Cheryl, Co-founder's Blog (89)

FDA and EMA Accept Regulatory Submission for Pfizer’s Ritlecitinib for Individuals 12 Years and Older with Alopecia Areata

Filings based on clinical data demonstrating significant scalp hair regrowth versus placebo 

NEW YORK--(BUSINESS WIRE)-- …

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Added by Cheryl, Co-founder on September 15, 2022 at 8:00am — No Comments

“Sharing my experience may be a beacon of hope for anyone who is battling any sort of mental or physical battle.”

"For Amon Ogyiri, a twenty-four-year-old fashion designer and entrepreneur, being diagnosed with alopecia areata at the age of twenty-four was an unexpected blow. The New-York based creative, whose fashion line Nomä New York has been…

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Added by Cheryl, Co-founder on September 14, 2022 at 8:00am — No Comments

Five Lessons from the Jada and Will Situation

 *Please note that these points apply to adults, not children.

As I imagined it would be, the Oscar slap heard around the world was news for a few days and then it was on to the next things. But I have been mulling it over for the past few weeks and came up with five life lessons that this situation can teach all of…

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Added by Cheryl, Co-founder on September 12, 2022 at 10:00pm — 2 Comments

Alopecia Areata Universalis Precipitated by SARS-CoV-2 Vaccine

"Knowledge about SARS-CoV-2 vaccine safety and benefits is evolving to support decision-making about use of these vaccines. Although benefits of these vaccines greatly overweight risks associated with acquisition of infection, the benefit-risk balance should be communicated to patients."

A Case Report and Narrative Review…

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Added by Cheryl, Co-founder on September 11, 2022 at 3:00pm — 12 Comments

Struggling with your insurance company to cover your hairpieces and or treatments?

Navigating Prior Authorization and Insurance Appeals for Wigs,…

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Added by Cheryl, Co-founder on September 1, 2022 at 9:00am — No Comments

Your Guide to Microblading, Eyelash Extensions, and More

"Hair loss due to alopecia can be discouraging. It impacts not only your outward appearance, but often your self-esteem as well. While many people who have alopecia feel confident in the visible display of their condition, others may be interested in camouflaging or disguising hair loss."

Click here to read…

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Added by Cheryl, Co-founder on August 31, 2022 at 11:30am — 2 Comments

Are you missing out on life?

A friend of mine, Ann-Margaret Hovsepian, recently included this quote her newsletter from a post I posted on Facebook …

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Added by Cheryl, Co-founder on August 30, 2022 at 10:00am — No Comments

Relationship and Financial Challenges of Alopecia Areata

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Added by Cheryl, Co-founder on August 27, 2022 at 12:00pm — No Comments

Did you know there is an International Alopecia Day?!

If so, did you celebrate it?  How?

International Alopecia Day was originally started with Mary Marshall on Alopecia World and has grown to a worldwide event!

If you participated feel free to share your photo here, and on Instagram tag @alopeciaworld so that we can connect, view and share it on Instagram.…

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Added by Cheryl, Co-founder on August 10, 2022 at 2:30pm — No Comments

NAAF Webinar: Identifying Bullying and Standing Up to It Safely

"IDENTIFYING BULLYING AND STANDING UP TO IT SAFELY"

Thursday, August 25, 2022 - 4:00 PM PDT / 6:00 PM CT / 7:00 PM EDT…
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Added by Cheryl, Co-founder on August 6, 2022 at 9:45am — No Comments

I May Not Love How I Look... But

What if you do not consider yourself as one of the young, seemingly beautiful with or without hair type.

Where do you go from there?

How do still develop a sense of self even if you do not believe that you are beautiful?

A video that really bought that home for me is the one below from one of our members, Rachel Goode entitled:  “I may not love how I…

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Added by Cheryl, Co-founder on June 29, 2022 at 11:00am — 2 Comments

Winning the Emotional Game of Alopecia

Are You Stuck In A Metaphorical Tug Of War?

My mind has been on alopecia and what is the best way for us to live life to the fullest while living with the condition?

I am convinced that this is more an emotional battle than a physical one.

Our struggles seem to have more to do with acceptance, will I find a mate? Will kids at school laugh at me?  How do I tell my new date?  Will my spouse still be attracted to me? 

My thought is, if it was just physical then “slapping on” a new wig would…

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Added by Cheryl, Co-founder on June 26, 2022 at 5:23pm — 10 Comments

FDA Approves New Drug, Olumiant, for Alopecia Areata

I recently came across an article that mentioned a new pill for alopecia. 

"FDA greenlights 1st treatment for sudden hair loss caused by autoimmune disease"

"The drug — part of a class of medicines known as JAK inhibitors — is the first approved treatment for alopecia areata.…
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Added by Cheryl, Co-founder on June 16, 2022 at 6:30pm — 17 Comments

Five Lessons from the Jada and Will Situation

*Please note that these points apply to adults, not children.

As I imagined it would be, the Oscar slap heard around the world was news for a few days and then it was on to the next things. But I have been mulling it over for the past few weeks and came up with five life lessons that this situation can teach all of us. …

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Added by Cheryl, Co-founder on May 1, 2022 at 10:00pm — 4 Comments

I will be on live stream tonight the CBS - Kcbs Kcal Los Angeles

Hi Everyone, 

This is my 2nd interview today talking about the Jada Pinkett/Will Smith/Chris Rock incident.

I will be on CBS News in Los Angeles live at 5:30 PM (PACIFIC TIME) 8:30 PM EASTERN

(Monday, March 28th, 2022)

If you get a chance to tune in that would be…

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Added by Cheryl, Co-founder on March 28, 2022 at 7:30pm — 1 Comment

12-Year Old Rio Allred Dies by Suicide after being bullied about her Alopecia

This is tragic, but I think it is important that we all share this story.  What can we do individually or as a community to help our brothers and sisters?

"Candlelight vigil for 12-year-old North Side Middle School student"

"Nicole Ball claims her daughter was bullied…

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Added by Cheryl, Co-founder on March 22, 2022 at 5:00pm — 7 Comments

12 Celebrities Who Have Spoken Openly About Hair Loss

"Losing your hair can be pretty devastating, and if it's an experience that you know all too well, you’re not alone. Hairloss is more common than you think, and it doesn’t discriminate or target specific people"

"Even some of the celebrities you know and love have experienced it, and thankfully for…

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Added by Cheryl, Co-founder on March 17, 2022 at 9:42pm — 1 Comment

In Memory of Vicki Kalabokes

Victoria (Vicki) Kalabokes, former President & CEO of the National Alopecia Areata Foundation (NAAF), died on Saturday, January 22, 2022, in San Rafael, California.

If you have been to a National Alopecia Areata Conference you know who Vicki is and all that she has done for the Alopecian…

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Added by Cheryl, Co-founder on January 25, 2022 at 4:30pm — 1 Comment

My bald head is my victory dance. And you?

Things have changed so much for me that most of the time I forget I even have alopecia. But I can assure you it has not always been that way.

I lost my hair 30 years ago. I have now lived my life more without my hair than with it. But at the same time, I clearly remember leaving the dermatologist's office and him telling me that I have alopecia and I…

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Added by Cheryl, Co-founder on September 3, 2021 at 12:30pm — 1 Comment

STUDY: Identification of stigmatization and psychosocial stress in people with Alopecia areata or androgenetic Alopecia

                                                               ------------------------------------

Participate in a study to understand well-being and experiences of stigma among adults dealing with hair loss.  This is an anonymous,…

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Added by Cheryl, Co-founder on May 24, 2021 at 10:41pm — No Comments

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