Nikki - Coley's Mama
  • Female
  • Braintree, MA
  • United States
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Relationship Status:
Married
About Me:
One of two mommies to a beautiful little man who was diagnosed with alopecia areata at 12 months. I'm looking to talk to other parents going through something similar or people who have insight on the subject.
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Nikki - Coley's Mama's Blog

"I am so sorry!"

Posted on October 10, 2012 at 11:52pm 8 Comments

My son was diagnosed with AA at 12 months. He finally grew some hair a couple of months earlier and it started coming in nicely. Within just a few weeks, almost all of it was gone. He was left with this weird little patch of blonde curls on the top of his head that made him look like one of those cute little cartoon babies with his big blue eyes the way they are. He lost all of his eyelashes and eyebrows, too.

He is now 21 months. He has a newborn little sister and is starting to get…

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At 7:00pm on March 1, 2012, Cindy said…

Hi Nikki, I was just reading your blog post about going to Childrens Hospital. I would be happy to give you our Dr. name that we see there privately. Sam is 10 and has been a patient there since age 5. We love our Dr.

At 6:03pm on March 1, 2012, Cindy said…

Hi Nikki,

Welcome, my name is Cindy and I run a support group in Mass through the Childrens Alopecia Project. We are getting together in April at Kidsports in Stoughton in April. Please email me if you want more info. I also have a FB page just for our support group if you would like to join us. Just search Massachusetts CAP Kids and ask for an invite.

Cindy

 
 
 

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