ivylillian
  • Female
  • Huntsville,Alabama
  • United States
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Ivylillian's Friends

  • NicoleT
  • Piotr

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Latest Activity

ivylillian and Piotr are now friends
Nov 20, 2022
Piotr left a comment for ivylillian
"Hi! Have you ever tried taking Xljanz? Do you know if they have a topical one? I heard that it damages the liver and may cause cancer. Thanks"
Nov 15, 2022
ivylillian replied to NicoleT's discussion Xeljanz from India
"oh good!  Glad you got in touch with someone- with the time difference and I think they are closed Thursday thru Monday- it's not the fastest response time- that's for sure!  Hope you get it quickly! "
Oct 25, 2022
ivylillian replied to NicoleT's discussion Xeljanz from India
"Mouree is the rep I have been in contact with and the rep I dealt with last time too. Maybe it was just the right timing and day and that’s why it felt like it was quick. I am hearing from several people on the jak inhibitors for alopecia…"
Oct 24, 2022
NicoleT and ivylillian are now friends
Oct 24, 2022
ivylillian replied to NicoleT's discussion Xeljanz from India
"I just received tracking information for my meds from Beacon and they are now at customs at JFK, so hopefully they won't stay there too long and I get them soon.  I am pretty pleased with Beacon's response time this time around. …"
Oct 24, 2022
ivylillian replied to NicoleT's discussion Xeljanz from India
"Awesome!  I sent you a message with a friend request. I really appreciate this and look forward to hearing from ya!"
Oct 24, 2022
ivylillian replied to NicoleT's discussion Xeljanz from India
"I am definitely interested if still available! Waiting on mine to arrive from beacon and having a major flare. I am in  US"
Oct 23, 2022
ivylillian replied to NicoleT's discussion Xeljanz from India
"Hey guys! I am in a bind- ordered from Beacon and my todacinix shipped October 21, however I have run out of it completely and of course am now having a major flare up! I keep finding new spots daily. Does anyone have any they would be willing to…"
Oct 23, 2022
ivylillian is now a member of Alopecia World
Jun 23, 2020

Profile Information

About Me:
43 year old woman diagnosed with AU 3 years ago. Mother of 8 year old boy, special education teacher, animal lover and just trying to live happily with Alopecia Universalis.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

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At 2:00pm on November 15, 2022, Piotr said…

Hi! Have you ever tried taking Xljanz? Do you know if they have a topical one? I heard that it damages the liver and may cause cancer. Thanks

 
 
 

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