"My derm offered to do biopsy. Right now, I am on Spiro from the endocrinologist. My little patch is growing, but do not notice anything at front of my head. What is Gallegos Law? Saw that in one of your posts. I am in Michigan though,…"
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alopecia
Started this discussion. Last reply by Apple Jan 10, 2024. 2 Replies 0 Likes
THANK YOU FOR LISTENING TO MY MADNESS ALOPECIA EFFECTS US ALL IN DIFFERENT WAYS.Continue
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"I have a dermatologist that sees me and prescribes Xeljanz unfortunately in California it cost $6000 a month. I make a good living but that would be my whole paycheck for a month. Thank you for you reply."
"I am not familiar with that treatment, is it Kenalog shots to scale? I do at times require injections to scalp."
"There is treatment my friend, JaK inhibitors we don't need to suffer. Find another dermatologist. I research like crazy and my dermatologist is UCSF provider he knows and gets all the experimental and new drugs for alopecia. I use Xeljanz it…"
"I have never heard of it sorry, beware for a great deal of scammers. I must say though I have been suffering from alopecia since I was 29, I just turned 54. I research like crazy, the only tx that help is oral medication to suppress the immune…"
"Find another dermatologist, one that specializes in autoimmune disorders -alopecia. My first dermatologist at 29 told me "just let it fall out" my reply FU- in my head of course, its my life. I decide whats important to me and hair is…"
"I hope litfulo works well for you."
"I would say No, but that's me.. that's the thing I dread the most.. so sad I know. I don't give advice when it comes to children as I don't have any. I am grateful at this time I didn't have any due to my autoimmune…"
"Tofajak 5mg, I’ve been taking it for two months… my hair is falling all out… humm"
"Is anyone taking tofak from cipla, company from India?"
"What do you think of this new medication Litfulo? I value your opinion because you saved my life. Now my Alopecia is worse than ever and it’s not stress. I had big time stress 3 months ago but was in tofacitinib and my hair did not fall out.…"
"I thought I might share with you taking Xeljanz requires periodic blood work. This is a very powerful medication and without monitaring of your blood it might become a problem. Just wanted to share this with you."
"I think it helps when someone who is going through the same thing as alopecia to say those words, when people who have no idea how I feel it does not resinate. There is fear, fear of sharing your story, fear of getting close to someone because of…"
Profile Information
- Relationship Status:
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- About Me:
- I’m currently taking xeljanz since 2014.. all my hair grew back no sx, my insurance has denied my medication. I can’t go back to that I need to purchase med while I fight my insurance with Gallegos law act of California.
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes - I am 18 or older
Apple's Blog
Generic Xeljanz
Posted on August 20, 2023 at 6:04pm 0 Comments 0 Likes
Guys my medication arrived yesterday from Wellworld. I am so happy right now, yay! I can breathe… in between looking for a job, family illness, and about to run out of meds for Alopecia I can say this one little thing is the biggest thing ever. Thank you guys for your support if anyone needs info send me text.
Comment Wall (3 comments)
- At 3:48am on January 10, 2024,
Bette said…
My derm offered to do biopsy. Right now, I am on Spiro from the endocrinologist. My little patch is growing, but do not notice anything at front of my head. What is Gallegos Law? Saw that in one of your posts. I am in Michigan though, wondering if there is something similar, having issue with insurance suddenly not approving one of my meds.
- At 7:00pm on October 12, 2023,
NicoleT said…
Hey Apple
I just messaged you. Let me know if you need and tofacitanib!
- At 2:49am on January 12, 2020,
Patricia said…
Hello Apple
I have sent a friend request.
Have you found the address in India for Xeljanz?
If not I have a good supplier there and will happily give their details to you.
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