Cheryl, Co-founder's Blog (71)

My Bald Head Is My Victory Dance And You?

“Alopecia areata is a common autoimmune skin disease, causing hair loss on the scalp, face, and sometimes on other areas of the body. In fact, it affects as many as 6.8 million people in the U.S. with a lifetime risk of 2.1%.”

Things have changed so much for me that most of the time I forget I even have alopecia. But I…

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Added by Cheryl, Co-founder on September 3, 2021 at 12:47pm — No Comments

STUDY: Identification of stigmatization and psychosocial stress in people with Alopecia areata or androgenetic Alopecia

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Participate in a study to understand well-being and experiences of stigma among adults dealing with hair loss.  This is an anonymous,…

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Added by Cheryl, Co-founder on May 24, 2021 at 10:41pm — No Comments

"Change is hard at first, messy in the middle, and gorgeous at the end"

Did you know that we are not only the owner of AlopeciaWorld.com, but we are also photographers?

I met Michelle online and immediately connected with her.  This session started as a boudoir shoot and ended as a self-journey.  It was very touching and real as the photographs reveal a story of entering into self-acceptance.

Michelle wrote:

"Change is hard at first, messy in the middle, and gorgeous at the end.   Four years…

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Added by Cheryl, Co-founder on May 24, 2021 at 9:31pm — No Comments

REGISTER TODAY - Adulting 101 with Alopecia Webinar

Join me and a group of incredible women with alopecia in a Let's Talk webinar!

Adulting can be described as learning to navigate grown-up things and have responsibilities, such as finding full-time employment, paying bills, dating, and relationships, and more. Adulting can be filled with many ups and downs, let alone navigating it with alopecia.

We invite all who identify…
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Added by Cheryl, Co-founder on January 15, 2021 at 1:30am — 2 Comments

Got Instagram? Link to us!

Follow us on Instagram @alopeciaworld and we will follow…
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Added by Cheryl, Co-founder on November 10, 2020 at 4:11pm — No Comments

Did you submit your photo?

Added by Cheryl, Co-founder on August 13, 2020 at 2:56pm — No Comments

Happy International Alopecia Day!

BE PROUD AND BE VISIBLE by flooding social media

with your International Alopecia Day photos and greetings!

 

IAD is a way to raise public awareness, AND to…

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Added by Cheryl, Co-founder on July 29, 2020 at 1:30pm — No Comments

International Alopecia Day 2020!

SATURDAY, AUGUST 1 will be the 11th annual International Alopecia Day (IAD) - the day to celebrate worldwide who we are.

This year, due to the pandemic, International Alopecia Day organizers request that we all will need to follow CDC and your local health department guidelines about social distancing and safety.

But, even if you can't have the…

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Added by Cheryl, Co-founder on July 13, 2020 at 10:00pm — No Comments

Alopecia and Covid-19 (Coronavirus)

A few people have asked about the new Coronavirus (Covid-19) and if we are at more risk because we have alopecia.  I did a search and found this:



Alopecia UK asked two alopecia experts, Dr Matthew Harries and Professor Andrew Messenger for their thoughts:



“Alopecia Areata itself does not compromise the…

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Added by Cheryl, Co-founder on April 7, 2020 at 4:30pm — 1 Comment

Looking for photos to promote alopecia awareness on our Instagram page!

Every day we look at the photos on Alopecia World and they are truly beautiful and, honestly, deserve to be shared.

Therefore, we are looking for photos that we can share on Alopecia World's Instagram Page.

If you have a cool photo that we can use, please post it here with your IG handle so that we can link it back to your account.…

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Added by Cheryl, Co-founder on February 21, 2020 at 2:30pm — 11 Comments

Women with alopecia pose in stunning photo series to show that bald is beautiful

"Models removed their wigs to embrace their hairlessness to pose in a photoshoot which raises awareness of the condition."

Excerpts from an article on Metro.co.uk:

"Photographer Chrissy Sparks, 35, from Birmingham, has photographed thousands of women, of all shapes and sizes, since opening…

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Added by Cheryl, Co-founder on December 30, 2019 at 9:30pm — 3 Comments

"I didn’t know it was OK not to completely fit in."

I came across this article on Refinery29.com and I am sure many with alopecia or children with alopecia will find it encouraging.

"Model Jeyza Gary has a rare, inherited condition that causes her skin to shed every two weeks. Two years ago, she decided to pursue a modeling career while completing her bachelor's degree in special education.…

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Added by Cheryl, Co-founder on September 19, 2019 at 11:00pm — No Comments

Student with Alopecia takes the crown at local pageant

""Bald is beautiful" isn't just a motto for one Gilbert Middle School student— it's a lifestyle."

I recently came across this article on wxlt.com that I thought I would share with the community.

"Gracie Ann Roland was diagnosed with alopecia, a condition that causes hair loss from some or all areas of the body, a year ago."

"Rather than letting her…

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Added by Cheryl, Co-founder on February 27, 2018 at 12:30pm — 2 Comments

"The Male Model Who Lost His Hair" - QC.com

I recently came across an article on QC.com and pulled a few excepts:

 "Justin Hopwood's perfect looks helped him land a perfect career, traveling the world to model for Ralph Lauren. Then he was diagnosed with alopecia. What do you do when you lose your money-maker? Especially when that money-maker is a perfect head of hair? He's trying to figure that out."…

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Added by Cheryl, Co-founder on September 28, 2017 at 11:50pm — No Comments

"I created my own beauty standards"

It amazes me how many people share their stories and triumphs about their alopecia.  I recently found another one that I think the community would benefit from.

 

By Lennox Bishop

...Fast forward to a few weeks after I decided to shave off what remained of my hair—surrounded by friends and with many…

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Added by Cheryl, Co-founder on April 29, 2017 at 11:41pm — 7 Comments

CNN - Girl with alopecia wins competition with gorgeous jeweled head

Source:  CNN/ By Alexandra Larkin

I agree with this mother that it is important to support your children with alopecia and help them understand that they are no different than anyone else with or without hair.

(CNN)Even without hair, 7 year-old Gianessa Wride has managed to sparkle -- and win her Utah school's "Crazy Hair…

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Added by Cheryl, Co-founder on April 27, 2017 at 3:13am — No Comments

"Meet the inspiring woman embracing her alopecia, even on her wedding day"

I recently came across an article about Kylie Bamberger, a member of Alopecia World. Below are some excerpts I would like to share:

“Kylie Bamberger looks every bit the blushing bride in her wedding photos. She’s wearing a white ball gown, clutching a bouquet of…

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Added by Cheryl, Co-founder on April 26, 2017 at 11:00pm — No Comments

Use your difference

One of the groups on AlopeciaWorld.com is called “Use Your Difference!" and it reminds me that there are many ways you can use your alopecia to help others.

 

For example, right here on AlopeciaWorld.com, you can make it a habit to send…

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Added by Cheryl, Co-founder on December 14, 2016 at 3:40am — 3 Comments

Libby’s inspiring story of strength and love in overcoming the pain of hair loss

Charity Bailey, co-host of RightThisMinute.com, is helping spread the word about women and alopecia by featuring the powerful story of her own sister's battle with the hair loss disease.…

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Added by Cheryl, Co-founder on September 21, 2016 at 1:00pm — 1 Comment

Another Alopecia World member in the spotlight!

 I love stories of triumph! 

One of our members Caroline, was featured in a photography project "30 days of Gorgeous" by Toma Houston Photography.

                   …

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Added by Cheryl, Co-founder on August 9, 2016 at 12:00pm — 7 Comments

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