NicoleT
  • Female
  • Brooklyn, NY
  • United States
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by Sami Oct 27. 470 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7, 2019. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by sampeckard Jul 8, 2021. 92 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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NicoleT's Page

Latest Activity

Nick replied to NicoleT's discussion Xeljanz from India
"Hello Everyone! Just curious which courier service people from the UK use when ordering from beacon? Have you encountered any issues with customs? And what the size of your orders are?  I thought I made and error and was nervous about using…"
Nov 7
Ben left a comment for NicoleT
"Hi, I'm having problems ordering from beacon to Europe. Normally I just placed an order with Abdullah Manun but for some reason he will not respond. How is everyone else placing orders. Thanks Ben"
Nov 3
Sami replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey, I’m based in the uk too, would appreciate knowing how you dealt with your gp? I saw a dermatologist and he said he would not monitor me due to the risks of tofa. Haven’t tried with the gp yet. Good news is derm said ritlicitinib…"
Oct 27
Sami replied to NicoleT's discussion Xeljanz from India
"Hey, just saw everyone’s messages.  @nick I just accepted your friend request. I can still send you the tofa if needed."
Oct 27
ivylillian replied to NicoleT's discussion Xeljanz from India
"oh good!  Glad you got in touch with someone- with the time difference and I think they are closed Thursday thru Monday- it's not the fastest response time- that's for sure!  Hope you get it quickly! "
Oct 25
Nick replied to NicoleT's discussion Xeljanz from India
"Thanks. The rep that I was 'communicating' with was Shamiul. I wrote a message to Mouree explaining the situation and suddenly it's sorted and been shipped..... Ha! :) "
Oct 25
ivylillian replied to NicoleT's discussion Xeljanz from India
"Mouree is the rep I have been in contact with and the rep I dealt with last time too. Maybe it was just the right timing and day and that’s why it felt like it was quick. I am hearing from several people on the jak inhibitors for alopecia…"
Oct 24
NicoleT replied to NicoleT's discussion Xeljanz from India
"Hey Ivy Message me again i think it got deleted PS guys when yo9u go off the meds cold turkey like that, you wont start seeing the spots for about 2-3 months time"
Oct 24
NicoleT and ivylillian are now friends
Oct 24
Nick replied to NicoleT's discussion Xeljanz from India
"Hey Ivy! Just wondering which rep you are dealing with at beacon?"
Oct 24
ivylillian replied to NicoleT's discussion Xeljanz from India
"I just received tracking information for my meds from Beacon and they are now at customs at JFK, so hopefully they won't stay there too long and I get them soon.  I am pretty pleased with Beacon's response time this time around. …"
Oct 24
ivylillian replied to NicoleT's discussion Xeljanz from India
"Awesome!  I sent you a message with a friend request. I really appreciate this and look forward to hearing from ya!"
Oct 24
NicoleT replied to NicoleT's discussion Xeljanz from India
"Hi Ivy I can cover you no problem just message me!"
Oct 24
NicoleT replied to NicoleT's discussion Xeljanz from India
"HI Sami and @Nick! Sami do you want to ship to Nick since you are in UK? I was gonna ship to them from US but might be easier for you since you are in UK? Either way, let me know so we can make sure Nick is covered thanks!"
Oct 24
ivylillian replied to NicoleT's discussion Xeljanz from India
"I am definitely interested if still available! Waiting on mine to arrive from beacon and having a major flare. I am in  US"
Oct 23
ivylillian replied to NicoleT's discussion Xeljanz from India
"Hey guys! I am in a bind- ordered from Beacon and my todacinix shipped October 21, however I have run out of it completely and of course am now having a major flare up! I keep finding new spots daily. Does anyone have any they would be willing to…"
Oct 23

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (17 comments)

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At 4:49pm on November 3, 2022, Ben said…

Hi,

I'm having problems ordering from beacon to Europe. Normally I just placed an order with Abdullah Manun but for some reason he will not respond. How is everyone else placing orders.

Thanks

Ben

At 11:58am on October 4, 2022, Tatiana said…

Hi EveryoneI

I have about 15 packs of Tofacinix left from Beacon. I decided to stop taking it. Please let me know if anyone is interested to purchase it. I live in Brooklyn, NY, USA

At 1:34am on April 29, 2022, MARIA gave NicoleT a gift
Gift
thank you Nicole
At 2:52pm on September 22, 2021, Sara Noside said…

Hi Nicole,

I finally got my generic Xeljanz from Beacon. Mouree was great, super professional and the ordering process was really no hassle at all after I got in contact with him. I’ve made an appointment with my PCP- but I do not know yet if they will test the meds. I called a few compounding pharmacies and the cost was outrageous— $1500, requiring 5 pills to be sent in.

is there an alternative? I don’t want to shell out more money than I have to but know the testing is necessary before I start the process. Any guidance/advice would be much appreciated.

All the love and gratitude!!

-Sara

At 11:59pm on October 5, 2020, Apple said…

I have been so thankful fir prescription Hope which has been able to get xeljanz for me at no cost. This program in based in USA if anyone wants to contact them for help it’s amazing. It is really evaluated yearly and you will have time where you don’t have the medication right away that’s why I needed other sources to obtain the only medical treatment that works for alopecia.

At 11:51pm on October 5, 2020, Apple said…

I am also concerned about reparation date. I have medication that will expire by 10/2021. Trying to juggle meds expiring to take first. 

At 11:50pm on October 5, 2020, Apple said…

I bought 1 year supply from beacon it took about a month or longer to arrive. Doc pharma it was 3 month supply arrived quickly and when one shipment was running late they contacted customs it arrived in 24 hours to my front door.

At 11:28pm on October 5, 2020, Apple said…

The company was DOC Parma delivered to my door within 14 days $500. For one month supply.

At 11:18pm on October 5, 2020, Apple said…

I hear that generic xeljanz will be available in USA soon. Has anyone had any news on this? I had my medication from beacon com by deliver right to my home, but it did take time to arrive. I ordered from another company from India and RCVD it promptly but costly.

At 6:45pm on July 7, 2020, Justyna said…

Does anyone there is in touch with dr. Filamer Kabigting from Hudson Dermatology? 
I’m out of country patient and I’m trying to reach him for online consultation.

 
 
 

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