"Dear Denise,
Vent, my friend! That's what we're all here for. I think it's important to point out that AU can be a journey - but not to a single point. In 26 years with AU, I've changed my appearance according to certain factors.…"
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Solange De Santis
- Female
- Mamaroneck, NY
- United States
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"After going hair-free for several years, I decided to put on the store-bought hair again because I got tired of all the attention. It seemed as if I was wearing a sign that read, "Please do come up and comment on my hair-free appearance."…"
"Yep, they continue to go on with their cancer story even after I say I don't have cancer. However, today I had a pleasant exchange with a neighbor on my floor. First of all, I've known her for 14 years, so she wasn't a random…"
"This one makes me crazy. I've had AU for 25 years. No one should compare one disease to another and we should not be made to feel guilty for having a form of baldness that is not connected to a life-threatening condition. We have a right to our…"
"Thank you! I have had AU for 25 years and was quite puzzled, watching the Oscars and later learning Jada claims to have alopecia. Funny, because it looked like she had plenty of hair shadow and was just shaving her head or wearing a buzz cut. I did…"
Profile Information
- Relationship Status:
- Single
- About Me:
- I am a writer, drama educator, theater director - and also a mom to a wonderful daughter who does *not* have alopecia areata. Alopecia universalis arrived in my life in 1997, when I was 43.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
- Your Website (Leave blank if you don't have one):
- http://solangedesantis.com
Solange De Santis's Photos
Comment Wall (2 comments)
- At 8:27pm on June 11, 2015,
Chris said…
- Wow! Thanks for the nice comments!The support I've gotten here has been really wonderful.
- At 1:28pm on December 2, 2010,
LeslieAnn Butler said…
- Hello and welcome, Solange!
How are you today?
I have universalis, too! And BTW, I graduated with a degree in theater!
Leslie Ann
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