SabineTawni
  • Female
  • Boalsburg, PA
  • United States
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SabineTawni's Friends

  • San
  • spoilmygurl
  • Livia18
  • okahdz
  • gldean1988

SabineTawni's Discussions

Xeljanz Question

Started this discussion. Last reply by Maris Feb 18, 2019. 5 Replies

I have a question about Xeljanz.  Is Xeljanz an immunosuppressant drug?  If so, isn't that dangerous?  How, if it is an immunosuppressant drug, is it any different than prednisone?  I really know…Continue

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Latest Activity

SabineTawni commented on Jude's blog post Suddenly losing a ton of hair
"John, You're kidding, right?  Telling someone not to feel stress about losing their hair is like telling someone not to breathe.  It appears Jude (Female Androgenic Alopecia) is a woman.  If so, it is completely different for a…"
Jun 19
SabineTawni left a comment for spoilmygurl
"Thank you for the Friend Request!  Delighted to have someone I can ask questions about Xjelanz.  No, I do not currently take it or have I ever taken it.  But, I am thinking about the possibility of trying it.  What a frustrating…"
May 19
SabineTawni and spoilmygurl are now friends
May 19
SabineTawni replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"Thanks for letting me know that--it makes sense that you are not allowed to sell them here.  Best of luck with the CTP-543 and please keep us all posted!"
May 13
SabineTawni replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"Are you interested in selling the unopened boxes?  Keep us all informed on the CTP-543 trial results.  What is the Xelsource program?"
May 11
SabineTawni replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Truthfully, Sam, your "doctor" sounds like a complete clown!  If he/she is a dermatologist, I can only tell you that most dermatologists are useless when it comes to treating alopecia areata.  They keep trying to treat it as…"
Mar 5
SabineTawni commented on HarlyQ's blog post Would you do an Alopecia medication study?
"Due to my age (72), I don't even bother to look into participation in any of these studies.  No one wants you at this age.  They use the excuse that they are worried about the unknown effects of these drugs on older people.  I…"
Feb 8
SabineTawni replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Agreed. The dermatologists in my area (central PA) are absolutely useless!  They have no idea what they are doing when it comes to alopecia areata.  They keep trying to treat as an external disease with all their lotions and potions, when…"
Feb 1
SabineTawni replied to Jim In Cali's discussion Pfizer Trial
"Kevin, I am not very tech savvy, and I don't find this particular website to be very helpful.  Exactly how do I add you as a Friend?"
Jan 30
SabineTawni replied to Jim In Cali's discussion Pfizer Trial
"Thank you, Linda!!  I was beginning to think the age discrimination was my imagination, but apparently not.  My story is somewhat similar to yours.  All my life, I had the thickest head of hair, you could ever imagine.  Seasoned…"
Jan 30
SabineTawni replied to Jim In Cali's discussion Pfizer Trial
"Kevin, Thank you so very much!  I am seriously thinking about trying Xeljanz and had no idea where to begin in terms of ordering and/or from whom to order.  I will definitely add you as a friend.  Again, I very much appreciate your…"
Jan 22
SabineTawni replied to Jim In Cali's discussion Pfizer Trial
"Again, another trial that excludes older people.  I am 72 and really resent the age discrimination factor in these medical trials.  Before someone chimes in with "But they are worried about the effects on people over a certain age…"
Jan 21
SabineTawni and San are now friends
Jan 4
SabineTawni replied to San's discussion Received my tofacitinib tablets
"Thank you for your kind response, San.  I will definitely be following you online and, most likely, asking you questions.  Again, I am wishing you every success in your battle against this frustrating condition."
Jan 3
SabineTawni replied to San's discussion Received my tofacitinib tablets
"San, Very glad that you received your shipment, and I wish you every success with it.  I have been with Alopecia World for some years now.  Unfortunately, I rarely get any response or feedback to my questions or concerns.  I am 72…"
Dec 29, 2020
SabineTawni replied to nexoo's discussion pf-06651600
"I am just wondering whether or not getting into these clinical trials involves an age limit.  I am 72 years of age, and I would like to enter one of these trials (e.g. CTP 543, Xeljanz, etc.).  I really get fed up with some of these trials…"
Nov 13, 2020

Profile Information

Relationship Status:
Married
About Me:
67-year-old female with alopecia universalis which began as alopecia areata at age 24. Never needed treatment as it only involved one spot every 5 or 6 years, and the hair always grew back by itself. Then about 7 years ago, a spot formed, then more and more spots, eventually leading to alopecia universalis. After 3 years of universalis and no treatment during those 3 years, the hair is slowly coming back by itself. Very unpredictable disease!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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