Jc
  • Female
  • Barre, VT
  • United States
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Jc replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yes, I am. Ive been on xeljanz for 3 years and im VERY nervous.  I hate to stop because I went from being almost bald to having some nice med length white and gray hair.  What a trade off.  Scary"
Dec 9, 2020
Jc replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have been on xeljanz tofacitinib for 15 months. Started out with only about 25 percent of my hair left.  5 mg twice a day. Quite a bit of regrowth. I am a senior... however, as soon as I go to one pill a day I start losing my hair again.."
Jan 21, 2020
Jc replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have been on the xeljanz for 15 months. 5 mg twice a day. As soon as I went to one 5 mg, my hair started falling out again.  I have had quite a bitt of regrowth but have a ways to go.. I had lost about 85 percent of my hair to begin with.…"
Jan 21, 2020

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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At 12:42pm on December 31, 2018, Jc said…

Has anyone taken xeljanz and had their symptoms gotten worse? 2 1/2 months and my hair is almost all gone. No new growth and it's worsening.. not sure if I should stay on it.

 
 
 

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