kross
  • Male
  • Fort Smith, AR
  • United States
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kross's Discussions

Alopecia Universalis Advice

Started this discussion. Last reply by Apple Jan 9. 8 Replies

Hey everyone,This is my first post, as I’m new to this site. I joined because I wanted to reach out to see if there’s anyone to talk to about this. Here’s my story:I’m currently 27 years old and a…Continue

Tags: Universalis

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Apple replied to kross's discussion Alopecia Universalis Advice
"There is treatment my friend, JaK inhibitors we don't need to suffer. Find another dermatologist. I research like crazy and my dermatologist is UCSF provider he knows and gets all the experimental and new drugs for alopecia. I use Xeljanz it…"
Jan 9
SabineTawni replied to kross's discussion Alopecia Universalis Advice
"Thanks for posting the photos, Jim. You look amazing!"
Sep 29, 2023
Jim In Cali replied to kross's discussion Alopecia Universalis Advice
"Concert Deuruxolitinib Alopecia JAK1&2 inhibitor treatment is expected to be approved soon. My dermatologist said 2 other similar drugs are approved when I go off the study. FDA delayed approval after 1 patient developed a blood clot at the…"
Sep 28, 2023
Jim In Cali replied to kross's discussion Alopecia Universalis Advice
"For 10 years I had the same exact thing happen to me. I first spotted a small "circle crop" that tiny aliens carved in my head. Those perfect circles are tale tell signs of alopecia. Way before this my legs and arms started losing hair.…"
Sep 28, 2023
Denise replied to kross's discussion Alopecia Universalis Advice
""he took one look at me and said I had alopecia areata" - same thing happened to me, then she wanted to do injections, oral, and tropical treatment.I opt'd out of injections/oral because many others stated insurance may or may not pay…"
Sep 20, 2023
SabineTawni replied to kross's discussion Alopecia Universalis Advice
"You state in your post that you were unable to stay on Olumiant because you could not afford it. Why are insurance companies refusing to pay for this? They pay for drugs for eczema, psoriasis, and other autoimmune disease, so why not this one? I…"
Sep 18, 2023
SabineTawni replied to kross's discussion Alopecia Universalis Advice
"You state in your post that you were unable to stay on Olumiant because you could not afford it. Why are insurance companies refusing to pay for this? They pay for drugs for eczema, psoriasis, and other autoimmune disease, so why not this one? I…"
Sep 18, 2023
Craig replied to kross's discussion Alopecia Universalis Advice
"Also, over the course of the past 20 years, I have had a tiny amount of regrowth, but the hairs were super thin and lacked pigment. the regrowth was always on my eyelashes and eyebrows. "
Sep 13, 2023
Craig replied to kross's discussion Alopecia Universalis Advice
"My story is almost exactly like yours. I'm 46 now, but when I was 25, I had little round spots on my head that I would get treated with steroids shots. It worked for about a year, then the spots kept getting bigger and bigger until I had no…"
Sep 13, 2023
kross posted a discussion

Alopecia Universalis Advice

Hey everyone,This is my first post, as I’m new to this site. I joined because I wanted to reach out to see if there’s anyone to talk to about this. Here’s my story:I’m currently 27 years old and a little over two years ago I started losing hair. Prior to it starting, I had medium length hair, and it was very healthy. Same goes for my beard, which was a moderate 2-3 inches long. I randomly discovered a bald spot in my beard, and I tried everything to get the hair to grow back, but I couldn’t…See More
Aug 28, 2023
kross is now a member of Alopecia World
Aug 11, 2023

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Married
Do you have alopecia?
Alopecia universalis
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Yes - I am 18 or older

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