I don’t have Alopecia, anxiety or depression. I haven’t had suicidal thoughts roam the sacred space of my mind, nor have I been bullied for my appearance. I am not familiar with the feeling of a panic attack or crippling social anxiety and, I have never felt so deeply overcome with mental pain that I couldn’t breathe. But - I was there for Leon through all of the above and this absolutely devastated me.
When you love someone, everything becomes a simultaneous…Continue
We hope our story raises awareness about the devastating psychological and physical effects of alopecia, brings some comfort to others dealing with mental health issues and is a reminder to never question, assume, judge or comment on someone’s appearance.
“Sorry, I didn’t recognise you mate” – the unintentional and heartbreaking words that Leon has heard daily for quite some time now. Also a strong motivator that it was time to go public with this.
So, what did happen to Leon?…Continue
People with depression often feel like they can’t express themselves without judgement. There is a stigma that mental illness isn’t as worthy as a physical illness. People are less forgiving and sympathetic when it comes to mental pain. To me they are two of the same, except physical illness isn’t loaded with shame. It’s easier to comfort someone when they say “my stomach hurts” rather than “my heart is broken” and the reality is most of us would prefer to call in sick with a “migraine”…Continue
SATURDAY, AUGUST 1 will be the 11th annual International Alopecia Day (IAD) - the day to celebrate worldwide who we are.
But, even if you can't have the…Continue
Added by Cheryl, Co-founder on July 13, 2020 at 10:00pm — No Comments
I’m looking to get some advice regarding treatment. I was diagnosed with alopecia 5 months postpartum, I had a big patch on the sides of my scalp. Doctor said it could turn into alopecia totalis, so I was on Kenalog injection 5 months and all my hair grew back. Within a month of the last dose alopecia areata recurred and this time I lost 75% of my hair in a month . Due to covid-19 doctors recommended me to take oral dexamethisone for a month and unluckily there was no…Continue
Added by AlAm on June 21, 2020 at 6:00pm — No Comments
Has anyone had success with treating eyebrow hair loss?
What products/drugs did you use?
I have been using generic Elidel for 2.5months and I am not seeing any success/change.
Parenting has difficult moments. When a child is diagnosed with alopecia, the whole family is swept up into a whirlwind of change. There are doctor appointments, questions, treatments, and you are just looking to assure your child will live a happy life in a world that can be very cruel. Through honest conversations, we are…Continue
Added by Gabe on May 14, 2020 at 9:36pm — No Comments
I was recently diagnosed with FFA . The Dermatologist gave me a topical for my scalp, prescribed 200mg of Hydroxychloroquine , set up a follow-up appointment for six weeks , and told me to find a support group.
And then 1 week later , corona virus happened !
so all my appointments were canceled and also a Second opinion appointment I was able to set up, was also…Continue
I have not logged on for a while, now I have been furloughed I’ve got time on my hands, how is everyone coping at the moment with this horrible situation, be good to chat with people
Added by Poppy UK on April 21, 2020 at 2:41am — No Comments
Alopecia UK asked two alopecia experts, Dr Matthew Harries and Professor Andrew Messenger for their thoughts:
“Alopecia Areata itself does not compromise the…
Added by Cheryl, Co-founder on April 7, 2020 at 4:30pm — No Comments
In life and alopecia, there are lessons and blessings. Unfortunately, some lessons are harder to swallow. Prom was one of those lessons for me. I'm still learning to let go of the anger and guilt I feel because I wasn't accepting of my appearance. I lost my smile. But through the lesson, I…Continue
Added by Gabe on March 17, 2020 at 3:08pm — No Comments
I have been AU for almost 15 years. I lost every hair on my body over a period of three weeks, and in the process, I lost almost everything. I lost my business because people refused to do business with me. I lost my day job because I no longer had a "professional appearance." I lost the vast majority of my family and friends, because no one wanted to be seen with me. I was told never to come back to the church I was attending because they thought it was contagious.
Every day we look at the photos on Alopecia World and they are truly beautiful and, honestly, deserve to be shared.
Therefore, we are looking for photos that we can share on Alopecia World's Instagram Page.
If you have a cool photo that we can use, please post it here with your IG handle so that we can link it back to your account.…Continue
Hair plays a vital role in black culture. Hair, for black people, has always stood as a symbol of self-expression and power. I wanted to be proud of my hair and proud of my culture.
I love how black culture can express itself through hair. I am fascinated with the precision and talent of professional barbers. The clean edges. The fades. The designs. I saw the movie Barbershop as a celebration of the black community and the support…Continue
Hi Mikr and Others:
My diet is mostly vegan, although I slide and eat fish when vegan protein is not available.
I try to be a good yogi and practice compassion and non-injury to other beings.
Sorry to say that my hair has not grown back, although my blood pressure and cholesterol are excellent.
Added by Brandy on February 18, 2020 at 12:19am — No Comments
We weren't born believing hair makes you pretty, but society has lead us to believe that.
In an empowering move, she took off her wig on the runway.
"Taking my wig off in front of hundreds of people will be a moment I tell my kids about someday!” she told Sports Illustrated. “I was so nervous backstage leading up to the moment, but knew in my heart I had to do it. I had to do it for myself, for all the tears I've cried about this condition, for all the girls…Continue
I'm new to this. Is anyone from the greater Seattle, Washington area?Continue
Hello I just started in this blog, I have been suffering from this condition for a few years now, my hair loss is on the front of my head so it looks like I have a very wide forehead. I am just curious as what is the best shampoo to ti use for my hair so that I do not loose more hair. Please help Thank you
Just watched A.M. Joy and listened to Massachusetts Rep. Ayanna Presley share her secret of living with Alopecia. She bravely went on television without a her wig! Thank you Ayanna for showing the courage and bravery. I hope to get to that point someday! It has taken me many, many years to talk about it with close friends and family.
Added by Hopeful1 on January 19, 2020 at 12:12pm — No Comments