beautiful with or without hair type.

Where do you go from there?

How do still develop a sense of self even if you do not believe that you are beautiful?

A video that really bought that home for me is the one below from one of our members, Rachel Goode entitled:  “I may not love how I…

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Added by Cheryl, Co-founder on June 29, 2022 at 11:00am — 2 Comments

Winning the Emotional Game of Alopecia

Are You Stuck In A Metaphorical Tug Of War?

My mind has been on alopecia and what is the best way for us to live life to the fullest while living with the condition?

I am convinced that this is more an emotional battle than a physical one.

Our struggles seem to have more to do with acceptance, will I find a mate? Will kids at school laugh at me?  How do I tell my new date?  Will my spouse still be attracted to me? 

My thought is, if it was just physical then “slapping on” a new wig would…

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Added by Cheryl, Co-founder on June 26, 2022 at 5:23pm — 10 Comments

Eyebrow Pencil

What type of eyebrow pencil works good? I have frontal Fibrosing Alopecia.

Added by Mary Ann on June 21, 2022 at 5:18pm — No Comments

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