NicoleT
  • Female
  • Brooklyn, NY
  • United States
Share on Facebook MySpace

NicoleT's Friends

  • MARIA
  • Em
  • Shine
  • redmouse1278
  • Sara Noside
  • atlanta123
  • AloneArchitect
  • RossGraham
  • San
  • Jason
  • Jules78
  • Ahmexiom
  • Mary
  • ivylillian
  • hgpb

NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by Apple Oct 12, 2023. 472 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7, 2019. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by sampeckard Jul 8, 2021. 92 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

Gifts Received (1)

 

NicoleT's Page

Latest Activity

Alex J replied to NicoleT's discussion Xeljanz from India
"Hi all, I have 9 boxes of 60 NIBA Tofa 5 (Jaknat) tablets that I no longer need as I managed to order from Beacon again. Would anyone be interested in them?"
Monday
RossGraham replied to NicoleT's discussion Xeljanz from India
"Hi all, Hope you're all ok! Trying Niba for the first time and Wise.com is saying 'unable to send to this account'. Anyone else having this problem? Regards, Ross"
Feb 13
Alex J replied to NicoleT's discussion Xeljanz from India
"niba.sales@gmail.com "
Feb 11
Paul_melb replied to NicoleT's discussion Xeljanz from India
"Hi Bibby, do you have best contact for NIBA? when I search for NIBA I only get emails, corresspondance from indiamart suppliers, so many contacts with IndiaMART, do not know who I can trust, cheers."
Feb 10
bibby replied to NicoleT's discussion Xeljanz from India
"I used the NIBA medication for the last 6 months. The results have been the same beacon product. "
Feb 10
Paul_melb replied to NicoleT's discussion Xeljanz from India
"Hi, Does anyone have best contact email for NIBA? Thanks"
Feb 5
Brock replied to NicoleT's discussion Xeljanz from India
"That’s unfortunate.  I wonder if anyone had it tested against xeljanx."
Jan 27
Jigglyjazz replied to NicoleT's discussion Xeljanz from India
"Hi, I ordered from them.  The medication arrived quickly but it did not work for me Tofacinix from Beacon gave me great results. I order the same medication from NIBA but the brand is Jaknat and so I have lost lots of hair. "
Jan 27
Brock replied to NicoleT's discussion Xeljanz from India
"Has the experience with Nina been ok?  I’ve thought about switching to them but want to make sure the meds are legit."
Jan 27
lu391 replied to NicoleT's discussion Xeljanz from India
"I also wanted to order tofacinib from niba, but now I'm starting to worry, reading that 2 people have had problems with their medicine Jaknar"
Jan 16
hgpb replied to NicoleT's discussion Xeljanz from India
"Hi Jas  send me a dm, I may be able to help you. "
Jan 16
Jigglyjazz replied to NicoleT's discussion Xeljanz from India
"Hello, Has anyone ordered from mpris pharmaceuticals? I am considering ordering as Beacon no longer ship without a prescription to the UK.  I have been on Tofacitnib for 10 months with good results. I ordered from NIBA, they sent me the brand…"
Jan 15
Apple replied to NicoleT's discussion Xeljanz from India
"Tofajak 5mg, I’ve been taking it for two months… my hair is falling all out… humm"
Dec 1, 2023
Apple replied to NicoleT's discussion Xeljanz from India
"Is anyone taking tofak from cipla, company from India?"
Dec 1, 2023
Apple replied to NicoleT's discussion Xeljanz from India
"What do you think of this new medication Litfulo? I value your opinion because you saved my life. Now my Alopecia is worse than ever and it’s not stress. I had big time stress 3 months ago but was in tofacitinib and my hair did not fall out.…"
Nov 30, 2023
Apple liked NicoleT's profile
Oct 12, 2023

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (21 comments)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 7:22pm on October 12, 2023, Apple said…

WELL I JUST STARTED ON TOFAJAK FROM CIPLA ILL KEEP YOU GUYS POSTED. NIMBA TOOK LONG TO GET BACK TO ME AND I WAS SO PANICED I ORDERED FROM WELLWORLD TOFAJAK FROM CIPLA IT SAYS TOFACITINIB CITRATE. ILL LET YOU GUYS KNOW I BOUGHT 6 MONTHS SUPPLY.

At 7:03pm on October 12, 2023, Apple said…

YES NICOLE I SURE DO!

At 5:50pm on October 12, 2023, Apple said…

HI NICOLE I RECENTLY BOUGHT MED FROM INDIA TOFAJAK FROM CIPLA- HAS ANYONE ORDERED FROM THEM? MY DERMATOLOGIST GAVE ME ONE MONTH RX FOR LITFULO NEW PRODUCT FROM PFIZER SPECIFICALLY FOR ALOPECIA- DEVASTATING RESULTS MY HAIR IS FALLING OUT. I JUST STARTED MY TOF. MED FROM INDIA. I THINK MY DEVASTATING EFFECTS ARE FROM LITFULO, BUT OF COURSE I AM SO NERVOUS THAT THIS MED IS FAKE. PLEASE HELP. LITFULO BLOCKS JAK3, OLUMIANT BLOCKS JAK1, JAK2, XELJANZ (TOFACITINIB) BLOCKS JAK1, JAK2, JAK3- THIS IS THE ONE THAT WORKS FOR ME. HOPEFULLY MY NEW INSURANCE COVERS IT. THANKS FOR ALWAYS LISTENING TO MY WORRIES. LOVE YOU GUYS.

At 7:09pm on July 30, 2023, Apple said…

That’s wonderful, the only medication that works for sure, for me too.

At 4:49pm on November 3, 2022, Ben said…

Hi,

I'm having problems ordering from beacon to Europe. Normally I just placed an order with Abdullah Manun but for some reason he will not respond. How is everyone else placing orders.

Thanks

Ben

At 11:58am on October 4, 2022, Tatiana said…

Hi EveryoneI

I have about 15 packs of Tofacinix left from Beacon. I decided to stop taking it. Please let me know if anyone is interested to purchase it. I live in Brooklyn, NY, USA

At 1:34am on April 29, 2022, MARIA gave NicoleT a gift
Gift
thank you Nicole
At 2:52pm on September 22, 2021, Sara Noside said…

Hi Nicole,

I finally got my generic Xeljanz from Beacon. Mouree was great, super professional and the ordering process was really no hassle at all after I got in contact with him. I’ve made an appointment with my PCP- but I do not know yet if they will test the meds. I called a few compounding pharmacies and the cost was outrageous— $1500, requiring 5 pills to be sent in.

is there an alternative? I don’t want to shell out more money than I have to but know the testing is necessary before I start the process. Any guidance/advice would be much appreciated.

All the love and gratitude!!

-Sara

At 11:59pm on October 5, 2020, Apple said…

I have been so thankful fir prescription Hope which has been able to get xeljanz for me at no cost. This program in based in USA if anyone wants to contact them for help it’s amazing. It is really evaluated yearly and you will have time where you don’t have the medication right away that’s why I needed other sources to obtain the only medical treatment that works for alopecia.

At 11:51pm on October 5, 2020, Apple said…

I am also concerned about reparation date. I have medication that will expire by 10/2021. Trying to juggle meds expiring to take first. 

 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service