NicoleT
  • Female
  • Brooklyn, NY
  • United States
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by rudrafroo Oct 19, 2021. 469 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7, 2019. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by sampeckard Jul 8, 2021. 92 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

BA9186 replied to NicoleT's discussion Xeljanz from India
"This recently happened to me.  Try OFX.  It was easy to set up and the fee wasn’t much more than what Wise charged."
22 hours ago
RossGraham replied to NicoleT's discussion Xeljanz from India
"Have PM'd you H Ross"
22 hours ago
RossGraham replied to NicoleT's discussion Xeljanz from India
"Hi Iggy, Thanks for the note. I'm so glad he has been able to reap the benefits of Beacon :) To be honest, I just decided to take one less tablet every 2-3 days. I was on 20mg/day and have now reduced to 15/day very easily. There are some days…"
22 hours ago
RossGraham replied to NicoleT's discussion Xeljanz from India
"Thanks Nicole! Wouldn't have been able to get here without your pioneering work and research :)"
22 hours ago
hgpb replied to NicoleT's discussion Xeljanz from India
"Hi All I have tried to send payment to beacon for some more Tofa but “Wise” say they do not now support transfers to this business. Has anyone else experienced this? Or know any other company I can use to transfer asap as I need to order…"
yesterday
Iggy replied to NicoleT's discussion Xeljanz from India
"Ross that is a top story. I joined this forum to help my sign who had pretty serious AA from 18 to 22 yo. Tofa from Beacon has changed his life also. He's also looking to try reduce dosage from 16mg/day to 10. Do you have any advice on that and…"
Jan 5
NicoleT replied to NicoleT's discussion Xeljanz from India
"Ross!!!! You must be thrilled! I'm so happy for you! You look amazing "
Jan 5
Carlie replied to NicoleT's discussion Xeljanz from India
"That's a great head of hair!"
Jan 5
RossGraham replied to NicoleT's discussion Xeljanz from India
"Hi all, I just wanted to share a bit about my story. I had AU for around 2-3 years from the age of 27-29. I started taking Tofa from Beacon on Jan 1st 2021 and by the time August came around I had a full head of hair. I have now tapered back my…"
Jan 5
bibby replied to NicoleT's discussion Xeljanz from India
"Hi Tatiana Regarding my own experience…… I was on 2 x pills per day beacon supplied for initially  3 months before I can say I had significant regrowth. Bare in mind that each beacon pill contains 4.2mg instead of the 5mg in the…"
Dec 11, 2021
kevin replied to NicoleT's discussion Xeljanz from India
"stay at 10 mg is too early to leave 2 months minimum to see if you have regrowth because it is slow. beacon sells baracitinix 11mg it is better because you have less box in your package and you will have more quantity you cut the drug in 2 for the…"
Dec 6, 2021
kevin replied to NicoleT's discussion Xeljanz from India
"thank you for your answer I advise you not to wait until you have a lot of medicine left because at times beacon takes a long time to answer. I can give you an advice if you have a slow regrowth I recommend a combination of cortisone. diazepam 4mg.…"
Dec 6, 2021
Tatiana replied to NicoleT's discussion Xeljanz from India
"I received my order 2 weeks after ordering. Everything went smooth. I have been taking the med for the past 5 days already. So far so good. No side effects. I am taking 5 ml/twice daily. Thinking to increase to 15 ml."
Dec 6, 2021
kevin replied to NicoleT's discussion Xeljanz from India
"hello Tatiana Beacon, did you send the package? because I have to pay and I have no more answers, I have been ordering them dearly for 2 years and I had never had a problem from them"
Dec 6, 2021
Asiatique replied to NicoleT's discussion Xeljanz from India
"Thx man. Maybe there's a difference regarding admission between germany and france? Not sure. Didn't want to misinform anyone. My doctors told me it's in phase 1 and it will probably take several years (3+) until it's on the…"
Nov 24, 2021
kevin replied to NicoleT's discussion Xeljanz from India
"it is in phase 3, ctp 543, the pharmaceutical company plans to submit a marketing application in 2023. ctp 543 has the best response compared to others. several people have gone from xeljanz bad results to ctp 543 or ruxolotinib with complete…"
Nov 24, 2021

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (14 comments)

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At 2:52pm on September 22, 2021, Sara Noside said…

Hi Nicole,

I finally got my generic Xeljanz from Beacon. Mouree was great, super professional and the ordering process was really no hassle at all after I got in contact with him. I’ve made an appointment with my PCP- but I do not know yet if they will test the meds. I called a few compounding pharmacies and the cost was outrageous— $1500, requiring 5 pills to be sent in.

is there an alternative? I don’t want to shell out more money than I have to but know the testing is necessary before I start the process. Any guidance/advice would be much appreciated.

All the love and gratitude!!

-Sara

At 11:59pm on October 5, 2020, Apple said…

I have been so thankful fir prescription Hope which has been able to get xeljanz for me at no cost. This program in based in USA if anyone wants to contact them for help it’s amazing. It is really evaluated yearly and you will have time where you don’t have the medication right away that’s why I needed other sources to obtain the only medical treatment that works for alopecia.

At 11:51pm on October 5, 2020, Apple said…

I am also concerned about reparation date. I have medication that will expire by 10/2021. Trying to juggle meds expiring to take first. 

At 11:50pm on October 5, 2020, Apple said…

I bought 1 year supply from beacon it took about a month or longer to arrive. Doc pharma it was 3 month supply arrived quickly and when one shipment was running late they contacted customs it arrived in 24 hours to my front door.

At 11:28pm on October 5, 2020, Apple said…

The company was DOC Parma delivered to my door within 14 days $500. For one month supply.

At 11:18pm on October 5, 2020, Apple said…

I hear that generic xeljanz will be available in USA soon. Has anyone had any news on this? I had my medication from beacon com by deliver right to my home, but it did take time to arrive. I ordered from another company from India and RCVD it promptly but costly.

At 6:45pm on July 7, 2020, Justyna said…

Does anyone there is in touch with dr. Filamer Kabigting from Hudson Dermatology? 
I’m out of country patient and I’m trying to reach him for online consultation.

At 8:44am on January 22, 2020, Apple said…

I have golden 1 credit union ... Fresno, Ca 93711. I cant sleep omg.

At 3:34am on April 7, 2019, Khalil said…
Hello dear,

Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh

Thank you so much
At 10:56am on February 1, 2019, Justyna said…

Wow looks amazing! 

I'll definitely order it!

Congratulations!

Justyna

 
 
 

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