San
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  • Bangalore, Karnataka
  • India
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San's Discussions

Stopped Xeljanz and hairs are falling again. Need help

Started this discussion. Last reply by mastros May 7. 32 Replies

Hey guys! I cured my AU with generic Xeljanz in a short span and I was fine for few months. Later I started lowering my dosage and now my hairs are falling and I have huge patches. This is really…Continue

Tags: Xeljanz

Received my tofacitinib tablets

Started this discussion. Last reply by San Jan 3, 2021. 4 Replies

Hey guys. I finally received my tofacitinib tablets after a long wait. I'm really thankful for people over here for showing me a way to buy generic xeljanz. So the one i ordered is from India and not…Continue

Tags: Tofacitinib

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Latest Activity

mastros replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"awesome :-) really happy it works for you"
May 7
Too GQ For You replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"yes & I hope so too thanks again"
May 5
jennifer replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"Oh that's the deuroxolitinib trial.  I'm familiar with that.  I think that's phase 3 safety trial right? Hopefully an FDA approved med may be available by next year.  Great to see your success!"
May 5
Too GQ For You replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"Hey Jenn! Thanks & its a 2 year trial 2 pills a day with no side effects since I started. Here is 3 month update. They always have trials on naaf.org, but I would shoot for ctp-543. "
May 5
jennifer replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"This is wonderful technology!  Thank you for posting.  Your hair is growing so even and so quickly. How did you get involved in the trial and do you know if they are taking research participants?"
May 5
Joja101 replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"I’m in a similar position. Got lazy taking my 11mg from Beacon a day. Started shedding very aggressively. Any advise on how to stop the shed and if it’s possible to stabilize. It’s been 3 weeks where I’m shedding bad.…"
May 5
MARIA liked San's discussion Received my tofacitinib tablets
Apr 22
Linda replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"Hello! I started taking Xeljanz one year ago, April 2021 I also have ulcerative colitis and developed AU first time in my 60's. I am surprised at the high dose everyone else has been prescribed. They prescribed mine 5mg twice a day.…"
Apr 20
Danielle36 replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"Hey everyone - I’ve been following the development of this clinic trial that leverages a stem cell educator device, which enable the immune system to reset itself and our bodies wouldn't attack our hair or be reliant on drugs to…"
Mar 28
kevin replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"the ctp 543 will be intended for alopecia so you won't pay anything. finally in France it's like that. why don't you order beacon generic from bangladesh for 4 years i order my expensive boxes from them. 15 dollars per box of 11mg"
Mar 26
Too GQ For You replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"Day 1 (February 4th) vs Now (March 21st)"
Mar 26
SabineTawni replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"So happy to hear this!  However, at age 73, I am certain that I would be excluded as an eligible participant for this trial and any others that pop up, due EXCLUSIVELY to my age.  I wonder if it has occurred to anyone conducting these…"
Mar 26
kevin replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"I've been taking xeljanz for 4 years and several much longer than me I've had a few colds otitis shingles and everything has been repaired the only effect that persists is the increase in cholesterol which is still binding in the long run…"
Mar 26
kevin replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"there are debates here and participants in his trials and I have seen a lot of positive on the ctp 543 but the 'e give more news when they are in remission but come back when the disease will return or ask for information or advise on the Side…"
Mar 26
kevin replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"Great for you, you have the best drugs in this class, ctp 543 has the best results even on xeljanz and baracitinib non-responders. You're only at the start of the treatment given how quickly it's going for you, you should be 100 % in the…"
Mar 26
Too GQ For You replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"I am currently in trial with ctp-543. I lost all my hair (universalis) in 2017, fast forward now & I started taking ctp-543 in February & its March  25 & all my facial hair is back, my head hair has pretty much come back , eye brows…"
Mar 26

Profile Information

Relationship Status:
Single
About Me:
There's nothing much to tell about me. Introvert and nerd. Lost all my hairs on scalp, eyebrows and eyelashes. Looking forward to meet you all
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

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