All Blog Posts (5,816)

"Leah Hayes wants to bring alopecia awareness to the Olympics"

Photo credit:  Grace Hollars-USA TODAY Sports

Leah Hayes, a high school senior and competitive swimmer, has set her sights on making it to the 2024 Olympics in Paris. However, her goal goes beyond competing; she also wants to raise awareness about alopecia, an autoimmune…


Added by Cheryl, Co-founder on June 15, 2023 at 9:35am — No Comments

Clinical Trial Opportunity

A clinical research study is looking for adults (18+) diagnosed with alopecia areata with 50% or more scalp hair loss. This study is investigating an oral (taken by mouth) study drug called farudodstat. The main purpose of the study is to see whether farudodstat, when taken twice a day for 12 weeks, can help people with alopecia areata grow hair and to find out…


Added by Cheryl, Co-founder on June 5, 2023 at 7:31pm — No Comments

An Open-Label Subpopulation Study to Evaluate Efficacy and Safety of Baricitinib in Participants that Identify as Black or African American


An ongoing clinical research study is currently recruiting Black and African American patients with alopecia areata for a study that evaluates the safety and effectiveness of an oral  drug. Would you like to know more about this study? This study…


Added by Cheryl, Co-founder on June 5, 2023 at 7:30pm — 1 Comment

Do we need heroes like Jada Pinkett Smith?

It's true, sometimes it's comforting to know that someone famous is going through the same thing you are, like Jada Pinkett Smith and Ayanna Pressley, both of whom have opened up about their struggles with alopecia. It's reassuring to know that you're not alone. However, it's important to remember that these celebrities are just people, like you and me. They…


Added by Cheryl, Co-founder on March 25, 2023 at 11:00pm — 3 Comments

The Power of Finding Strength and Encouragement in Like-Minded Connections

Hey there, fellow members of Alopecia World. Today, let's talk about the importance of our community and what it means to us.


Living with alopecia can be incredibly isolating and challenging. But by joining Alopecia World, we have found a place where we can share our experiences, struggles, and victories with others who truly…


Added by Cheryl, Co-founder on March 12, 2023 at 4:30pm — 3 Comments

Olaplex hair products sued for allegedly causing hair loss and bald spots

According to an article on

"Olaplex, a beauty brand favored by TikTok and Instagram influencers, sells hair products that dozens of customers allege caused “serious injury,” according to a lawsuit filed last week. Olaplex denies the claims, saying independent test results prove the allegations to be false."

'Nearly 30 women joined together to file a lawsuit against Olaplex on February 9, specifically targeting its No. 0 to No. 9 products. They allege the products…


Added by Cheryl, Co-founder on February 21, 2023 at 8:30pm — 2 Comments

Alopecian artist , Molly Tuttle wins 2023 Grammy Award!

The immensely talented singer-songwriter-guitarist, who was born and raised in Palo Alto, led her band Golden Highway to Grammy victory in the best bluegrass album category with 2022’s “Crooked Tree” on Feb. 5, 2023.

“Crooked Tree” is Tuttle’s third studio album. But, Tuttle has had a string of success at recent award shows. Beyond the Grammys, she…


Added by Cheryl, Co-founder on February 9, 2023 at 8:01pm — No Comments

Nature curiosity: Do other mammals go bald like humans?

"I recently read on, in the animal kingdom, hair is unique to mammals, according to Animal Diversity Web. No other animals have hair, and all mammals have hair at least to some extent. Even marine mammals like…


Added by Cheryl, Co-founder on December 23, 2022 at 2:34pm — No Comments

TikToker showing off her hair growth after starting a new miracle alopecia drug - Before and After

The TikToker compiled a video showing weekly hair growth progress.  I am not going to lie, it is impressive.  But for many seeing is believing.  Are you currently using it and getting similar results? No results?  or just your views on why you wouldn't try it.

"People with alopecia are going viral on TikTok after sharing their…


Added by Cheryl, Co-founder on December 22, 2022 at 1:30pm — 5 Comments

5 Things You Should Never Say to Someone With Alopecia

According to an article on  

"Commenting on someone’s appearance is rarely a good idea. And saying these things to someone experiencing hair loss can be unhelpful at best — and hurtful at worst."

1. ‘Do You Have Cancer?’…


Added by Cheryl, Co-founder on November 29, 2022 at 7:30pm — 8 Comments

'I had my breasts removed to avoid cancer, and I won't have them rebuilt': Woman, 29, with alopecia, reveals why she refused a reconstruction

"A woman who lost her hair to alopecia and then had a double mastectomy

says she tattooed her flat chest to take control

and create a body that felt 'most like her'…


Added by Cheryl, Co-founder on November 26, 2022 at 9:48pm — 2 Comments

"AI helps researchers design microneedle patches that restore hair in balding mice"

According to the American Chemical Society:

"researchers reporting in Nano Letters have used artificial intelligence (AI) to predict compounds that could neutralize baldness-causing reactive oxygen species in the scalp. Using the best candidate, they constructed a proof-of-concept microneedle patch and effectively regenerated hair on mice."

AI helps researchers design microneedle patches that restore hair in balding mice

"When the levels of oxygen free radicals are too high, they can…


Added by Cheryl, Co-founder on October 31, 2022 at 5:53pm — No Comments

FDA and EMA Accept Regulatory Submission for Pfizer’s Ritlecitinib for Individuals 12 Years and Older with Alopecia Areata

Filings based on clinical data demonstrating significant scalp hair regrowth versus placebo 



Added by Cheryl, Co-founder on September 15, 2022 at 8:00am — No Comments

“Sharing my experience may be a beacon of hope for anyone who is battling any sort of mental or physical battle.”

"For Amon Ogyiri, a twenty-four-year-old fashion designer and entrepreneur, being diagnosed with alopecia areata at the age of twenty-four was an unexpected blow. The New-York based creative, whose fashion line Nomä New York has been…


Added by Cheryl, Co-founder on September 14, 2022 at 8:00am — No Comments

Five Lessons from the Jada and Will Situation

 *Please note that these points apply to adults, not children.

As I imagined it would be, the Oscar slap heard around the world was news for a few days and then it was on to the next things. But I have been mulling it over for the past few weeks and came up with five life lessons that this situation can teach all of…


Added by Cheryl, Co-founder on September 12, 2022 at 10:00pm — 3 Comments

Alopecia Areata Universalis Precipitated by SARS-CoV-2 Vaccine

"Knowledge about SARS-CoV-2 vaccine safety and benefits is evolving to support decision-making about use of these vaccines. Although benefits of these vaccines greatly overweight risks associated with acquisition of infection, the benefit-risk balance should be communicated to patients."

A Case Report and Narrative Review…


Added by Cheryl, Co-founder on September 11, 2022 at 3:00pm — 15 Comments

Struggling with your insurance company to cover your hairpieces and or treatments?

Navigating Prior Authorization and Insurance Appeals for Wigs,…


Added by Cheryl, Co-founder on September 1, 2022 at 9:00am — No Comments

Your Guide to Microblading, Eyelash Extensions, and More

"Hair loss due to alopecia can be discouraging. It impacts not only your outward appearance, but often your self-esteem as well. While many people who have alopecia feel confident in the visible display of their condition, others may be interested in camouflaging or disguising hair loss."

Click here to read…


Added by Cheryl, Co-founder on August 31, 2022 at 11:30am — 2 Comments

Are you missing out on life?

A friend of mine, Ann-Margaret Hovsepian, recently included this quote her newsletter from a post I posted on Facebook …


Added by Cheryl, Co-founder on August 30, 2022 at 10:00am — No Comments

We need your input

My first bout with Alopecia was about 8 months after the death of my father. I just turned 10 years old. We were still living in the old country, and I was treated with novocaine injections under my scalp in the area affected. Within 6 weeks, this new hair resembling a rough brush was growing like crazy. 

Fast forward to 1972. In 1970 we came to the States with our mother, an American citizen. It was tough not knowing the language, not having the many friends we left behind, trying to…


Added by Lilly on August 29, 2022 at 9:17pm — 4 Comments

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