Featured Blog Posts (3,063)

Has it really been 12 years?

Yup.

It has been over 12 years.  Over 20% of my life has been spent with AU.

Mostly I don't think about it, easier to do if a guy.

My oldest child doesn't really remember me with hair (she was 2 when she helped me shave it off with the clippers.....).  And both kids say they prefer me bald and wouldn't want me to grow my hair back if I could. :-)

I still fantasize about re-growing hair every now and then, but not that often.

I pay attention…

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Added by swillard on August 2, 2024 at 11:47am — 5 Comments

Celebrating International Alopecia Day: Join the Global Movement!

SATURDAY, AUGUST 3, 2024

15th ANNUAL INTERNATIONAL ALOPECIA DAY!

Every year on the first Saturday of August, people from around the world come together to celebrate…

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Added by Cheryl, Co-founder on July 22, 2024 at 9:39pm — No Comments

Truthfulness and Alopecia: Confronting the Fear of Feeling Ugly

Do you ever struggle with feeling unattractive due to alopecia? How has it affected your self-image and how do you deal with those emotions?

Living with alopecia, a condition characterized by hair loss, can challenge our self-esteem and self-image in profound ways. It's okay to acknowledge the feelings of vulnerability and…

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Added by Cheryl, Co-founder on September 4, 2023 at 3:17pm — 2 Comments

'I had my breasts removed to avoid cancer, and I won't have them rebuilt': Woman, 29, with alopecia, reveals why she refused a reconstruction

"A woman who lost her hair to alopecia and then had a double mastectomy

says she tattooed her flat chest to take control

and create a body that felt 'most like her'…

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Added by Cheryl, Co-founder on November 26, 2022 at 9:48pm — 2 Comments

Winning the Emotional Game of Alopecia

Are You Stuck In A Metaphorical Tug Of War?

My mind has been on alopecia and what is the best way for us to live life to the fullest while living with the condition?

I am convinced that this is more an emotional battle than a physical one.

Our struggles seem to have more to do with acceptance, will I find a mate? Will kids at school laugh at me?  How do I tell my new date?  Will my spouse still be attracted to me? 

My thought is, if it was just physical then “slapping on” a new wig would…

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Added by Cheryl, Co-founder on June 26, 2022 at 5:23pm — 10 Comments

FDA Approves New Drug, Olumiant, for Alopecia Areata

I recently came across an article that mentioned a new pill for alopecia. 

"FDA greenlights 1st treatment for sudden hair loss caused by autoimmune disease"

"The drug — part of a class of medicines known as JAK inhibitors — is the first approved treatment for alopecia areata.…
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Added by Cheryl, Co-founder on June 16, 2022 at 6:30pm — 17 Comments

I will be on live stream tonight the CBS - Kcbs Kcal Los Angeles

Hi Everyone, 

This is my 2nd interview today talking about the Jada Pinkett/Will Smith/Chris Rock incident.

I will be on CBS News in Los Angeles live at 5:30 PM (PACIFIC TIME) 8:30 PM EASTERN

(Monday, March 28th, 2022)

If you get a chance to tune in that would be…

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Added by Cheryl, Co-founder on March 28, 2022 at 7:30pm — 1 Comment

Got Instagram? Link to us!

Follow us on Instagram @alopeciaworld and we will follow…
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Added by Cheryl, Co-founder on November 10, 2020 at 4:11pm — No Comments

Looking for photos to promote alopecia awareness on our Instagram page!

Every day we look at the photos on Alopecia World and they are truly beautiful and, honestly, deserve to be shared.

Therefore, we are looking for photos that we can share on Alopecia World's Instagram Page.

If you have a cool photo that we can use, please post it here with your IG handle so that we can link it back to your account.…

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Added by Cheryl, Co-founder on February 21, 2020 at 2:30pm — 12 Comments

Don't Hide the Scars

There are people lives that I believe I have touched because I was not afraid to show my “scars”.

Below is a song that the words ring so true to me and I wanted to share the lyrics with you.

Don’t Hide the Scars

(Michael Puryear/Cheryl Rogers/Jeff Silvey)

From CD: Sisters–The Story Goes On -1995

Vocals: Beverly Crawford/Cindy Morgan

I wept alone

Suffered on my own

I didn’t think that anyone would understand

Until…

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Added by Cheryl, Co-founder on January 18, 2012 at 2:18am — 6 Comments

"Meet the inspiring woman embracing her alopecia, even on her wedding day"

I recently came across an article about Kylie Bamberger, a member of Alopecia World. Below are some excerpts I would like to share:

“Kylie Bamberger looks every bit the blushing bride in her wedding photos. She’s wearing a white ball gown, clutching a bouquet of…

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Added by Cheryl, Co-founder on April 26, 2017 at 11:00pm — No Comments

CNN - Girl with alopecia wins competition with gorgeous jeweled head

Source:  CNN/ By Alexandra Larkin

I agree with this mother that it is important to support your children with alopecia and help them understand that they are no different than anyone else with or without hair.

(CNN)Even without hair, 7 year-old Gianessa Wride has managed to sparkle -- and win her Utah school's "Crazy Hair…

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Added by Cheryl, Co-founder on April 27, 2017 at 3:13am — No Comments

Another Alopecia World member in the spotlight!

 I love stories of triumph! 

One of our members Caroline, was featured in a photography project "30 days of Gorgeous" by Toma Houston Photography.

                   …

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Added by Cheryl, Co-founder on August 9, 2016 at 12:00pm — 7 Comments

I found a cure!

Hello everyone,

March 2016: I got AA 9 years back. It slowly developed into AU. I tried many doctors, many treatments and nothing worked. I started accepting my condition after joining this group and learned to live with it, which is a good thing. At the same time, I was starting to give up hope.

Two years back, I thought I'll try my last shot with Dr.Richard Strick. At first I was skeptical with the treatment. I have tried a similar one where the cream irritates the scalp and…

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Added by Surya on December 28, 2017 at 5:30pm — 18 Comments

Actress Viola Davis reveals battle with alopecia

According to an interview with Vulture that I found on Bet.com, actress Viola Davis struggles with alopecia. 

Many have noted that there seems to be an error in the article: The fact that stress does not cause alopecia, but may trigger it.

Viola Davis is a natural beauty, but there was a time when the actress really struggled with revealing what was…

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Added by Cheryl, Co-founder on March 23, 2016 at 1:00pm — 14 Comments

Does alcohol affect alopecia?

I have alopecia universalis.

I wanted to know if drinking (i.e., the consumption) of alcohol on a regular basis prevents recovery. I couldn't find any definite answers online as to whether it makes the hair fall out or not.

Please do reply.

Thanks!

Added by Ithastogetbetter on March 25, 2016 at 8:30am — 7 Comments

Four Women Bond Over the Beauty in Their Baldness

I recently came across the below article in the New York Times:

"Four Women Bond Over the Beauty in Their Baldness"

A few Excerpts from the article:…

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Added by Cheryl, Co-founder on April 7, 2016 at 12:08am — 1 Comment

Wigs

Hi, I am based in London and am now looking to wear a wig.  I cannot stand to see my sorry face in the mirror anymore without hair.  Have looked at wigs before in various shops, but have left in tears.  Anyone who knows of a good wig shop or supplier, I would love to hear from you.  

Added by Vicki on May 1, 2016 at 1:39pm — 11 Comments

Calling all Alopecians—Help Sasha secure a spot in the Once Upon a Tutu calendar





Sasha mother wrote me and said:

"This is my gorgeous girl sasha aged 4, the way she handles her alopecia is inspiring and brave and makes me so proud to be her mummy.

My wee girlie is currently in a competition to be Once Upon a Tutu calendar girl on Facebook I am hoping people could please vote for my gorgeous girl.

To vote go to…

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Added by Cheryl, Co-founder on October 3, 2015 at 1:30am — No Comments

It's our inner beauty that counts?

If there is one belief that I would really like to see us alopecian challenge, is when we start referring to our inner beauty as if our outer beauty couldn’t exist anymore.



I think that the thing that brings me the most joy is when an alopecian can truly start to see their beauty again. But, over and over again, I see us making comments like, “it’s our inner beauty, not our outer beauty that counts”, as if we have forfeit our rights to be beautiful the moment we lost our…

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Added by Cheryl, Co-founder on October 5, 2011 at 2:00am — 17 Comments

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