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Week 2 - Alopecia Awareness Month - 30 Days, 30 Facts: Spreading Alopecia Awareness

30 Days, 30 Facts: A Social Media Initiative

One innovative way to participate in Alopecia Awareness Month is by joining the "30 Days, 30 Facts" campaign. This initiative involves sharing graphics that feature a different alopecia-related fact each day of the month. Here's why this campaign is so impactful:

Alopecia Awareness Month is an annual campaign that takes place in September, dedicated to raising awareness about alopecia, a…

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Added by Cheryl, Co-founder on September 8, 2023 at 4:05pm — No Comments

Hair is growing in...Olumiant

I have been lucky enough to get on Olumiant. I’n five weeks I have a mustache and patches of hair growing. Im 68 and been dealing with my hair growing in a falling out. This drug has some serious side effects that you need to monitor. 

My sense is that alopecia is IS a “systemic disease” process. I have had a bowel resection, mitro valve repair,  of course episodic stomach issues and eye issues, recently retina repair… I.E. everything related to human anatomy and hairlike structures…

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Added by JRC on September 4, 2023 at 6:00pm — No Comments

Truthfulness and Alopecia: Confronting the Fear of Feeling Ugly

Do you ever struggle with feeling unattractive due to alopecia? How has it affected your self-image and how do you deal with those emotions?

Living with alopecia, a condition characterized by hair loss, can challenge our self-esteem and self-image in profound ways. It's okay to acknowledge the feelings of vulnerability and…

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Added by Cheryl, Co-founder on September 4, 2023 at 3:17pm — 2 Comments

September is Alopecia Awareness Month - 30 Days, 30 Facts: Spreading Alopecia Awareness

30 Days, 30 Facts: A Social Media Initiative

One innovative way to participate in Alopecia Awareness Month is by joining the "30 Days, 30 Facts" campaign. This initiative involves sharing graphics that feature a different alopecia-related fact each day of the month. Here's why this campaign is so impactful:

Alopecia Awareness Month is an annual campaign that takes place in September, dedicated to raising awareness…

Continue

Added by Cheryl, Co-founder on August 31, 2023 at 12:30pm — 1 Comment

WALK FOR ALOPECIA™ - NAAF Awareness Event - Ways to join in!

Source:  www.naaf.org



"Imagine waking up to clumps of hair on your pillow.



Or turning off the shower only to find a pile of your hair on the drain.



And that you have numerous bald spots on your head that are so big they can no longer be hidden.

Millions of…

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Added by Cheryl, Co-founder on August 31, 2023 at 10:30am — No Comments

Generic Xeljanz

Guys my medication arrived yesterday from Wellworld. I am so happy right now, yay! I can breathe… in between looking for a job, family illness, and about to run out of meds for Alopecia I can say this one little thing is the biggest thing ever. Thank you guys for your support if anyone needs info send me text.

Added by Apple on August 20, 2023 at 6:04pm — No Comments

Is This Video About Bald Women: Beautiful or Offensive? Share Your Thoughts!

Let's have a discussion AlopeciaWorld.com. Do you find the contents and lyrics to this video about bald women beautiful or offensive.

*All perspectives are welcome on Alopecia World, but please try to be respectful.

Added by Cheryl, Co-founder on August 12, 2023 at 10:30am — 1 Comment

10 Clever Comebacks: Handling Offensive Bald Comments

Dealing with offensive comments can be challenging, but responding with humor and grace can often diffuse the situation. Here are 10 comebacks to offensive bald comments:

1. "Bald and bold – a combo that obviously intimidates some."

2. "I'm too busy living life to worry about my hair. How about you?"

3. "Being bald…

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Added by Cheryl, Co-founder on August 11, 2023 at 11:30am — 3 Comments

International Alopecia Day - August 5th, 2023 - How to Participate!

People all around the world will be having parties, celebrations and awareness events. You’ll see IAD selfies popping up all day on social media.

YOU can be part of the annual International Alopecia Day YouTube slide show!

HOW YOU CAN BE IN THE 2023 IAD VIDEO:

1. Take your photos ON International Alopecia Day, August 5. This is meant to be a snapshot of Alopecians around the world on this ONE day.

2. Please don’t send in professional “studio”…

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Added by Cheryl, Co-founder on July 23, 2023 at 2:00pm — No Comments

Breaking News: US FDA approves another hair loss drug by Pfizer this time

Recent Stories from ABCNews.com"

"The U.S. Food and Drug Administration on Friday approved an alopecia treatment for kids..

The drug, ritlecitinib, is a once-daily pill for kids ages 12 and older with severe alopecia areata, a disease that develops when the body attacks the hair follicles,…

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Added by Cheryl, Co-founder on June 27, 2023 at 10:30am — No Comments

"Leah Hayes wants to bring alopecia awareness to the Olympics"

Photo credit:  Grace Hollars-USA TODAY Sports

Leah Hayes, a high school senior and competitive swimmer, has set her sights on making it to the 2024 Olympics in Paris. However, her goal goes beyond competing; she also wants to raise awareness about alopecia, an autoimmune…

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Added by Cheryl, Co-founder on June 15, 2023 at 9:35am — No Comments

Clinical Trial Opportunity

A clinical research study is looking for adults (18+) diagnosed with alopecia areata with 50% or more scalp hair loss. This study is investigating an oral (taken by mouth) study drug called farudodstat. The main purpose of the study is to see whether farudodstat, when taken twice a day for 12 weeks, can help people with alopecia areata grow hair and to find out…

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Added by Cheryl, Co-founder on June 5, 2023 at 7:31pm — No Comments

An Open-Label Subpopulation Study to Evaluate Efficacy and Safety of Baricitinib in Participants that Identify as Black or African American

CLINICAL TRIAL:

An ongoing clinical research study is currently recruiting Black and African American patients with alopecia areata for a study that evaluates the safety and effectiveness of an oral  drug. Would you like to know more about this study? This study…

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Added by Cheryl, Co-founder on June 5, 2023 at 7:30pm — 1 Comment

Do we need heroes like Jada Pinkett Smith?

It's true, sometimes it's comforting to know that someone famous is going through the same thing you are, like Jada Pinkett Smith and Ayanna Pressley, both of whom have opened up about their struggles with alopecia. It's reassuring to know that you're not alone. However, it's important to remember that these celebrities are just people, like you and me. They…

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Added by Cheryl, Co-founder on March 25, 2023 at 11:00pm — 3 Comments

The Power of AlopeciaWorld.com: Finding Strength and Encouragement in Like-Minded Connections

Hey there, fellow members of Alopecia World. Today, let's talk about the importance of our community and what it means to us.

 

Living with alopecia can be incredibly isolating and challenging. But by joining Alopecia World, we have found a place where we can share our experiences, struggles, and victories with others who truly…

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Added by Cheryl, Co-founder on March 12, 2023 at 4:30pm — 3 Comments

Olaplex hair products sued for allegedly causing hair loss and bald spots

According to an article on CNN.com:

"Olaplex, a beauty brand favored by TikTok and Instagram influencers, sells hair products that dozens of customers allege caused “serious injury,” according to a lawsuit filed last week. Olaplex denies the claims, saying independent test results prove the allegations to be false."

'Nearly 30 women joined together to file a lawsuit against Olaplex on February 9, specifically targeting its No. 0 to No. 9 products. They allege the products…

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Added by Cheryl, Co-founder on February 21, 2023 at 8:30pm — 2 Comments

Alopecian artist , Molly Tuttle wins 2023 Grammy Award!

The immensely talented singer-songwriter-guitarist, who was born and raised in Palo Alto, led her band Golden Highway to Grammy victory in the best bluegrass album category with 2022’s “Crooked Tree” on Feb. 5, 2023.

“Crooked Tree” is Tuttle’s third studio album. But, Tuttle has had a string of success at recent award shows. Beyond the Grammys, she…

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Added by Cheryl, Co-founder on February 9, 2023 at 8:01pm — No Comments

Nature curiosity: Do other mammals go bald like humans?

"I recently read on reconnectwithnature.org, in the animal kingdom, hair is unique to mammals, according to Animal Diversity Web. No other animals have hair, and all mammals have hair at least to some extent. Even marine mammals like…

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Added by Cheryl, Co-founder on December 23, 2022 at 2:34pm — No Comments

TikToker showing off her hair growth after starting a new miracle alopecia drug - Before and After

The TikToker compiled a video showing weekly hair growth progress.  I am not going to lie, it is impressive.  But for many seeing is believing.  Are you currently using it and getting similar results? No results?  or just your views on why you wouldn't try it.

"People with alopecia are going viral on TikTok after sharing their…

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Added by Cheryl, Co-founder on December 22, 2022 at 1:30pm — 5 Comments

5 Things You Should Never Say to Someone With Alopecia

According to an article on Everydayhealth.com:  

"Commenting on someone’s appearance is rarely a good idea. And saying these things to someone experiencing hair loss can be unhelpful at best — and hurtful at worst."

1. ‘Do You Have Cancer?’…

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Added by Cheryl, Co-founder on November 29, 2022 at 7:30pm — 8 Comments

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