Alopecia World
www.alopeciaworld.com
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Cheryl, Co-founder
- Female
- Detroit, MI
- United States
- Blog Posts (91)
- Discussions (361)
- Events (1)
- Groups (39)
- Photos (369)
- Photo Albums (19)
- Videos (59)
Cheryl, Co-founder's Groups
Cheryl, Co-founder's Discussions
Teen With Alopecia Had Her Mom Paint Her Bald Head For Her Senior Photo Shoot
Started this discussion. Last reply by diana Mar 20, 2020. 25 Replies 19 Likes
5 Things to Say to Someone with Alopecia
Started this discussion. Last reply by aa123 Mar 19, 2019. 2 Replies 2 Likes
The 'Third Date Rule' by Debbi Fuller
Started this discussion. Last reply by ree221 Mar 22, 2019. 53 Replies 25 Likes
Official Blog
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Our Video submission for National Bald Out Day 2009!
Cheryl, Co-founder's Videos
Gifts Received (15)
Cheryl, Co-founder of Alopecia World
Profile Information
- Relationship Status:
- Married
- About Me:
- I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.
It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).
Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).
On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.
I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.
In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.
Please feel free to "friend" rj and me: We would love to make your acquaintance.
Welcome to our world… AlopeciaWorld.com!
Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
"It's Hair Loss Support At Its Best"
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- Alopecia areata
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Cheryl, Co-founder's Photos
Cheryl, Co-founder's Blog
Five Lessons from the Jada and Will Situation
Posted on May 1, 2022 at 10:00pm 5 Comments 3 Likes
*Please note that these points apply to adults, not children.
As I imagined it would be, the Oscar slap heard around the world was news for a few days and then it was on to the next things. But I have been mulling it over for the past few weeks and came up with five life lessons that this situation can teach all of us. …
I will be on live stream tonight the CBS - Kcbs Kcal Los Angeles
Posted on March 28, 2022 at 7:30pm 1 Comment 1 Like
Hi Everyone,
This is my 2nd interview today talking about the Jada Pinkett/Will Smith/Chris Rock incident.
I will be on CBS News in Los Angeles live at 5:30 PM (PACIFIC TIME) 8:30 PM EASTERN
(Monday, March 28th, 2022)
If you get a chance to tune in that would be…
Continue12-Year Old Rio Allred Dies by Suicide after being bullied about her Alopecia
Posted on March 22, 2022 at 5:00pm 7 Comments 2 Likes
This is tragic, but I think it is important that we all share this story. What can we do individually or as a community to help our brothers and sisters?
"Candlelight vigil for 12-year-old North Side Middle School student"
"Nicole Ball claims her daughter was bullied…
12 Celebrities Who Have Spoken Openly About Hair Loss
Posted on March 17, 2022 at 9:42pm 1 Comment 1 Like
"Losing your hair can be pretty devastating, and if it's an experience that you know all too well, you’re not alone. Hairloss is more common than you think, and it doesn’t discriminate or target specific people"
"Even some of the celebrities you know and love have experienced it, and thankfully for…
Continue
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thank you Cheryl for your acceptation hello nice people
thank you for your beautiful smile
I would like to e-mail you my song 'Bald and Beautiful'. I write songs about bald pride.
Awesome Blog! Glad I found it and you are beautiful and encouraging.
I've been seeing a a dermatologist who is a specialist on alopecia at University of Colorado Health. He has had me on Methotrexate for 2.5 years and I have 75% of my scalp hair, eyebrows and eyelashes back. This drug has made a huge difference for me. Though there are side affects, I have felt that they are worth the risk.
Thanks, Cheryl, for uploading the animation, 'It's only Hair.' It is great to see what an active and supportive website you have developed.
Best wishes, Emma
Thank you Cheryl,
I would like to let the members know of something I have found useful in only the last several months. I have alopecia ophiasis (and have had occasionally nails come off) and was told from the beginning that it was unlikely to show improvement. For some 8 or so years, I went to various dermatologists in NYC hospitals. I had monthly steriod injections. Also for a short time, squaric acid to use at home. Finally after having been with one dematologist (having injections) she suggested Rogaine 5% and Fluocinonide 0.05%. I don't know whether to be pleased or angry that this was not mentioned years ago. Why? I have some hair regrowth in places that were completely bare. Also around the hairline I see some regrowth (mixture of dark and white, neither of which I am, but never mind). I can use the stronger Rogaine having had a hysterectomy some years ago. Being very fair I was not a candidate for laser treatment. Who knows if I had been given this much earlier whether the hair loss would have been far less. She has moved away so I cannot ask her but wanted to give this information to others in case it may be helpful to them. I use one in the morning and the other at night. It does make the hair look a bit dull - but that is a minimal problem. It is also cheaper than monthly injections. It would be wonderful if this could help others.
Paula
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