Alopecia World
www.alopeciaworld.com
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Cheryl, Co-founder
- Female
- Detroit, MI
- United States
- Blog Posts (86)
- Discussions (361)
- Events
- Groups (39)
- Photos (384)
- Photo Albums (19)
- Videos (54)
Cheryl, Co-founder's Groups
Cheryl, Co-founder's Discussions
Teen With Alopecia Had Her Mom Paint Her Bald Head For Her Senior Photo Shoot
Started this discussion. Last reply by diana Mar 20, 2020. 25 Replies 19 Likes
5 Things to Say to Someone with Alopecia
Started this discussion. Last reply by aa123 Mar 19, 2019. 2 Replies 2 Likes
The 'Third Date Rule' by Debbi Fuller
Started this discussion. Last reply by ree221 Mar 22, 2019. 53 Replies 25 Likes
Official Blog
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Our Video submission for National Bald Out Day 2009!
Cheryl, Co-founder's Videos
Gifts Received (15)
Cheryl, Co-founder of Alopecia World
Profile Information
- Relationship Status:
- Married
- About Me:
- I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.
It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).
Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).
On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.
I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.
In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.
Please feel free to "friend" rj and me: We would love to make your acquaintance.
Welcome to our world… AlopeciaWorld.com!
Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
"It's Hair Loss Support At Its Best"
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- Alopecia areata
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- Yes - I am 18 or older
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Cheryl, Co-founder's Photos
Cheryl, Co-founder's Blog
My Bald Head Is My Victory Dance And You?
Posted on September 3, 2021 at 12:47pm 0 Comments 0 Likes
“Alopecia areata is a common autoimmune skin disease, causing hair loss on the scalp, face, and sometimes on other areas of the body. In fact, it affects as many as 6.8 million people in the U.S. with a lifetime risk of 2.1%.”
Things have changed so much for me that most of the time I forget I even have alopecia. But I…
STUDY: Identification of stigmatization and psychosocial stress in people with Alopecia areata or androgenetic Alopecia
Posted on May 24, 2021 at 10:41pm 0 Comments 0 Likes
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Participate in a study to understand well-being and experiences of stigma among adults dealing with hair loss. This is an anonymous,…
Continue"Change is hard at first, messy in the middle, and gorgeous at the end"
Posted on May 24, 2021 at 9:31pm 0 Comments 0 Likes
Did you know that we are not only the owner of AlopeciaWorld.com, but we are also photographers?
I met Michelle online and immediately connected with her. This session started as a boudoir shoot and ended as a self-journey. It was very touching and real as the photographs reveal a story of entering into self-acceptance.
Michelle wrote:
"Change is hard at first, messy in the middle, and gorgeous at the end. Four years…
ContinueREGISTER TODAY - Adulting 101 with Alopecia Webinar
Posted on January 15, 2021 at 1:30am 2 Comments 1 Like
Join me and a group of incredible women with alopecia in a Let's Talk webinar!
Adulting can be described as learning to navigate grown-up things and have responsibilities, such as finding full-time employment, paying bills, dating, and relationships, and more. Adulting can be filled with many ups and downs, let alone navigating it with alopecia.
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I would like to e-mail you my song 'Bald and Beautiful'. I write songs about bald pride.
Awesome Blog! Glad I found it and you are beautiful and encouraging.
I've been seeing a a dermatologist who is a specialist on alopecia at University of Colorado Health. He has had me on Methotrexate for 2.5 years and I have 75% of my scalp hair, eyebrows and eyelashes back. This drug has made a huge difference for me. Though there are side affects, I have felt that they are worth the risk.
Thanks, Cheryl, for uploading the animation, 'It's only Hair.' It is great to see what an active and supportive website you have developed.
Best wishes, Emma
Thank you Cheryl,
I would like to let the members know of something I have found useful in only the last several months. I have alopecia ophiasis (and have had occasionally nails come off) and was told from the beginning that it was unlikely to show improvement. For some 8 or so years, I went to various dermatologists in NYC hospitals. I had monthly steriod injections. Also for a short time, squaric acid to use at home. Finally after having been with one dematologist (having injections) she suggested Rogaine 5% and Fluocinonide 0.05%. I don't know whether to be pleased or angry that this was not mentioned years ago. Why? I have some hair regrowth in places that were completely bare. Also around the hairline I see some regrowth (mixture of dark and white, neither of which I am, but never mind). I can use the stronger Rogaine having had a hysterectomy some years ago. Being very fair I was not a candidate for laser treatment. Who knows if I had been given this much earlier whether the hair loss would have been far less. She has moved away so I cannot ask her but wanted to give this information to others in case it may be helpful to them. I use one in the morning and the other at night. It does make the hair look a bit dull - but that is a minimal problem. It is also cheaper than monthly injections. It would be wonderful if this could help others.
Paula
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