My first bout with Alopecia was about 8 months after the death of my father. I just turned 10 years old. We were still living in the old country, and I was treated with novocaine injections under my scalp in the area affected. Within 6 weeks, this new hair resembling a rough brush was growing like crazy.
Fast forward to 1972. In 1970 we came to the States with our mother, an American citizen. It was tough not knowing the language, not having the many friends we left behind, trying to…Continue
Added by Cheryl, Co-founder on August 27, 2022 at 12:00pm — No Comments
ABOUT: Joli Caméléon™ designs, manufactures & markets the industry's finest collection of luxury European & multi-ethnic natural hair creations. We offer the selection and value to meet the needs of most women & children with hair loss & alopecia. And the educational content creation, product inventory and marketing support to service our growing network of independent professional hair studios worldwide. We live by our mantra: Whatever…Continue
Added by Michael Leigh on August 26, 2022 at 1:00pm — No Comments
Hi. Are you based in Charlotte, NC? Joli Caméléon is looking for 1-3 Models with Alopecia Totalis or Universalis, or Areata with very little current hair growth, for an industry event in Charlotte, Sat 10 - Mon 12 September. You would be modeling our Joli Dancer specialty cranial prostheses, for amateur and professional female athletes, (and yoga enthusiasts, spinners, zumba zombies and mad dancers :-) as well as other hair creations for active women. If not available all 3 days, we may…Continue
If so, did you celebrate it? How?
International Alopecia Day was originally started with Mary Marshall on Alopecia World and has grown to a worldwide event!
If you participated feel free to share your photo here, and on Instagram tag @alopeciaworld so that we can connect, view and share it on Instagram.…Continue
Added by Cheryl, Co-founder on August 10, 2022 at 2:30pm — No Comments
Added by Cheryl, Co-founder on August 6, 2022 at 9:45am — No Comments
I was at Hobby Lobby a couple months ago when a woman came up to me and asked how my chemo treatments were going. I was wearing a ball cap. When I looked at her, I saw that she was wearing a bandana and must have been going through chemo herself.
When I explained that I suffered from Alopecia Universalis, she looked me dead in the eye and said, "Oh, you're one of them," and walked away.
Now, I have been mistaken for having cancer and going through chemo many times, but it has…Continue
What if you do not consider yourself as one of the young, seemingly beautiful with or without hair type.
Where do you go from there?
How do still develop a sense of self even if you do not believe that you are beautiful?
A video that really bought that home for me is the one below from one of our members, Rachel Goode entitled: “I may not love how I…Continue
My mind has been on alopecia and what is the best way for us to live life to the fullest while living with the condition?
I am convinced that this is more an emotional battle than a physical one.
Our struggles seem to have more to do with acceptance, will I find a mate? Will kids at school laugh at me? How do I tell my new date? Will my spouse still be attracted to me?
My thought is, if it was just physical then “slapping on” a new wig would…Continue
What type of eyebrow pencil works good? I have frontal Fibrosing Alopecia.
Added by Mary Ann on June 21, 2022 at 5:18pm — No Comments
I recently came across an article that mentioned a new pill for alopecia.
*Please note that these points apply to adults, not children.
As I imagined it would be, the Oscar slap heard around the world was news for a few days and then it was on to the next things. But I have been mulling it over for the past few weeks and came up with five life lessons that this situation can teach all of us. …Continue
This is my 2nd interview today talking about the Jada Pinkett/Will Smith/Chris Rock incident.
I will be on CBS News in Los Angeles live at 5:30 PM (PACIFIC TIME) 8:30 PM EASTERN
(Monday, March 28th, 2022)
If you get a chance to tune in that would be…Continue
This is tragic, but I think it is important that we all share this story. What can we do individually or as a community to help our brothers and sisters?
"Candlelight vigil for 12-year-old North Side Middle School student"Continue
"Losing your hair can be pretty devastating, and if it's an experience that you know all too well, you’re not alone. Hairloss is more common than you think, and it doesn’t discriminate or target specific people"
"Even some of the celebrities you know and love have experienced it, and thankfully for…Continue
Victoria (Vicki) Kalabokes, former President & CEO of the National Alopecia Areata Foundation (NAAF), died on Saturday, January 22, 2022, in San Rafael, California.Continue
I lost my hair 30 years ago. I have now lived my life more without my hair than with it. But at the same time, I clearly remember leaving the dermatologist's office and him telling me that I have alopecia and I…Continue
I'm 71. In a few years I'll be bald half my life. I don't even think about it growing back. Most of my friends decided to stop colouring their hair when Co19 hit. Sometimes I feel I'm missing out on a rite of passage.