NicoleT
  • Female
  • Brooklyn, NY
  • United States
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by rudrafroo Oct 19, 2021. 469 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7, 2019. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by sampeckard Jul 8, 2021. 92 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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NicoleT's Page

Latest Activity

Matt H replied to NicoleT's discussion Xeljanz from India
"My recent Beacon order (40 boxes) also took 1 month from Mouree, May 2nd - June 3rd.     I was stressed out about waiting so used Emergencydrug.com in the meantime.  They are legit, and only took 2-3 weeks, easier payment…"
Jun 13
NicoleT replied to NicoleT's discussion Xeljanz from India
"thats so helpful for all! thank you for tracking and sharing!"
Jun 13
Fingers_Crossed replied to NicoleT's discussion Xeljanz from India
"I just ordered 600 tabs of baricinx from Beacon. Here is my ordering time line: Email sent to Mouree: May 2 Reply back from them with invoice: May 9 E- transfer money sent on May 13 Email with signed invoice and screenshot of money transfer from me…"
Jun 13
RossGraham replied to NicoleT's discussion Xeljanz from India
"I have emailed, whatsapp'd however still struggling to gain traction with him. I am awaiting the invoice through but it's taking an extremely long time. Supply running short..."
Jun 13
BA9186 replied to NicoleT's discussion Xeljanz from India
"sayeed@beaconmedicare.com.bd is new person I have been working with."
Jun 8
RossGraham replied to NicoleT's discussion Xeljanz from India
"Hi all, I am struggling to get hold of anyone at Beacon to place a new order! Slightly worried as my supply is running out. Any tips/phone numbers? Thanks, Ross"
Jun 8
kevin replied to NicoleT's discussion Xeljanz from India
"hello read don't worry he will answer you by sending you the follow-up indeed it takes much longer than before, that's why don't stay plan 1 month to take the order and send it. if you have Abdullah he has changed jobs he no longer…"
Jun 7
Rob1969 replied to NicoleT's discussion Xeljanz from India
"Hello, everyone I have two tubs of Pfizer Tofacitinib Xeljanz 5mg. One tub is sealed the other tub has 54 tablets in. I had been on them for several months and had fantastic results but weight gain and breathing problems had me decide to stop using…"
Jun 7
yp replied to NicoleT's discussion Xeljanz from India
"you'll have to be very patient unfortunately...but you will eventually get a tracking number after you've paid. i finally got my tracking number on May 22nd and received in USA on Jun 2nd."
Jun 7
lu391 replied to NicoleT's discussion Xeljanz from India
"it is now 2 weeks since I ordered tofacinix from the Beacon, but no response, or tried to send mails and messages on wathapp but no response"
Jun 6
Matt H replied to NicoleT's discussion Xeljanz from India
"I also paid last week, patiently waiting for reply.  In the mean time i've also ordered from emergencydrug.com.  It's the same Beacon Tofacinix at a higher price.  I've read good things about them and they are much…"
May 22
BA9186 replied to NicoleT's discussion Xeljanz from India
"I just received tracking information today."
May 19
Nat replied to NicoleT's discussion Xeljanz from India
"No, paid last week. No notification so far."
May 16
yp replied to NicoleT's discussion Xeljanz from India
"Still waiting on a tracking number and confirmation that it was shipped...  Anyone else get notified that their order was shipped? "
May 16
Anisha replied to NicoleT's discussion Xeljanz from India
"I finally heard back from Mouree as well, but it would be nice to have an alternative pharmacy to Beacon. Curious if anyone has researched it,"
May 9
Matt H replied to NicoleT's discussion Xeljanz from India
"I recieved a What's App message from Mouree last night. She told me to email her, which I did. Waiting for reply.  I've got 3 weeks of Xeljanz left, so I hope to place an order soon."
May 9

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (15 comments)

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At 1:34am on April 29, 2022, MARIA gave NicoleT a gift
Gift
thank you Nicole
At 2:52pm on September 22, 2021, Sara Noside said…

Hi Nicole,

I finally got my generic Xeljanz from Beacon. Mouree was great, super professional and the ordering process was really no hassle at all after I got in contact with him. I’ve made an appointment with my PCP- but I do not know yet if they will test the meds. I called a few compounding pharmacies and the cost was outrageous— $1500, requiring 5 pills to be sent in.

is there an alternative? I don’t want to shell out more money than I have to but know the testing is necessary before I start the process. Any guidance/advice would be much appreciated.

All the love and gratitude!!

-Sara

At 11:59pm on October 5, 2020, Apple said…

I have been so thankful fir prescription Hope which has been able to get xeljanz for me at no cost. This program in based in USA if anyone wants to contact them for help it’s amazing. It is really evaluated yearly and you will have time where you don’t have the medication right away that’s why I needed other sources to obtain the only medical treatment that works for alopecia.

At 11:51pm on October 5, 2020, Apple said…

I am also concerned about reparation date. I have medication that will expire by 10/2021. Trying to juggle meds expiring to take first. 

At 11:50pm on October 5, 2020, Apple said…

I bought 1 year supply from beacon it took about a month or longer to arrive. Doc pharma it was 3 month supply arrived quickly and when one shipment was running late they contacted customs it arrived in 24 hours to my front door.

At 11:28pm on October 5, 2020, Apple said…

The company was DOC Parma delivered to my door within 14 days $500. For one month supply.

At 11:18pm on October 5, 2020, Apple said…

I hear that generic xeljanz will be available in USA soon. Has anyone had any news on this? I had my medication from beacon com by deliver right to my home, but it did take time to arrive. I ordered from another company from India and RCVD it promptly but costly.

At 6:45pm on July 7, 2020, Justyna said…

Does anyone there is in touch with dr. Filamer Kabigting from Hudson Dermatology? 
I’m out of country patient and I’m trying to reach him for online consultation.

At 8:44am on January 22, 2020, Apple said…

I have golden 1 credit union ... Fresno, Ca 93711. I cant sleep omg.

At 3:34am on April 7, 2019, Khalil said…
Hello dear,

Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh

Thank you so much
 
 
 

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