SabineTawni
  • Female
  • Boalsburg, PA
  • United States
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SabineTawni's Discussions

Olumiant coverage

Started Aug 21 0 Replies

Does anyone know if Beacon Labs sells Olumiant (the new FDA-approved drug for severe alopecia)?  I am sure my insurance company will probably not cover it, saying it is "not medically necessary".…Continue

Xeljanz Question

Started this discussion. Last reply by Maris Feb 18, 2019. 5 Replies

I have a question about Xeljanz.  Is Xeljanz an immunosuppressant drug?  If so, isn't that dangerous?  How, if it is an immunosuppressant drug, is it any different than prednisone?  I really know…Continue

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Latest Activity

SabineTawni posted a discussion

Olumiant coverage

Does anyone know if Beacon Labs sells Olumiant (the new FDA-approved drug for severe alopecia)?  I am sure my insurance company will probably not cover it, saying it is "not medically necessary". Thanks!See More
Aug 23
SabineTawni replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It's been my experience that insurance companies try to fight coverage for any new drug.  Frankly, I don't see how they can cover drugs for other autoimmune diseases and then exclude coverage for ours.  Once something is…"
Jul 20
SabineTawni replied to AlopeciaAndBononos's discussion alopecia universalis - successful treatment
"True, Mia. Even the  dermatologists, at least in my area, are shockingly ignorant when it comes to alopecia areata, totalis, and universalis."
Jun 18
SabineTawni replied to AlopeciaAndBononos's discussion alopecia universalis - successful treatment
""Real MD"?  Practitioners of western medicine often don't know as much as they think they do.  A really good, competent physician does not completely close his/her mind to holistic/alternative medicine.  "
Jun 15
SabineTawni replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yes, I did see this, Kathy, and it looks very interesting and promising.  Thanks for bringing it to everyone's attention!"
May 28
SabineTawni replied to LadyJ's discussion Treatment of Alopecia
"It's my understanding that ordinary baldness is not a disease.  Alopecia areata (totalis, universalis) is a disease--an autoimmune disease.  So, how can a hair transplant help alopecia areata in any of its forms?  Wouldn't…"
May 27
SabineTawni replied to AA Journey's discussion AA and the Pandemic
"Wanting hair is not "selfish", Joan.  Like it or not, we live in a society that judges you by your appearance.  "...only you care if you have no hair"?  Is that not enough?  No, stress does not cause alopecia…"
May 2
SabineTawni commented on Cheryl, Co-founder's blog post Five Lessons from the Jada and Will Situation
"Joan, I agree with everything you said about Will.  Yes, he was wrong, but we all lose our patience sometimes, and Chris Rock was also wrong to take it upon himself to mock someone's medical condition.  I am curious though about your…"
May 2
SabineTawni replied to nohairontop's discussion Education
"You "thank God: for your alopecia"??  Sorry, but that sounds a little strange to me.  "...not a death sentence.."?  Well, it was for the 12 year-old girl who committed suicide over the bullying she received due to…"
May 1
Dollhead and SabineTawni are now friends
Apr 15
SabineTawni commented on Cheryl, Co-founder's video
Thumbnail

Will Smith Slaps Chris Rock after he jokes about Jada's alopecia

"My sentiments exactly, Dollhead.  I will decide myself with whom I wish to discuss my AU and when or whether I wish to discuss it at all.  It is my personal choice, and you're right.  Jada's personal choice was taken away…"
Apr 12
SabineTawni replied to Geoff Taylor's discussion The Oscar should have gone to Jada...
"Laugh at a joke made at my expense??!!!  If someone makes a joke about my medical condition (AU), the last thing I intend to do is LAUGH!  I refuse to enable and embolden a bully!  So next year, when the host at the Oscars stands up…"
Apr 12
SabineTawni left a comment for Picdubois
"Absolutely, tearing eyes and runny nose.  It is then that you realize hair is NOT cosmetic.  Our society has made it cosmetic.  Hair is functional; it is a protectorate.  Nose/ear hairs act as a filter to keep out germs,…"
Apr 7
Picdubois left a comment for SabineTawni
"I am actually in Maryland but my post office is in Delaware. I wanted to ask you about tearing and runny nose due to no hair in these areas. I experience and wonder if you did as well"
Apr 7
SabineTawni commented on Cheryl, Co-founder's video
Thumbnail

Will Smith Slaps Chris Rock after he jokes about Jada's alopecia

"So very sorry about your wife.  She must have suffered tremendously.  My husband is a retired university science professor.   I am not sure he has even noticed my AU yet!  If he had, his comment would likely be "Have you…"
Apr 7
SabineTawni left a comment for Picdubois
"Ahhhh,  a Delaware boy.  My hometown (born and raised there), Wilmington."
Apr 7

Profile Information

Relationship Status:
Married
About Me:
67-year-old female with alopecia universalis which began as alopecia areata at age 24. Never needed treatment as it only involved one spot every 5 or 6 years, and the hair always grew back by itself. Then about 7 years ago, a spot formed, then more and more spots, eventually leading to alopecia universalis. After 3 years of universalis and no treatment during those 3 years, the hair is slowly coming back by itself. Very unpredictable disease!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 4:14pm on April 7, 2022, Picdubois said…

I am actually in Maryland but my post office is in Delaware. I wanted to ask you about tearing and runny nose due to no hair in these areas. I experience and wonder if you did as well

 
 
 

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