Ben
  • Male
  • Co.Donegal
  • Ireland
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Ben's Friends

  • hgpb
  • Merrick
  • hellopeesha
  • NicoleT
  • Frida Rupert
  • Livia18
  • pterese
  • Steve
  • bibby
  • Villa fan
  • Karen Smith

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Latest Activity

Ben replied to NicoleT's discussion Xeljanz from India
"Brilliant thanks "
Jun 8, 2023
Ben replied to NicoleT's discussion Xeljanz from India
"Yes, tried to place an order yesterday and was told they have a problem with the bank for the last two weeks and wait a while. I'm very low on tablets, I wonder are there other companies that do generic drugs Ben"
Jun 8, 2023
Ben replied to NicoleT's discussion Xeljanz from India
"Hi Paul, My son took in 6 months supply in January to Perth, no problems at all"
Jun 8, 2023
Ben left a comment for NicoleT
"Hi, I'm having problems ordering from beacon to Europe. Normally I just placed an order with Abdullah Manun but for some reason he will not respond. How is everyone else placing orders. Thanks Ben"
Nov 3, 2022
Ben replied to Nick's discussion Anyone from UK on Tofacitinib Citrate?
"Don't give up on the dermatologist, when the USA passed Baricitinib as an alopecia treatment, our dermatologist in Dublin percribed Baricitinib. I knew it's not the same country but it's coming. Are you still low on tablets? Ben"
Oct 30, 2022
Ben and Daire are now friends
Jul 1, 2021
Ben replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi All, I hope Nicole won't mind me asking for advice on her discussion page, but I'm at a loss what to do and not very good at these forum's. My son is AU and he was treated for 4 years by a dermatologist who had him on cyclosporin,…"
Nov 19, 2020
Ben and hgpb are now friends
Jun 15, 2020
Ben replied to NicoleT's discussion Xeljanz from India
"Hi my contact with Beacon, wanted me to inform anyone in group from UK that EMS will start services to the UK on Sunday 7th. So hopefully that will work out for us all"
Jun 3, 2020
Ben replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole, My niece is a consultant for disease and infection control, in a Dublin hospital, Ireland and she's telling me tofacttanib is considered  experinental and only used around the 8th day for server covid infection, it might cut…"
Apr 18, 2020
Ben replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thanks Nicole, Stay safe, Ben"
Mar 16, 2020
Ben replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole,  Was just wondering if anybodys  doctors  have taken them off the jak inhibitors, as both my boys where taken off their imune suppressants due to the covid 19 or cronavirus. one is devastated we don't know what to…"
Mar 16, 2020
Ben commented on Livia18's photo
Thumbnail

after two years treatment with Xeljanz, my first relapse

"Hi Livia, so sorry you have a spot come, were you trying to reduce your dosage or anything like that? Ben"
Dec 29, 2019
Ben replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Ryan,  We're are you based ? Ben"
Sep 7, 2019
Ben replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Brilliant Nicole, thanks for keeping us up to date "
Aug 26, 2019
Ben replied to NicoleT's discussion Xeljanz from India
"Hi, I live in the south of Ireland, but but the tofacinix through Northern Ireland (part of the UK). Our doctor is my sister, I tried a lot of doctors with no luck, she lives in another part of the country, so not ideal, but had no choice for my…"
Jul 5, 2019

Profile Information

Relationship Status:
Married
About Me:
I have three children,all with various types of alopeica. I can't find a doctor who will help,
Do you have alopecia?
I do not have alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

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At 7:46am on May 7, 2019, Villa fan said…

Hi,

I live in Northern Ireland also and have been undertaking treatment with Xeljanz successfully for the last three and a half years. I have visited with Dr Brett King several times and my GP does my bloods

 
 
 

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