SabineTawni
  • Female
  • Boalsburg, PA
  • United States
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SabineTawni's Discussions

Olumiant coverage

Started this discussion. Last reply by Nikita Rempel 10 hours ago. 1 Reply

Does anyone know if Beacon Labs sells Olumiant (the new FDA-approved drug for severe alopecia)?  I am sure my insurance company will probably not cover it, saying it is "not medically necessary".…Continue

Xeljanz Question

Started this discussion. Last reply by Maris Feb 18, 2019. 5 Replies

I have a question about Xeljanz.  Is Xeljanz an immunosuppressant drug?  If so, isn't that dangerous?  How, if it is an immunosuppressant drug, is it any different than prednisone?  I really know…Continue

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Latest Activity

Nikita Rempel replied to SabineTawni's discussion Olumiant coverage
"FastPay Casino https://fstpycasino.com is one of the top online casinos that offer a fast, reliable and convenient payment system. No more waiting in long lines at the casino! Simply make your payment through FastPay and you're good to go."
10 hours ago
SabineTawni commented on Cheryl, Co-founder's blog post 5 Things You Should Never Say to Someone With Alopecia
"Hearing the remark over and over again, "It's only hair."  This remark always comes from people with a full, thick head of hair.  I also have a sneaking suspicion that they are trying to make THEMSELVES feel better, not make…"
Wednesday
SabineTawni left a comment for Picdubois
"Yes, I have the nail issues as well.  Such a frustrating condition!  The worse thing about the finger nail issues is that the small pits and ridge occur UNDER the nail as well, so it is hard to keep my nails clean.  Again, another…"
Tuesday
Picdubois left a comment for SabineTawni
"Hi Tawni - thanks for your tears and runny nose - I feel less alone. Any other side effects, other than the hair loss that binds us here? I had fingernail issues. Indentations formed across the middle of my nail."
Tuesday
SabineTawni replied to Erika's discussion Freedom wig pictures/info
"I've always been suspicious of Freedom Wigs.  I don't think any wig is worth $4,000.  It seems as though Freedom Wigs simply try to take advantage of those of us with an autoimmune disease."
Nov 21
SabineTawni posted a discussion

Olumiant coverage

Does anyone know if Beacon Labs sells Olumiant (the new FDA-approved drug for severe alopecia)?  I am sure my insurance company will probably not cover it, saying it is "not medically necessary". Thanks!See More
Aug 23
SabineTawni replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It's been my experience that insurance companies try to fight coverage for any new drug.  Frankly, I don't see how they can cover drugs for other autoimmune diseases and then exclude coverage for ours.  Once something is…"
Jul 20
SabineTawni replied to AlopeciaAndBononos's discussion alopecia universalis - successful treatment
"True, Mia. Even the  dermatologists, at least in my area, are shockingly ignorant when it comes to alopecia areata, totalis, and universalis."
Jun 18
SabineTawni replied to AlopeciaAndBononos's discussion alopecia universalis - successful treatment
""Real MD"?  Practitioners of western medicine often don't know as much as they think they do.  A really good, competent physician does not completely close his/her mind to holistic/alternative medicine.  "
Jun 15
SabineTawni replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yes, I did see this, Kathy, and it looks very interesting and promising.  Thanks for bringing it to everyone's attention!"
May 28
SabineTawni replied to LadyJ's discussion Treatment of Alopecia
"It's my understanding that ordinary baldness is not a disease.  Alopecia areata (totalis, universalis) is a disease--an autoimmune disease.  So, how can a hair transplant help alopecia areata in any of its forms?  Wouldn't…"
May 27
SabineTawni replied to AA Journey's discussion AA and the Pandemic
"Wanting hair is not "selfish", Joan.  Like it or not, we live in a society that judges you by your appearance.  "...only you care if you have no hair"?  Is that not enough?  No, stress does not cause alopecia…"
May 2
SabineTawni commented on Cheryl, Co-founder's blog post Five Lessons from the Jada and Will Situation
"Joan, I agree with everything you said about Will.  Yes, he was wrong, but we all lose our patience sometimes, and Chris Rock was also wrong to take it upon himself to mock someone's medical condition.  I am curious though about your…"
May 2
SabineTawni replied to nohairontop's discussion Education
"You "thank God: for your alopecia"??  Sorry, but that sounds a little strange to me.  "...not a death sentence.."?  Well, it was for the 12 year-old girl who committed suicide over the bullying she received due to…"
May 1
Dollhead and SabineTawni are now friends
Apr 15
SabineTawni commented on Cheryl, Co-founder's video
Thumbnail

Will Smith Slaps Chris Rock after he jokes about Jada's alopecia

"My sentiments exactly, Dollhead.  I will decide myself with whom I wish to discuss my AU and when or whether I wish to discuss it at all.  It is my personal choice, and you're right.  Jada's personal choice was taken away…"
Apr 12

Profile Information

Relationship Status:
Married
About Me:
67-year-old female with alopecia universalis which began as alopecia areata at age 24. Never needed treatment as it only involved one spot every 5 or 6 years, and the hair always grew back by itself. Then about 7 years ago, a spot formed, then more and more spots, eventually leading to alopecia universalis. After 3 years of universalis and no treatment during those 3 years, the hair is slowly coming back by itself. Very unpredictable disease!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 11:34pm on November 28, 2022, Picdubois said…

Hi Tawni - thanks for your tears and runny nose - I feel less alone. Any other side effects, other than the hair loss that binds us here? I had fingernail issues. Indentations formed across the middle of my nail.

At 4:14pm on April 7, 2022, Picdubois said…

I am actually in Maryland but my post office is in Delaware. I wanted to ask you about tearing and runny nose due to no hair in these areas. I experience and wonder if you did as well

 
 
 

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