SabineTawni
  • Female
  • Boalsburg, PA
  • United States
Share on Facebook MySpace

SabineTawni's Friends

  • San
  • Picdubois
  • spoilmygurl
  • NicoleT
  • Livia18
  • okahdz
  • Dollhead
  • gldean1988
  • kevin
  • SusanM

SabineTawni's Discussions

Olumiant coverage

Started this discussion. Last reply by Nikita Rempel Dec 2, 2022. 1 Reply

Does anyone know if Beacon Labs sells Olumiant (the new FDA-approved drug for severe alopecia)?  I am sure my insurance company will probably not cover it, saying it is "not medically necessary".…Continue

Xeljanz Question

Started this discussion. Last reply by Maris Feb 18, 2019. 5 Replies

I have a question about Xeljanz.  Is Xeljanz an immunosuppressant drug?  If so, isn't that dangerous?  How, if it is an immunosuppressant drug, is it any different than prednisone?  I really know…Continue

Gifts Received

Gift

SabineTawni has not received any gifts yet

Give a Gift

 

SabineTawni's Page

Latest Activity

SabineTawni commented on Cheryl, Co-founder's video
Thumbnail

Dr. Gary Linkov who has alopecia is not conviced that Jada has alopecia areata

"I agree, Kenya, and I am not trying to be disrespectful towards you or anyone else with hair loss, regardless of the reason.  I just get really tired of insurance companies and society in general refusing to accept alopecia areata as a REAL…"
Jan 17
SabineTawni commented on Cheryl, Co-founder's video
Thumbnail

Dr. Gary Linkov who has alopecia is not conviced that Jada has alopecia areata

"KKG, I am inclined to agree with you that Jada does not have Alopecia Areata.  I don't mean to be unkind, but sometimes celebrities have a tendency to overdramatize and/or try to jump on the bandwagon when some new disorder (which was…"
Jan 17
SabineTawni replied to Cheryl, Co-founder's discussion Do you wear a wig to blend in?
""Insecure"??  I don't see you as being "insecure" at all, Dreamscometrue.  You are simply trying to live your life (like the rest of us) in the best manner possible.  Why do some people with the autoimmune…"
Dec 7, 2022
SabineTawni replied to Cheryl, Co-founder's discussion Do you wear a wig to blend in?
"I would never dream of going out in public without a wig!  I had hair for 65 years and that is what I am used to having.  Besides, I have no desire to advertise my medical problems to the world.  However, I don't have any problem…"
Dec 7, 2022
Nikita Rempel replied to SabineTawni's discussion Olumiant coverage
"FastPay Casino https://fstpycasino.com is one of the top online casinos that offer a fast, reliable and convenient payment system. No more waiting in long lines at the casino! Simply make your payment through FastPay and you're good to go."
Dec 2, 2022
SabineTawni commented on Cheryl, Co-founder's blog post 5 Things You Should Never Say to Someone With Alopecia
"Hearing the remark over and over again, "It's only hair."  This remark always comes from people with a full, thick head of hair.  I also have a sneaking suspicion that they are trying to make THEMSELVES feel better, not make…"
Nov 29, 2022
SabineTawni left a comment for Picdubois
"Yes, I have the nail issues as well.  Such a frustrating condition!  The worse thing about the finger nail issues is that the small pits and ridge occur UNDER the nail as well, so it is hard to keep my nails clean.  Again, another…"
Nov 29, 2022
Picdubois left a comment for SabineTawni
"Hi Tawni - thanks for your tears and runny nose - I feel less alone. Any other side effects, other than the hair loss that binds us here? I had fingernail issues. Indentations formed across the middle of my nail."
Nov 28, 2022
SabineTawni replied to Erika's discussion Freedom wig pictures/info
"I've always been suspicious of Freedom Wigs.  I don't think any wig is worth $4,000.  It seems as though Freedom Wigs simply try to take advantage of those of us with an autoimmune disease."
Nov 21, 2022
SabineTawni posted a discussion

Olumiant coverage

Does anyone know if Beacon Labs sells Olumiant (the new FDA-approved drug for severe alopecia)?  I am sure my insurance company will probably not cover it, saying it is "not medically necessary". Thanks!See More
Aug 23, 2022
SabineTawni replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It's been my experience that insurance companies try to fight coverage for any new drug.  Frankly, I don't see how they can cover drugs for other autoimmune diseases and then exclude coverage for ours.  Once something is…"
Jul 20, 2022
SabineTawni replied to AlopeciaAndBononos's discussion alopecia universalis - successful treatment
"True, Mia. Even the  dermatologists, at least in my area, are shockingly ignorant when it comes to alopecia areata, totalis, and universalis."
Jun 18, 2022
SabineTawni replied to AlopeciaAndBononos's discussion alopecia universalis - successful treatment
""Real MD"?  Practitioners of western medicine often don't know as much as they think they do.  A really good, competent physician does not completely close his/her mind to holistic/alternative medicine.  "
Jun 15, 2022
SabineTawni replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yes, I did see this, Kathy, and it looks very interesting and promising.  Thanks for bringing it to everyone's attention!"
May 28, 2022
SabineTawni replied to LadyJ's discussion Treatment of Alopecia
"It's my understanding that ordinary baldness is not a disease.  Alopecia areata (totalis, universalis) is a disease--an autoimmune disease.  So, how can a hair transplant help alopecia areata in any of its forms?  Wouldn't…"
May 27, 2022
SabineTawni replied to AA Journey's discussion AA and the Pandemic
"Wanting hair is not "selfish", Joan.  Like it or not, we live in a society that judges you by your appearance.  "...only you care if you have no hair"?  Is that not enough?  No, stress does not cause alopecia…"
May 2, 2022

Profile Information

Relationship Status:
Married
About Me:
67-year-old female with alopecia universalis which began as alopecia areata at age 24. Never needed treatment as it only involved one spot every 5 or 6 years, and the hair always grew back by itself. Then about 7 years ago, a spot formed, then more and more spots, eventually leading to alopecia universalis. After 3 years of universalis and no treatment during those 3 years, the hair is slowly coming back by itself. Very unpredictable disease!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 11:34pm on November 28, 2022, Picdubois said…

Hi Tawni - thanks for your tears and runny nose - I feel less alone. Any other side effects, other than the hair loss that binds us here? I had fingernail issues. Indentations formed across the middle of my nail.

At 4:14pm on April 7, 2022, Picdubois said…

I am actually in Maryland but my post office is in Delaware. I wanted to ask you about tearing and runny nose due to no hair in these areas. I experience and wonder if you did as well

 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2023   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service