Cheryl, Co-founder's Blog (115)

Webinar: Men & Alopecia Areata: Our unique experiences

Webinar - Virtual Event
Organizer:  NAAF



Wednesday, November 15

4:00 PM, PST

7:00 PM, EST…

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Added by Cheryl, Co-founder on November 13, 2023 at 2:28am — 2 Comments

Your Personal Path to Embracing Self-Acceptance

When I was first diagnosed alopecia, the idea of self-acceptance felt like an impossible mountain to climb. There were no quick fixes or easy solutions. I didn't wake up one morning, glance at my bald reflection, and suddenly embrace it with unwavering courage. It took me years of struggling with my insecurities, facing my fears head-on, and gradually…

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Added by Cheryl, Co-founder on October 25, 2023 at 1:14am — 2 Comments

Embracing Empowerment: Sharing Your Alopecia Journey

Living with alopecia presents a unique set of challenges. The emotional turmoil, the physical changes, and the constant search for acceptance can challenging. However, I believe that every individual's experience is a testament to strength and resilience. By sharing your personal alopecia story, you have the power to inspire and support others who may be…

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Added by Cheryl, Co-founder on October 16, 2023 at 3:00am — 1 Comment

Embracing the Journey and the Challenge Ahead

The "Call to Adventure" in the world of alopecia is undeniably daunting, but it is also a call to self-discovery, resilience, and personal growth. It's a journey that no one chooses, but it can be transformed into a path of empowerment and acceptance. As you navigate the challenges, emotions, and uncertainties that come with living with alopecia, I leave you…

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Added by Cheryl, Co-founder on October 3, 2023 at 6:42pm — 1 Comment

Week 3 - Alopecia Awareness Month - 30 Days, 30 Facts: Spreading Alopecia Awareness

30 Days, 30 Facts: A Social Media Initiative

One innovative way to participate in Alopecia Awareness Month is by joining the "30 Days, 30 Facts" campaign. This initiative involves sharing graphics that feature a different alopecia-related fact each day of the month. 

Alopecia Awareness Month is an annual campaign that takes place in September, dedicated to raising awareness about alopecia, a condition that affects millions of people worldwide.…

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Added by Cheryl, Co-founder on September 15, 2023 at 11:00am — No Comments

Eve Betts, Alopecian and Former Reality TV Star, faces online abuse

Alopecian, Eve Betts, a reality TV contestant from the show First Dates from 2007 says she receives abuse and sexually explicit material over social media.

Eve shared, "I get a lot of death threats. People saying that I should just die because of the way that I look." Her decision to remove her wig on camera during the show made her a…

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Added by Cheryl, Co-founder on September 8, 2023 at 8:00pm — No Comments

Week 2 - Alopecia Awareness Month - 30 Days, 30 Facts: Spreading Alopecia Awareness

30 Days, 30 Facts: A Social Media Initiative

One innovative way to participate in Alopecia Awareness Month is by joining the "30 Days, 30 Facts" campaign. This initiative involves sharing graphics that feature a different alopecia-related fact each day of the month. Here's why this campaign is so impactful:

Alopecia Awareness Month is an annual campaign that takes place in September, dedicated to raising awareness about alopecia, a…

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Added by Cheryl, Co-founder on September 8, 2023 at 4:05pm — No Comments

Truthfulness and Alopecia: Confronting the Fear of Feeling Ugly

Do you ever struggle with feeling unattractive due to alopecia? How has it affected your self-image and how do you deal with those emotions?

Living with alopecia, a condition characterized by hair loss, can challenge our self-esteem and self-image in profound ways. It's okay to acknowledge the feelings of vulnerability and…

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Added by Cheryl, Co-founder on September 4, 2023 at 3:17pm — 1 Comment

September is Alopecia Awareness Month - 30 Days, 30 Facts: Spreading Alopecia Awareness

30 Days, 30 Facts: A Social Media Initiative

One innovative way to participate in Alopecia Awareness Month is by joining the "30 Days, 30 Facts" campaign. This initiative involves sharing graphics that feature a different alopecia-related fact each day of the month. Here's why this campaign is so impactful:

Alopecia Awareness Month is an annual campaign that takes place in September, dedicated to raising awareness…

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Added by Cheryl, Co-founder on August 31, 2023 at 12:30pm — 1 Comment

WALK FOR ALOPECIA™ - NAAF Awareness Event - Ways to join in!

Source:  www.naaf.org



"Imagine waking up to clumps of hair on your pillow.



Or turning off the shower only to find a pile of your hair on the drain.



And that you have numerous bald spots on your head that are so big they can no longer be hidden.

Millions of…

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Added by Cheryl, Co-founder on August 31, 2023 at 10:30am — No Comments

Is This Video About Bald Women: Beautiful or Offensive? Share Your Thoughts!

Let's have a discussion AlopeciaWorld.com. Do you find the contents and lyrics to this video about bald women beautiful or offensive.

*All perspectives are welcome on Alopecia World, but please try to be respectful.

Added by Cheryl, Co-founder on August 12, 2023 at 10:30am — 1 Comment

10 Clever Comebacks: Handling Offensive Bald Comments

Dealing with offensive comments can be challenging, but responding with humor and grace can often diffuse the situation. Here are 10 comebacks to offensive bald comments:

1. "Bald and bold – a combo that obviously intimidates some."

2. "I'm too busy living life to worry about my hair. How about you?"

3. "Being bald…

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Added by Cheryl, Co-founder on August 11, 2023 at 11:30am — 3 Comments

International Alopecia Day - August 5th, 2023 - How to Participate!

People all around the world will be having parties, celebrations and awareness events. You’ll see IAD selfies popping up all day on social media.

YOU can be part of the annual International Alopecia Day YouTube slide show!

HOW YOU CAN BE IN THE 2023 IAD VIDEO:

1. Take your photos ON International Alopecia Day, August 5. This is meant to be a snapshot of Alopecians around the world on this ONE day.

2. Please don’t send in professional “studio”…

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Added by Cheryl, Co-founder on July 23, 2023 at 2:00pm — No Comments

Breaking News: US FDA approves another hair loss drug by Pfizer this time

Recent Stories from ABCNews.com"

"The U.S. Food and Drug Administration on Friday approved an alopecia treatment for kids..

The drug, ritlecitinib, is a once-daily pill for kids ages 12 and older with severe alopecia areata, a disease that develops when the body attacks the hair follicles,…

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Added by Cheryl, Co-founder on June 27, 2023 at 10:30am — No Comments

"Leah Hayes wants to bring alopecia awareness to the Olympics"

Photo credit:  Grace Hollars-USA TODAY Sports

Leah Hayes, a high school senior and competitive swimmer, has set her sights on making it to the 2024 Olympics in Paris. However, her goal goes beyond competing; she also wants to raise awareness about alopecia, an autoimmune…

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Added by Cheryl, Co-founder on June 15, 2023 at 9:35am — No Comments

Clinical Trial Opportunity

A clinical research study is looking for adults (18+) diagnosed with alopecia areata with 50% or more scalp hair loss. This study is investigating an oral (taken by mouth) study drug called farudodstat. The main purpose of the study is to see whether farudodstat, when taken twice a day for 12 weeks, can help people with alopecia areata grow hair and to find out…

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Added by Cheryl, Co-founder on June 5, 2023 at 7:31pm — No Comments

An Open-Label Subpopulation Study to Evaluate Efficacy and Safety of Baricitinib in Participants that Identify as Black or African American

CLINICAL TRIAL:

An ongoing clinical research study is currently recruiting Black and African American patients with alopecia areata for a study that evaluates the safety and effectiveness of an oral  drug. Would you like to know more about this study? This study…

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Added by Cheryl, Co-founder on June 5, 2023 at 7:30pm — 1 Comment

Do we need heroes like Jada Pinkett Smith?

It's true, sometimes it's comforting to know that someone famous is going through the same thing you are, like Jada Pinkett Smith and Ayanna Pressley, both of whom have opened up about their struggles with alopecia. It's reassuring to know that you're not alone. However, it's important to remember that these celebrities are just people, like you and me. They…

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Added by Cheryl, Co-founder on March 25, 2023 at 11:00pm — 3 Comments

The Power of AlopeciaWorld.com: Finding Strength and Encouragement in Like-Minded Connections

Hey there, fellow members of Alopecia World. Today, let's talk about the importance of our community and what it means to us.

 

Living with alopecia can be incredibly isolating and challenging. But by joining Alopecia World, we have found a place where we can share our experiences, struggles, and victories with others who truly…

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Added by Cheryl, Co-founder on March 12, 2023 at 4:30pm — 3 Comments

Olaplex hair products sued for allegedly causing hair loss and bald spots

According to an article on CNN.com:

"Olaplex, a beauty brand favored by TikTok and Instagram influencers, sells hair products that dozens of customers allege caused “serious injury,” according to a lawsuit filed last week. Olaplex denies the claims, saying independent test results prove the allegations to be false."

'Nearly 30 women joined together to file a lawsuit against Olaplex on February 9, specifically targeting its No. 0 to No. 9 products. They allege the products…

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Added by Cheryl, Co-founder on February 21, 2023 at 8:30pm — 2 Comments

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