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  • Brooklyn, NY
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by darius Feb 3. 471 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7, 2019. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by sampeckard Jul 8, 2021. 92 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

BA9186 replied to NicoleT's discussion Xeljanz from India
"Hi Alex, Did you do the video consultation via Zoomdoc or were you able to just request a medical letter?  I will need to use this method as well and just curious what steps you took. Thanks"
Starshine replied to NicoleT's discussion Xeljanz from India
"Thanks, Nicole.  I would like to try Baricitinib too, but I am scared it won't  work as well.  Let us know if you switch, and I will as well."
Mar 10
NicoleT replied to NicoleT's discussion Xeljanz from India
"Hey Guys This thread is super informative and fascinating. I do see in journals  that Tofa has some links with increased risk for skin cancer. argh. I have been on tofa for exactly 5 years now. My side effects, same as you report are hi…"
Mar 10
Starshine replied to NicoleT's discussion Xeljanz from India
"Thank you!  I think you are correct in that it depends on the person.  I have also been battling high cholesterol since Xeljanz.  Perhaps, I will give Baricitinib a go.  I really appreciate your reply."
Mar 10
Fingers_Crossed replied to NicoleT's discussion Xeljanz from India
"Hi Starshine, I’m sorry to hear you are dealing with this diagnosis and I hope you make a full recovery. I was on xeljanz for approx 2 years with little growth and then switched to baricitinib. I have much more growth with baricitinib than I…"
Mar 10
Starshine replied to NicoleT's discussion Xeljanz from India
"Hi Football Fan, I know, at first I questioned it too, but it does seem strange that I got skin cancer in the winter suddenly out of the blue.  I have never had skin cancer before anywhere.  Also, this is my dermatologist who prescribed…"
Mar 10
Rajeev Gupta replied to NicoleT's discussion Xeljanz from India
"Thanks Alex for your quick response and helpful information, I am going to make this change and will be good for now. Thanks once again."
Mar 8
Alex J replied to NicoleT's discussion Xeljanz from India
"Hi, the account details are correct, however I use Beacons company address rather than the HK bank address. Please see attached picture. "
Mar 8
Rajeev Gupta replied to NicoleT's discussion Xeljanz from India
"Hello Alex, thanks for your response and helping me with the guided steps. I followed the steps and completed adding the Beacon as a new recipient. Please have a look at the attached snapshot and kindly help by glancing at it, if I have done it…"
Mar 8
SabineTawni replied to NicoleT's discussion Xeljanz from India
"My question exactly.  Doctors, bless their hearts, often think they more than they do.  The fact is I seriously doubt that Starshine's doctor knows exactly what caused her cancer.  Is it true that baracitinib is less effective…"
Mar 8
Alex J replied to NicoleT's discussion Xeljanz from India
"Hi Rajeev, Apologies for the late reply. Firstly, add Beacon as a new contact by going to Transfer > + New > Bank recipient > Business > Hong Kong > USD and add Beacon bank details. Once the contact is created it will appear as an…"
Mar 8
Football fan replied to NicoleT's discussion Xeljanz from India
"Hi Starshine Not a Doctor but how does he know the cancer is from taking xeljanz?Before I started xeljanz I had a bad case of diverticulitis.Reading the side effects of x that was a possible side effect thought for sure I would get it again but took…"
Mar 8
Starshine replied to NicoleT's discussion Xeljanz from India
"Thank you.  I am getting treated and expect a full recovery, but it is on my nose and I may need reconstructive surgery when it is over.   I am on the 5 ng dose twice daily.  I have reduced to every other day until I am…"
Mar 8
kevin replied to NicoleT's discussion Xeljanz from India
"Types de traductions Traduction de texte LANGUE DÉTECTÉE : FRANÇAIS ANGLAIS Texte source bonjour starshine , vous étiez a quelle dose ? j'ai utilisé le baricitinib je pense qu'il est moins dangereux mais…"
Mar 7
Starshine replied to NicoleT's discussion Xeljanz from India
"Does anyone know if  Baracitinib is safer than Xeljanz?  I was just diagnosed with aggressive skin cancer after being on Xeljanz for 7 years.  My doctor has suggested switching for safety reasons, but I really don't  think…"
Mar 6
Rajeev Gupta replied to NicoleT's discussion Xeljanz from India
"Hello Alex, I hope you are doing well. I set up the Revolut account and through the app transfer section, I was trying to do send international, then selected the destination country as HongKong, after which I noticed that if I am putting the amount…"
Mar 5

Profile Information

Relationship Status:
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (17 comments)

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At 4:49pm on November 3, 2022, Ben said…


I'm having problems ordering from beacon to Europe. Normally I just placed an order with Abdullah Manun but for some reason he will not respond. How is everyone else placing orders.



At 11:58am on October 4, 2022, Tatiana said…

Hi EveryoneI

I have about 15 packs of Tofacinix left from Beacon. I decided to stop taking it. Please let me know if anyone is interested to purchase it. I live in Brooklyn, NY, USA

At 1:34am on April 29, 2022, MARIA gave NicoleT a gift
At 2:52pm on September 22, 2021, Sara Noside said…

Hi Nicole,

I finally got my generic Xeljanz from Beacon. Mouree was great, super professional and the ordering process was really no hassle at all after I got in contact with him. I’ve made an appointment with my PCP- but I do not know yet if they will test the meds. I called a few compounding pharmacies and the cost was outrageous— $1500, requiring 5 pills to be sent in.

is there an alternative? I don’t want to shell out more money than I have to but know the testing is necessary before I start the process. Any guidance/advice would be much appreciated.

All the love and gratitude!!


At 11:59pm on October 5, 2020, Apple said…

I have been so thankful fir prescription Hope which has been able to get xeljanz for me at no cost. This program in based in USA if anyone wants to contact them for help it’s amazing. It is really evaluated yearly and you will have time where you don’t have the medication right away that’s why I needed other sources to obtain the only medical treatment that works for alopecia.

At 11:51pm on October 5, 2020, Apple said…

I am also concerned about reparation date. I have medication that will expire by 10/2021. Trying to juggle meds expiring to take first. 

At 11:50pm on October 5, 2020, Apple said…

I bought 1 year supply from beacon it took about a month or longer to arrive. Doc pharma it was 3 month supply arrived quickly and when one shipment was running late they contacted customs it arrived in 24 hours to my front door.

At 11:28pm on October 5, 2020, Apple said…

The company was DOC Parma delivered to my door within 14 days $500. For one month supply.

At 11:18pm on October 5, 2020, Apple said…

I hear that generic xeljanz will be available in USA soon. Has anyone had any news on this? I had my medication from beacon com by deliver right to my home, but it did take time to arrive. I ordered from another company from India and RCVD it promptly but costly.

At 6:45pm on July 7, 2020, Justyna said…

Does anyone there is in touch with dr. Filamer Kabigting from Hudson Dermatology? 
I’m out of country patient and I’m trying to reach him for online consultation.



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