Hi Nancy, I have been reading some of your comments re dutasteride...I have been prescribed dutasteride 0.5 mg daily...haven't had the script filled as didn't want to start taking a medication prior to my daughter s wedding, the big day has passed and now I'm have to make the decision re if to take medication .  Did your dermatologist give you a time span that you would be on meds, ? And no side effects? And this has halted frontal fibrosing alopecia?  Sorry just so scared .trying to make an informed descion, thanks

Hi Nancy79.  I live in Lenexa/Shawnee area.  Which hairloss doctors are you seeing?

Nancy, I'm still figuring out how to work with this website, so hopefully I'm replying to you in the right place!  Yes, I will have to travel to Duke in order to participate in the study.  Fortunately I live about an hour away from them so it's not a big issue for me.  I'm guessing that you saw all the other sites where they are gathering data around the country?  If any of them are within a reasonable travel distance you may be able to participate in the study by contacted someone at that site.  I remember reading somewhere that someone was having trouble connecting with the right person at one of those sites - I think it was in Pennsylvania, so I thought I would try to find out for that person whom they should call.  It took me several attempts to get a response back from Duke - I think people are just so busy with other things that they don't get around to responding in a timely way.  Probably because they are not losing their hair :-). 

Hi Nancy,

I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Be sure to check out the “10 tips for getting the most out of Alopecia World” which include a few tips to get you started!

Cheryl, co-founder