Alopecia World
www.alopeciaworld.com
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Cheryl, Co-founder
- Female
- Detroit, MI
- United States
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Official Blog
Our Video submission for National Bald Out Day 2009!
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Cheryl, Co-founder of Alopecia World
Profile Information
- Relationship Status:
- Married
- About Me:
- I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.
It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).
Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).
On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.
I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.
In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.
Please feel free to "friend" rj and me: We would love to make your acquaintance.
Welcome to our world… AlopeciaWorld.com!
PS: Don't forget to check out our book:
Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:
Available on Amazon:
https://a.co/d/6emBEMY
Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com
"It's Hair Loss Support At Its Best"
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- Alopecia areata
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Cheryl, Co-founder's Photos
Cheryl, Co-founder's Blog
What You Avoid Controls You; What You Face Frees You
Posted on April 1, 2025 at 2:37pm 0 Comments 1 Like
Alopecia isn’t just about losing hair—it’s about losing control. When I first lost my hair, I didn’t hate the reflection staring back at me, but I feared how others would see me. So, I hid. I wore wigs not because I loved them, but because I was afraid not to.
The journey wasn’t linear. It took about five years—some days I felt brave, others exposed.…
ContinueAuthenticity in Action: An Indian Bride’s Bold Choice
Posted on February 4, 2025 at 5:00pm 0 Comments 0 Likes
At Alopecia World, we’ve always celebrated the beauty of authenticity, and this recent story perfectly captures that spirit. An Indian bride, Neehar Sachdeva, made headlines for ditching her wig on her wedding day, boldly embracing her alopecia in front of family, friends, and the world.
You can read her story and…
ContinueDiscover The New Book "Whole in the Mirror" – A Journey to Fierce Self-Acceptance
Posted on February 3, 2025 at 12:22pm 0 Comments 0 Likes
Whole in the Mirror
From Fractured Identity to Fierce Self-Acceptance
What happens when the mirror no longer reflects who you thought you were?
In RJ Jones’ novella, Whole in the Mirror, meet Talia Rivers—a gifted photographer whose life is upended by a diagnosis of alopecia. As Talia confronts fear, loss, and…
ContinueHow to Get Your Wig Costs Reimbursed by Health Insurance
Posted on January 31, 2025 at 9:00pm 0 Comments 0 Likes
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thank you Cheryl for your acceptation hello nice people
thank you for your beautiful smile
I would like to e-mail you my song 'Bald and Beautiful'. I write songs about bald pride.
Awesome Blog! Glad I found it and you are beautiful and encouraging.
I've been seeing a a dermatologist who is a specialist on alopecia at University of Colorado Health. He has had me on Methotrexate for 2.5 years and I have 75% of my scalp hair, eyebrows and eyelashes back. This drug has made a huge difference for me. Though there are side affects, I have felt that they are worth the risk.
Thanks, Cheryl, for uploading the animation, 'It's only Hair.' It is great to see what an active and supportive website you have developed.
Best wishes, Emma
Thank you Cheryl,
I would like to let the members know of something I have found useful in only the last several months. I have alopecia ophiasis (and have had occasionally nails come off) and was told from the beginning that it was unlikely to show improvement. For some 8 or so years, I went to various dermatologists in NYC hospitals. I had monthly steriod injections. Also for a short time, squaric acid to use at home. Finally after having been with one dematologist (having injections) she suggested Rogaine 5% and Fluocinonide 0.05%. I don't know whether to be pleased or angry that this was not mentioned years ago. Why? I have some hair regrowth in places that were completely bare. Also around the hairline I see some regrowth (mixture of dark and white, neither of which I am, but never mind). I can use the stronger Rogaine having had a hysterectomy some years ago. Being very fair I was not a candidate for laser treatment. Who knows if I had been given this much earlier whether the hair loss would have been far less. She has moved away so I cannot ask her but wanted to give this information to others in case it may be helpful to them. I use one in the morning and the other at night. It does make the hair look a bit dull - but that is a minimal problem. It is also cheaper than monthly injections. It would be wonderful if this could help others.
Paula
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