"After going hair-free for several years, I decided to put on the store-bought hair again because I got tired of all the attention. It seemed as if I was wearing a sign that read, "Please do come up and comment on my hair-free appearance."…"
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Lucky to have Alopecia and not cancer ??
Started this discussion. Last reply by Solange De Santis Mar 21, 2023. 12 Replies 4 Likes
I’ve had some type of alopecia for at least 30 years. I have heard so many comments from people. There is one that I just can’t wrap my head around , people telling me how lucky I am to have…Continue
Myrtle Beach, SC / Wilmington, NC
Started this discussion. Last reply by Laura Mar 21, 2023. 1 Reply 0 Likes
Anyone from Myrtle Beach, SC / Wilmington, NC areas? Wanted to see if I could get involved in a local support group. Thanks.Continue
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"Anyone from Myrtle Beach, SC / Wilmington, NC areas? Wanted to see if I could get involved in a local support group. Thanks.
its been years since i posted this and i never had a reply . Ive heard im not alone from health care professionals…"
"I get how you feel. I have had people approach me and cry asking me what kind of cancer I have. I get it and I certainly understand why someone would say it is better than cancer but not having hair is very traumatic and it is very hard…"
"Yep, they continue to go on with their cancer story even after I say I don't have cancer. However, today I had a pleasant exchange with a neighbor on my floor. First of all, I've known her for 14 years, so she wasn't a random…"
"I don't believe that I, or anyone else with alopecia is lucky to have alopecia, not cancer. In 2004 I presented with Alopecia Aerata, followed by a diagnosis of Chronic (stage four) Cardiomyopathy in 2005. Cancer can, i some instances, be…"
"So true, Tracie. Frankly, I am tired of looking in the mirror and seeing a stranger or, I should say, a blank. I accept the way I look and go about living my life as best I can. But I will never ever pretend that my AU is no big…"
"I don't think "poor me" either, Poppy. But I also do not minimize my sadness at having AU either. I am glad you are able to be so glib about your hair loss because most of us are not. I have said many many times,…"
"I think people who make that remark are quite thoughtless, actually. Diseases, whether they be life-threatening (either to quantity of life or quality of life) are NOT a contest and should not be treated as such. Of course, I am grateful…"
"My son who has alopecia universalis once told me he's grateful to have alopecia and not cancer. I asked how he would feel if someone were say something like this to him. He said there's plenty if things that trigger him, but…"
"I find that 90% of people that ask me about my hair loss ask me if I am having cancer treatment, when I say no I have Alopecia they continue to talk about their cancer, a little annoying as I didn’t ask them and they are not interested in my…"
"I have not once thought poor me, it’s a state of mind, this “disease” saves me hours messing about trying to get my hair right every day, my hair is now perfect even day, it sits waiting for me to get up, I’m out the door…"
"This one makes me crazy. I've had AU for 25 years. No one should compare one disease to another and we should not be made to feel guilty for having a form of baldness that is not connected to a life-threatening condition. We have a right to our…"
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- Relationship Status:
- Married
- About Me:
- Alopecia totalis
- Do you have alopecia?
- Alopecia totalis
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (2 comments)
- At 6:44pm on November 7, 2013,
LeslieAnn Butler said…
Hello and welcome!
How are you today?
Leslie Ann
- At 9:29pm on August 11, 2013,
Rob said…
I joined this site to tell everybody how I cured my AA. I am not here as a psychological support group person. I cured it. It took a lot of research and thinking outside the box. Look at the bottom of my home page by clicking on my avatar picture and look below my profile. Iodine(best in the form of kelp at 100% or slightly more but not too much and biotin and I went from nearly bald for a year to hair everywhere in just a few weeks. I have helped two other people with patchy bald spots to recover.
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