It is exactly the humiliation and depression of any affliction that is the deadly enemy. I had a dear friend once who had all his hair, all his physical capabilities, and he was smart. He could OCCASIONALLY BEAT ME at chess, but he had been to Vietnam and had PTSD. It was INVISIBLE. It was even somewhat socially invisible as well...most of the time as he was very good natured, had a good sense of humor and was always telling everybody how happy he was with his life. This was so until he began having anxiety attacks and becoming extremely depressed. This condition alternated with unnaturally high states of elation.
To make a long story short, he got some help with Lithium treatments and I saw the old "Dennis" return for awhile. This was in the early 1980's and the need to titrate treatments was not yet fully understood. One day in 1981, he left his home in El Cerrito (near Berkeley) after calling me and telling me he would be at my place (at that time in 29 Palms, CA) in a few days. He drove to Big Sur, pitched a tent and routed his car exhaust into the tent, went inside and said goodbye to life. He was one of my dearest friends and I miss him today.
What the "sugar coating" actually is may be likened to an intellectual making life itself sweeter. I think you should perhaps be a little kinder to folks who try to see their own beauty and that of others despite some socially determined standard of beauty. I agree it is not by choice. It was not my friend's choice to have an extremely disturbed mind he could not cope with. If your worst problem is AA, and you are not so hard on yourself, there are many who will love you and think of you as as beautiful as any woman if you let them. It is a better option. The fact that you work and have graduated from college indicates to me you have all the capacities to live a long and satisfying life. The fact that you shared your story with me and others indicates you value others. I do too.
i dont like the surgar coated version of this humiliating and really depressing disease.
i dont wanna be a party pooper either, and i do appreciate GOD for bringing me to this community where fellow alopecians help each other stay afloat...
but honestly, it sucks being bald, especially for those, when its not by choice...
someone posted up a picture of megan fox, where she shaved her head, and i think it said something along the lines of being bald is sexy even megan fox thinks so...(not verbatim)
but yeah if i knew all my hair was going to grow back and i wanted to shave my head by choice, i guess sexy can describe it, but come on...i have no eyebrows, and i can count how many eyelashes i have...i can probably count how many hairs i have left now too...
not trying to hate on megan fox or anything cuz she's gorgeous and talented...
but yeah...its weird knowing that there's no cure...and this is how its just gonna be...
and that the experience i had at my friends birthday last week is not going to be my last.
i am working right now...anyone looking for a job in the la area?
I just graduated from UCSD this past summer...
but any ways
its easier here than out there where no one know or understand what we're going thru...
people i come into contact on the daily, know about my condition, and it was brought up by a coworker..."why do you always wear a hat?" (at least they asked instead of just pulling my beanie off)
I explained to the best of my ability what alopecia areata was..but they'll never know or truly understand what we go thru, and experience as alopecians...
this all happened so suddenly, and i wouldnt go as far as to say im facing it head on...
but i hope is that my pictures touch those here who are going thru the same things as i am...not just some BS encouraging words coming from a stranger, telling each other everything is going to be alright (though i truly believe encouragement and caring words help)
there's the gloomy truth under all our wigs and all our hats, and i just happen to be one to admit it. it effing sucks. but im living with it. so are we all in some demented way, whether its by supporting one another like some do, or like myself, sharing with others that im going thru some of the same things they are, as a bald "used to be so-called hott" 22 year old female.
Hi Ray
Thank you so much for your encouraging words...
it is tough i must admit...
just the other day, i went out to a birthday gathering at a bar, with some friends I haven't seen in more than over a year now, and i was wearing a beanie (i have a wig, but i feel so out of my skin when i wear one, and the fear of it falling off!)
but behold...the worst of the worst happened...
as a joke one of the guys pulled off my beanie, without knowing the secret i was hiding...
humiliated, I ran out of the room crying, and he chased after me and apologized over and over again...I couldn't say anything, but that it wasn't his fault, because it really wasn't...there was no way he would've known that I was bald...(we haven't seen or talked to each other in over a year!) and its not like im going to go around everywhere announcing to everyone that i'm bald beneath my hats so that something like this wont happen ever again...
so I just left.
This was the first time i have ever been revealed in public.
Amongst people I used to know, and some, I barely know...
I don't know if this is a rare occurrence or a common one for us alopecians...
one thing for sure is, i am not a very happy camper...
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To make a long story short, he got some help with Lithium treatments and I saw the old "Dennis" return for awhile. This was in the early 1980's and the need to titrate treatments was not yet fully understood. One day in 1981, he left his home in El Cerrito (near Berkeley) after calling me and telling me he would be at my place (at that time in 29 Palms, CA) in a few days. He drove to Big Sur, pitched a tent and routed his car exhaust into the tent, went inside and said goodbye to life. He was one of my dearest friends and I miss him today.
What the "sugar coating" actually is may be likened to an intellectual making life itself sweeter. I think you should perhaps be a little kinder to folks who try to see their own beauty and that of others despite some socially determined standard of beauty. I agree it is not by choice. It was not my friend's choice to have an extremely disturbed mind he could not cope with. If your worst problem is AA, and you are not so hard on yourself, there are many who will love you and think of you as as beautiful as any woman if you let them. It is a better option. The fact that you work and have graduated from college indicates to me you have all the capacities to live a long and satisfying life. The fact that you shared your story with me and others indicates you value others. I do too.
i dont wanna be a party pooper either, and i do appreciate GOD for bringing me to this community where fellow alopecians help each other stay afloat...
but honestly, it sucks being bald, especially for those, when its not by choice...
someone posted up a picture of megan fox, where she shaved her head, and i think it said something along the lines of being bald is sexy even megan fox thinks so...(not verbatim)
but yeah if i knew all my hair was going to grow back and i wanted to shave my head by choice, i guess sexy can describe it, but come on...i have no eyebrows, and i can count how many eyelashes i have...i can probably count how many hairs i have left now too...
not trying to hate on megan fox or anything cuz she's gorgeous and talented...
but yeah...its weird knowing that there's no cure...and this is how its just gonna be...
and that the experience i had at my friends birthday last week is not going to be my last.
I just graduated from UCSD this past summer...
but any ways
its easier here than out there where no one know or understand what we're going thru...
people i come into contact on the daily, know about my condition, and it was brought up by a coworker..."why do you always wear a hat?" (at least they asked instead of just pulling my beanie off)
I explained to the best of my ability what alopecia areata was..but they'll never know or truly understand what we go thru, and experience as alopecians...
this all happened so suddenly, and i wouldnt go as far as to say im facing it head on...
but i hope is that my pictures touch those here who are going thru the same things as i am...not just some BS encouraging words coming from a stranger, telling each other everything is going to be alright (though i truly believe encouragement and caring words help)
there's the gloomy truth under all our wigs and all our hats, and i just happen to be one to admit it. it effing sucks. but im living with it. so are we all in some demented way, whether its by supporting one another like some do, or like myself, sharing with others that im going thru some of the same things they are, as a bald "used to be so-called hott" 22 year old female.
Thank you so much for your encouraging words...
it is tough i must admit...
just the other day, i went out to a birthday gathering at a bar, with some friends I haven't seen in more than over a year now, and i was wearing a beanie (i have a wig, but i feel so out of my skin when i wear one, and the fear of it falling off!)
but behold...the worst of the worst happened...
as a joke one of the guys pulled off my beanie, without knowing the secret i was hiding...
humiliated, I ran out of the room crying, and he chased after me and apologized over and over again...I couldn't say anything, but that it wasn't his fault, because it really wasn't...there was no way he would've known that I was bald...(we haven't seen or talked to each other in over a year!) and its not like im going to go around everywhere announcing to everyone that i'm bald beneath my hats so that something like this wont happen ever again...
so I just left.
This was the first time i have ever been revealed in public.
Amongst people I used to know, and some, I barely know...
I don't know if this is a rare occurrence or a common one for us alopecians...
one thing for sure is, i am not a very happy camper...
love what you wrote to Esther and I do agree that society is blind!