NicoleT
  • Female
  • Brooklyn, NY
  • United States
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by rudrafroo Oct 19. 469 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7, 2019. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by sampeckard Jul 8. 92 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

rudrafroo replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Propecia without a prescription - https://qualitypillsprovider.com I had heard of Propecia pills for hair loss but had never tried them until I saw that I was losing too much hair. I spent several months following the treatment and quickly saw…"
Oct 19
rudrafroo replied to NicoleT's discussion Xeljanz from India
"Propecia without a prescription - https://qualitypillsprovider.com I had heard of Propecia pills for hair loss but had never tried them until I saw that I was losing too much hair. I spent several months following the treatment and quickly saw…"
Oct 19
Carlie replied to NicoleT's discussion Xeljanz from India
"Hi Tiffany, just wondering if your order made it through. I just placed an order, I live in California."
Oct 10
Sara Noside left a comment for NicoleT
"Hi Nicole, I finally got my generic Xeljanz from Beacon. Mouree was great, super professional and the ordering process was really no hassle at all after I got in contact with him. I’ve made an appointment with my PCP- but I do not know yet if…"
Sep 22
bibby replied to NicoleT's discussion Xeljanz from India
"Hi Daire. ive ordered xeljanz to my Northern Ireland relatives house numerous times (I’m based in Southern Ireland and generic drugs are illegal and banned , probably due to the pharmacies cabal & monopoly in the south)  ive…"
Aug 11
bogoboy liked NicoleT's discussion Tofacitinib Results after 7 Month
Aug 4
NicoleT replied to eve of horus's discussion Boss asked me if my hair was real
"What a complete and total asshole. I remember the 2nd time I went to work in a wig one of the women i was working with walked in first thing in the AM and said "nice wig" and give it a little tug. It ruined my day/month. I had spent a…"
Jul 18
sampeckard replied to NicoleT's discussion Tofacitinib Results after 7 Month
"If you take a pill identifier, it is doubtful that your pill will not work, even if it appears ineffective at first. There are many possible explanations for why your drug does not work, and most pill identifiers will pass the test even if none of…"
Jul 8
Frida replied to NicoleT's discussion Xeljanz from India
"Hi meedo  In England is  Anastasia Therianou I feel very sorry for you and for all affected from Alopecia...  I know how hard it is  I wish you good luck.. keep update us..."
Jul 1
Daire replied to NicoleT's discussion Xeljanz from India
"Hi Ben,  I'm based in NI and just sent my first order for Tofa. I was wondering could if you could tell me more about the consultant based in Dublin?"
Jul 1
Daire replied to NicoleT's discussion Xeljanz from India
"Hi all I'm looking to order Tofacitinib from Becon to the UK (Northern Ireland) for my AU which I've had for 3 years now. Has anyone ordered to the UK and able to tell me how the process was for them? Kind regards Daire"
Jun 30
alopeciaguy1990 replied to NicoleT's discussion Xeljanz from India
"Hey guys! Ive been following this thread for a couple years no. I have alopecia on my face and body so I started Xeljanz in September of 2019 and had all my hair back within 7 months (Normal Density and Color)...which was awesome! I stopped in…"
Jun 27
alopeciaguy1990 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey guys! Ive been following this thread for a couple years no. I have alopecia on my face and body so I started Xeljanz in September of 2019 and had all my hair back within 7 months (Normal Density and Color)...which was awesome! I stopped in…"
Jun 27
Sara Noside replied to NicoleT's discussion Xeljanz from India
"Hey Nicole, Im going to email you, thanks so much."
May 18
NicoleT replied to NicoleT's discussion Xeljanz from India
"Yeah hi cholesterol seems to be the common side effect at least in women. Im taking fish oil and yeah maybe i should consider a cholesterol med hmmm"
May 16
nbrown replied to NicoleT's discussion Xeljanz from India
"Thank you so much to everyone who shared their info on ordering from Beacon! Mine came in the mail yesterday! I've now started taking the generic. So glad to not have to deal with insurance anymore. Just FYI, I have had elevated cholesterol…"
May 15

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (14 comments)

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At 2:52pm on September 22, 2021, Sara Noside said…

Hi Nicole,

I finally got my generic Xeljanz from Beacon. Mouree was great, super professional and the ordering process was really no hassle at all after I got in contact with him. I’ve made an appointment with my PCP- but I do not know yet if they will test the meds. I called a few compounding pharmacies and the cost was outrageous— $1500, requiring 5 pills to be sent in.

is there an alternative? I don’t want to shell out more money than I have to but know the testing is necessary before I start the process. Any guidance/advice would be much appreciated.

All the love and gratitude!!

-Sara

At 11:59pm on October 5, 2020, Apple said…

I have been so thankful fir prescription Hope which has been able to get xeljanz for me at no cost. This program in based in USA if anyone wants to contact them for help it’s amazing. It is really evaluated yearly and you will have time where you don’t have the medication right away that’s why I needed other sources to obtain the only medical treatment that works for alopecia.

At 11:51pm on October 5, 2020, Apple said…

I am also concerned about reparation date. I have medication that will expire by 10/2021. Trying to juggle meds expiring to take first. 

At 11:50pm on October 5, 2020, Apple said…

I bought 1 year supply from beacon it took about a month or longer to arrive. Doc pharma it was 3 month supply arrived quickly and when one shipment was running late they contacted customs it arrived in 24 hours to my front door.

At 11:28pm on October 5, 2020, Apple said…

The company was DOC Parma delivered to my door within 14 days $500. For one month supply.

At 11:18pm on October 5, 2020, Apple said…

I hear that generic xeljanz will be available in USA soon. Has anyone had any news on this? I had my medication from beacon com by deliver right to my home, but it did take time to arrive. I ordered from another company from India and RCVD it promptly but costly.

At 6:45pm on July 7, 2020, Justyna said…

Does anyone there is in touch with dr. Filamer Kabigting from Hudson Dermatology? 
I’m out of country patient and I’m trying to reach him for online consultation.

At 8:44am on January 22, 2020, Apple said…

I have golden 1 credit union ... Fresno, Ca 93711. I cant sleep omg.

At 3:34am on April 7, 2019, Khalil said…
Hello dear,

Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh

Thank you so much
At 10:56am on February 1, 2019, Justyna said…

Wow looks amazing! 

I'll definitely order it!

Congratulations!

Justyna

 
 
 

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