Karen Johnson
  • Female
  • Marietta, GA
  • United States
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  • Susan - Jon's Mum
  • Tracy and Amanda

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I have been doing research on alopecia because my 6 year old daughter has it.
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Karen Johnson's Blog

I really need some advice

Posted on November 23, 2009 at 3:46pm 4 Comments

My six year old daughter has had Alopecia for about a year now. At first she lost all of her hair in a 2 inch band from ear to ear. That all started to grow back until recently. She contracted the Swine Flu in September and the hair is coming out all over her head now. It is getting to the point that I cannot use my creative hairstyling techniques to cover it up. She is in Kindergarden and is terrified that someone is going to see it. She cries all of the time and I do not know how to help her… Continue

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At 4:51pm on November 26, 2009, LeslieAnn Butler said…
Karen, do you know John and Suzanne Talbot? They live in Marietta.
At 4:50pm on November 26, 2009, LeslieAnn Butler said…
Hello and welcome, Karen!
I am sorry your daughter is having such a hard time. Can she wear hats or something else to cover her hairloss? What about getting her a wig?
LeslieAnn
At 10:44am on November 24, 2009, Tracy and Amanda said…
Hi Karen,
How are you?
Tracy
At 11:26pm on November 23, 2009, Susan - Jon's Mum said…
Hi Karen
Welcome to AW
I have a 13 yo son with totalis. He has had it since he was 6. He doesn't wish to wear a wig though at the moment. I am sure that alot of people will be able to help you with what you can do.
Hope you enjoy the support that i have received from other members of this community. Know that we feel for you and are there for you when you need us.
Susan
 
 
 

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