Shannon
  • Female
  • Monroe, New York
  • United States
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Profile Information

Relationship Status:
Married
About Me:
I am 34 years old and a mother of four beautiful girls and a wife to a wonderful man! I was diagnosed with Alopecia in July 2008. This is all pretty new to me, not to mention a bit scary. Over the last couple months, I have learned that "I truly am NOT my hair" and I can do this! I have a wonderful support system, my family. I thank the good Lord for them. While my hair continues to fill the shower drain each time I shower, I simply pick it up with a tissue and move on. I would be lying if I said "This does not or has not effected me" because it has. The good news is that I have learned "What is going to happen will and I can not control that". I had no clue what beautiful wigs were out there until I actually went to a shop and tried them on. I must say, I had alot of fun playing dress up. I want to give a special thank you to my mom who paid for my wig that day. I went home feeling like "WOW, I have options"! Thank you mom! Thank you to my husband that supports me every way he can and thank you to my children that keep me on my toes.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes

Shannon's Blog

Alopecia Support Group

Posted on October 28, 2008 at 7:32pm 3 Comments

Hello Everyone!!!

After doing some research in my home area, I have found there to be no support groups in my area.

Therefore, I am hoping to start a Alopecia Support Group in Monroe, NY 10950.

If anyone is interested, please send me a note!

My4Girlzz@aol.com

Have a great day!

Shannon

Comment Wall (29 comments)

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At 5:38pm on September 22, 2010, soniamarry said…
I read about how you shopped around and found so many great options. Do you think you could recommend a place for me. I found some on the internet and emailed them but no one has answered me. I figured if they don't call me back then how sympathetic can they be to the cause. More and more of my hair is falling and i need to find something before it becomes terribly obvious. I work as a pre k teacher and so i need to find something quick. I am sorry i am writing a book but i am just desperate for a place. Thanks:)
At 9:39pm on August 8, 2010, Djuna said…
Hi Shannon,

I was wondering if your group in Monroe ever got off the ground? I'm not terribly far from you and have been looking around if there are any groups around.

Djuna
At 1:42pm on April 8, 2009, Darlenys said…
Hi ,

I'm writing to you because I will be having a program at my school "What is Beautiful" and we'll be discussing the many lengths that women/ men have gone to achieve what is beautiful according to society. We will show quick clips and then have a panel consisting of Rutgers students and people with alopecia. (I'm still not too sure if I will be on the panel...im still kinda shy about it) Would be interested in participating or know of anyone that is around the NJ area that would like to participate?

Date: April 21st @9:15pm
Location: Rutgers University, New Brunwsick, NJ 08901
Student Activities Center

Please let me know as soon as you can:)
Thanks
Darlenys
At 11:28pm on December 2, 2008, Antoinette Fernandez said…
Hello Shanon!! I know, this holidays are crazy!! There is not time at all!:)
The date sounds pretty good to me!! I'm very excited!! Anyway, are you going to bgdl meeting next sunday??
At 12:24pm on December 2, 2008, John Paul said…
Thanks - we'll figure it out...

How old are your girls? I have 2 as well - 5 and 2.5.
At 11:23am on December 2, 2008, John Paul said…
no location yet (your would be where i would probably go at the end of the day) - it's obvious we need to be a little more proactive to get everyone signed up so we can see where folks are located and what makes sense. If you don't mind, I'd appreciate you joining the NJ group just so we have some cohesion - I'm not running it or trying to tell anyone what to do - just organizing. thanks.
At 5:56pm on November 30, 2008, Debbie said…
Hi!
Sorry it took so long to write back, but haven't signed in in a while. Yes, I would love to be part of a support group. If you need help, let me know.
Debbie
At 6:06pm on November 22, 2008, Shana and Taylor said…
Well it is true!!!
At 2:46pm on November 20, 2008, kathy chi said…
looking great and fabulous shannon, you are doing a great thing
At 8:56pm on November 18, 2008, Shana and Taylor said…
OH!!! The profile pic looks like your real hair!

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