I signed up to participate in an alopecia study I thought why not what could it hurt ? I’ve already lost all my hair so there’s nothing to worry about there . But then I think what if my hair grows back? Then I think if it doesn’t help me maybe it will help someone else someone young.Alopecia is devastating for me as an adult I can’t imagine having it as a child or a teenager.But now I’m kind of having second thoughts. I’m kind of worried about the medication I’d be putting into my body…Continue
Join me and a group of incredible women with alopecia in a Let's Talk webinar!
Adulting can be described as learning to navigate grown-up things and have responsibilities, such as finding full-time employment, paying bills, dating, and relationships, and more. Adulting can be filled with many ups and downs, let alone navigating it with alopecia.
I have come across a site hairstemstore.com that sells topical stem cells which seem to be gaining a lot of attention the last few years.
Has any one heard of this?
Added by derryterry on December 2, 2020 at 1:33pm — No Comments
Added by Cheryl, Co-founder on November 10, 2020 at 4:11pm — No Comments
An old quote goes “the worst loneliness is to not be comfortable with yourself.” When it comes to coping with insecurities after hair loss, you’ve got to embrace positivity. Remember that you yourself, as much as anybody in the entire universe deserves your love and affection.
As every cloud has a silver lining, always take things positively. Don’t…Continue
Added by Ericka on November 1, 2020 at 5:00am — No Comments
My baby girl was 11 months when she lost all of her her within a couple of weeks, then two months later eyebrows and eyelashes. She is 20 months now and she has white little fuzz hair and white eyelashes and eyebrows. We have another appointment with pediatrician dermatologist in January, till then I would love to connect with parents who have same problem and I hope to find out more stories.
All the best to everyone!
It’s possible to conceal early signs of balding by using a concealer or bald spot spray. This is a temporary fix and might come in handy if you’ve just started shedding. They don’t get to the root of the problem. A good bald spot spray typically contains nanofibers and dyes.
So, when you apply it on the affected spots, it entwines with your existing hair provide coverage to areas where it’s needed most. These nanofibers are made from keratin which is the exact same natural material…Continue
BE PROUD AND BE VISIBLE by flooding social media
with your International Alopecia Day photos and greetings!
IAD is a way to raise public awareness, AND to…Continue
Added by Cheryl, Co-founder on July 29, 2020 at 1:30pm — No Comments
I don’t have Alopecia, anxiety or depression. I haven’t had suicidal thoughts roam the sacred space of my mind, nor have I been bullied for my appearance. I am not familiar with the feeling of a panic attack or crippling social anxiety and, I have never felt so deeply overcome with mental pain that I couldn’t breathe. But - I was there for Leon through all of the above and this absolutely devastated me.
When you love someone, everything becomes a simultaneous…Continue
We hope our story raises awareness about the devastating psychological and physical effects of alopecia, brings some comfort to others dealing with mental health issues and is a reminder to never question, assume, judge or comment on someone’s appearance.
“Sorry, I didn’t recognise you mate” – the unintentional and heartbreaking words that Leon has heard daily for quite some time now. Also a strong motivator that it was time to go public with this.
So, what did happen to Leon?…Continue
Added by Jess Tsigros on July 20, 2020 at 2:00am — No Comments
People with depression often feel like they can’t express themselves without judgement. There is a stigma that mental illness isn’t as worthy as a physical illness. People are less forgiving and sympathetic when it comes to mental pain. To me they are two of the same, except physical illness isn’t loaded with shame. It’s easier to comfort someone when they say “my stomach hurts” rather than “my heart is broken” and the reality is most of us would prefer to call in sick with a “migraine”…Continue
SATURDAY, AUGUST 1 will be the 11th annual International Alopecia Day (IAD) - the day to celebrate worldwide who we are.
But, even if you can't have the…Continue
Added by Cheryl, Co-founder on July 13, 2020 at 10:00pm — No Comments
I’m looking to get some advice regarding treatment. I was diagnosed with alopecia 5 months postpartum, I had a big patch on the sides of my scalp. Doctor said it could turn into alopecia totalis, so I was on Kenalog injection 5 months and all my hair grew back. Within a month of the last dose alopecia areata recurred and this time I lost 75% of my hair in a month . Due to covid-19 doctors recommended me to take oral dexamethisone for a month and unluckily there was no…Continue
Added by AlAm on June 21, 2020 at 6:00pm — No Comments
Has anyone had success with treating eyebrow hair loss?
What products/drugs did you use?
I have been using generic Elidel for 2.5months and I am not seeing any success/change.
Parenting has difficult moments. When a child is diagnosed with alopecia, the whole family is swept up into a whirlwind of change. There are doctor appointments, questions, treatments, and you are just looking to assure your child will live a happy life in a world that can be very cruel. Through honest conversations, we are…Continue
Added by Gabe on May 14, 2020 at 9:36pm — No Comments
I was recently diagnosed with FFA . The Dermatologist gave me a topical for my scalp, prescribed 200mg of Hydroxychloroquine , set up a follow-up appointment for six weeks , and told me to find a support group.
And then 1 week later , corona virus happened !
so all my appointments were canceled and also a Second opinion appointment I was able to set up, was also…Continue
I have not logged on for a while, now I have been furloughed I’ve got time on my hands, how is everyone coping at the moment with this horrible situation, be good to chat with people
Added by Poppy UK on April 21, 2020 at 2:41am — No Comments
Alopecia UK asked two alopecia experts, Dr Matthew Harries and Professor Andrew Messenger for their thoughts:
“Alopecia Areata itself does not compromise the…
Added by Cheryl, Co-founder on April 7, 2020 at 4:30pm — No Comments
In life and alopecia, there are lessons and blessings. Unfortunately, some lessons are harder to swallow. Prom was one of those lessons for me. I'm still learning to let go of the anger and guilt I feel because I wasn't accepting of my appearance. I lost my smile. But through the lesson, I…Continue
Added by Gabe on March 17, 2020 at 3:08pm — No Comments