Loraine and Sammy
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  • Melbourne
  • Australia
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About Me
My daughter Sammy, 11, has had recurring alopecia areata since she was 2. She is a happy confident girl....I am wanting to find all the tools I can to enable her to always believe in herself
Do you have alopecia? (Choose appropriately)
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (9 comments)

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At 7:08pm on November 9, 2011, BTB (John) said…

Hi Lorraine my wife Pat (see friends list) has been getting wigs from China for years and has had no trouble she will be more than willing to chat to message you with any information you need John

At 2:51pm on November 30, 2009, Cindy said…
Hi Lorraine, have you had any luck with inquiring about the squaric acid?
At 12:11pm on November 27, 2009, Cindy said…
Hi Lorraine, I don't believe the treatment you are referring to is the one Sam is doing. If you google SADBE you will read the info on it. It has been used to treat warts. Basically, after a skin test to determine your body's response a solution of acetone is applied to a small area of the scalp. Sam has had an interesting journey with it. The body in turn produces a response in the form of a rash and can be itchy. Sam goes to a top rated Children's Hospital in the USA. The doctor said it is safe for long term use. She did not advise any form of steroid treatments and you need to be careful because it can thin the blood. She recently allowed us to use a cream on her eyebrows twice a week. That coupled with the treatments is producing the return of her eyebrows. This treatment works the entire immune system. My advice to you is that if you are interested in pursing this treatment that you find a skilled doctor and don't allow the doctor to put the squaric acid on a large area of the scalp to begin. The irritation can be uncomfortable, but it only lasts about 2 days. If you want more info after reading up on it let me know..Have Sammy contact my Sam she has her own page.. I have pictures of various stages of regrowth on my page. Sam's hair is alot longer now. Good luck!!
At 3:34am on November 27, 2009, Cindy said…
Hi Lorraine, how are you and Sammy doing? I read your post about the predizone an I too would not give that to my daughter. Sam is doing another treatment called Squaric Acid Immunotherapy and it is working for her. She has most of her hair back and her brows are growing now. It maybe something to consider if you daughter can handle the irritation. If you want more info on it I would be happy to share it with you. Cindy
At 9:31pm on August 31, 2009, Cherylnz said…
Hi Loraine,
Welcome to Alopecia World
Cheryl :)
At 8:22pm on August 29, 2009, Susan - Jon's Mum said…
Hi Loraine,
How are things with you and Sammy?
My son Jon has had AA for more than 6 years -since he was 6.
We live in Northern NSW.
Do you get to a support group down there in Melbourne?
At 5:44pm on August 28, 2009, LeslieAnn Butler said…
Hello and welcome, Loraine!
You have come to the right place for advice and support!
LeslieAnn
At 3:51pm on August 28, 2009, Tracy and Amanda said…
Hi Loraine,
How are you and your daughter? I also have a daughter with alopecia. I hope to be talking to you soon.
Tracy
At 5:04pm on August 27, 2009, Cheryl, Co-founder said…
Hi Loraine, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder
 
 
 

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