Featured Blog Posts (3,067)

'I had my breasts removed to avoid cancer, and I won't have them rebuilt': Woman, 29, with alopecia, reveals why she refused a reconstruction

"A woman who lost her hair to alopecia and then had a double mastectomy

says she tattooed her flat chest to take control

and create a body that felt 'most like her'…

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Added by Cheryl, Co-founder on November 26, 2022 at 9:48pm — 2 Comments

Winning the Emotional Game of Alopecia

Are You Stuck In A Metaphorical Tug Of War?

My mind has been on alopecia and what is the best way for us to live life to the fullest while living with the condition?

I am convinced that this is more an emotional battle than a physical one.

Our struggles seem to have more to do with acceptance, will I find a mate? Will kids at school laugh at me?  How do I tell my new date?  Will my spouse still be attracted to me? 

My thought is, if it was just physical then “slapping on” a new wig would…

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Added by Cheryl, Co-founder on June 26, 2022 at 5:23pm — 10 Comments

FDA Approves New Drug, Olumiant, for Alopecia Areata

I recently came across an article that mentioned a new pill for alopecia. 

"FDA greenlights 1st treatment for sudden hair loss caused by autoimmune disease"

"The drug — part of a class of medicines known as JAK inhibitors — is the first approved treatment for alopecia areata.…
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Added by Cheryl, Co-founder on June 16, 2022 at 6:30pm — 17 Comments

I will be on live stream tonight the CBS - Kcbs Kcal Los Angeles

Hi Everyone, 

This is my 2nd interview today talking about the Jada Pinkett/Will Smith/Chris Rock incident.

I will be on CBS News in Los Angeles live at 5:30 PM (PACIFIC TIME) 8:30 PM EASTERN

(Monday, March 28th, 2022)

If you get a chance to tune in that would be…

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Added by Cheryl, Co-founder on March 28, 2022 at 7:30pm — 1 Comment

Got Instagram? Link to us!

Follow us on Instagram @alopeciaworld and we will follow…
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Added by Cheryl, Co-founder on November 10, 2020 at 4:11pm — No Comments

Looking for photos to promote alopecia awareness on our Instagram page!

Every day we look at the photos on Alopecia World and they are truly beautiful and, honestly, deserve to be shared.

Therefore, we are looking for photos that we can share on Alopecia World's Instagram Page.

If you have a cool photo that we can use, please post it here with your IG handle so that we can link it back to your account.…

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Added by Cheryl, Co-founder on February 21, 2020 at 2:30pm — 12 Comments

Don't Hide the Scars

There are people lives that I believe I have touched because I was not afraid to show my “scars”.

Below is a song that the words ring so true to me and I wanted to share the lyrics with you.

Don’t Hide the Scars

(Michael Puryear/Cheryl Rogers/Jeff Silvey)

From CD: Sisters–The Story Goes On -1995

Vocals: Beverly Crawford/Cindy Morgan

I wept alone

Suffered on my own

I didn’t think that anyone would understand

Until…

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Added by Cheryl, Co-founder on January 18, 2012 at 2:18am — 4 Comments

"Meet the inspiring woman embracing her alopecia, even on her wedding day"

I recently came across an article about Kylie Bamberger, a member of Alopecia World. Below are some excerpts I would like to share:

“Kylie Bamberger looks every bit the blushing bride in her wedding photos. She’s wearing a white ball gown, clutching a bouquet of…

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Added by Cheryl, Co-founder on April 26, 2017 at 11:00pm — No Comments

CNN - Girl with alopecia wins competition with gorgeous jeweled head

Source:  CNN/ By Alexandra Larkin

I agree with this mother that it is important to support your children with alopecia and help them understand that they are no different than anyone else with or without hair.

(CNN)Even without hair, 7 year-old Gianessa Wride has managed to sparkle -- and win her Utah school's "Crazy Hair…

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Added by Cheryl, Co-founder on April 27, 2017 at 3:13am — No Comments

Another Alopecia World member in the spotlight!

 I love stories of triumph! 

One of our members Caroline, was featured in a photography project "30 days of Gorgeous" by Toma Houston Photography.

                   …

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Added by Cheryl, Co-founder on August 9, 2016 at 12:00pm — 7 Comments

I found a cure!

Hello everyone,

March 2016: I got AA 9 years back. It slowly developed into AU. I tried many doctors, many treatments and nothing worked. I started accepting my condition after joining this group and learned to live with it, which is a good thing. At the same time, I was starting to give up hope.

Two years back, I thought I'll try my last shot with Dr.Richard Strick. At first I was skeptical with the treatment. I have tried a similar one where the cream irritates the scalp and…

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Added by Surya on December 28, 2017 at 5:30pm — 18 Comments

Actress Viola Davis reveals battle with alopecia

According to an interview with Vulture that I found on Bet.com, actress Viola Davis struggles with alopecia. 

Many have noted that there seems to be an error in the article: The fact that stress does not cause alopecia, but may trigger it.

Viola Davis is a natural beauty, but there was a time when the actress really struggled with revealing what was…

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Added by Cheryl, Co-founder on March 23, 2016 at 1:00pm — 14 Comments

Does alcohol affect alopecia?

I have alopecia universalis.

I wanted to know if drinking (i.e., the consumption) of alcohol on a regular basis prevents recovery. I couldn't find any definite answers online as to whether it makes the hair fall out or not.

Please do reply.

Thanks!

Added by Ithastogetbetter on March 25, 2016 at 8:30am — 7 Comments

Four Women Bond Over the Beauty in Their Baldness

I recently came across the below article in the New York Times:

"Four Women Bond Over the Beauty in Their Baldness"

A few Excerpts from the article:…

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Added by Cheryl, Co-founder on April 7, 2016 at 12:08am — 1 Comment

Wigs

Hi, I am based in London and am now looking to wear a wig.  I cannot stand to see my sorry face in the mirror anymore without hair.  Have looked at wigs before in various shops, but have left in tears.  Anyone who knows of a good wig shop or supplier, I would love to hear from you.  

Added by Vicki on May 1, 2016 at 1:39pm — 11 Comments

Calling all Alopecians—Help Sasha secure a spot in the Once Upon a Tutu calendar





Sasha mother wrote me and said:

"This is my gorgeous girl sasha aged 4, the way she handles her alopecia is inspiring and brave and makes me so proud to be her mummy.

My wee girlie is currently in a competition to be Once Upon a Tutu calendar girl on Facebook I am hoping people could please vote for my gorgeous girl.

To vote go to…

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Added by Cheryl, Co-founder on October 3, 2015 at 1:30am — No Comments

It's our inner beauty that counts?

If there is one belief that I would really like to see us alopecian challenge, is when we start referring to our inner beauty as if our outer beauty couldn’t exist anymore.



I think that the thing that brings me the most joy is when an alopecian can truly start to see their beauty again. But, over and over again, I see us making comments like, “it’s our inner beauty, not our outer beauty that counts”, as if we have forfeit our rights to be beautiful the moment we lost our…

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Added by Cheryl, Co-founder on October 5, 2011 at 2:00am — 17 Comments

New member

Hello everyone, I just wanted to introduce myself. I am very happy I found this group so I have people to talk to who actually knows what it is like to talk to people with alopecia and the way it effects you mentally and physically. Lots of beautiful people on the sight and I look forward to meeting everyone.

Added by Ken Johnson on September 10, 2013 at 10:27am — 7 Comments

This mom needs direction

Hello everyone. Amazing people on an extraordinary site! Wow is all I can for each and everyone's journey.



My daughter is 20 and comes from a family farm, A premed student at private Christian college in Nebraska, she is on an Academic Scholarship, she runs, loves her horses and riding, her family is her rock, her boyfriend attends the same college is on a track scholarship ( he looks like he belongs on an Abercocmbie and Fitch poster and he is just a darling and is also studying… Continue

Added by Candace on September 10, 2013 at 10:07am — 4 Comments

At what point did you decide to shave your head?

I have had AA for 2 months now. I have lost a lot of hair but by the grace of God he gave me a head full so it still looks like I have a ton of hair. I can cover my spots with my remaining hair but I have to zig zag my part and hair spray it like a helmet so the wind doesn't blow it to reveal my spots. The spots on top are coin size so "it isn't that bad" but I hate fixing my hair. It is torture. I do have a spot as big as my palm in the very back...and growing but that is covered. So do I…

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Added by Mindy on September 9, 2013 at 3:32pm — 13 Comments

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