"I have been suffering with this hideous AU for almost 20 years. I am so tired of it. I have lost a lot due to the chosen ignorance of others. I was living in NC when it hit. I lost my job and my home because of it. I lost friends, and family because…"
Alopecia World
www.alopeciaworld.com
-
TurboK
- Pound, WI
- United States
- Blog Posts (2)
- Discussions (12)
- Events
- Groups (1)
- Photos
- Photo Albums
- Videos
TurboK's Discussions
Thymosin Alpha 1 was a complete failure for me
Started this discussion. Last reply by Junieare Dec 4, 2023. 6 Replies 0 Likes
I had gotten on a steady routine and was getting the Thymosin Alpha 1 shots twice a week as recommended by the manufacturer. Things looked promising, because I ended up developing peach fuzz on my…Continue
Thymosin Alpha 1 Update
Started Feb 13, 2020 0 Replies 0 Likes
Well, I have finally gotten into a rhythm and have been going to my immunologists office twice a week to get the Thymosin Alpha 1 shots. I had to set up a schedule and go in to get them done, because…Continue
Thymosin Alpha 1
Started this discussion. Last reply by TurboK Jan 23, 2020. 5 Replies 0 Likes
I have suffered with AU for far too long and I have kicked too many General Practitioners to count to the curb, because they refuse to help They all insisted that I learn to enjoy having AU. None of…Continue
Gifts Received
TurboK has not received any gifts yet
TurboK's Page
Latest Activity
"How can one begin betting on sports and make money from doing geometry dash subzero so?"
Do you wish you could grow your hair back!
"I cannot get to that point. I hate this hideous disease and I am tired of doctors asking, "Can't you just live with it?" I suffer from multiple autoimmune issues (Psoriasis, Arthritis, Asthma) and keep getting the same question for…"
Living With Alopecia: Cardinals QB Josh Dobbs and Cheerleader Ellie Share Their Journey
"I still don't get how people can do this. I am a Software Developer and the greatest thing for me was to be able to work from home full-time, so I would not have to face anyone. Maybe if I were an athlete, or something like that, it would be…"
"@LarryI am still in this Group. It hasn't been active on this subject since 2019, but there are a lot of posts under other discussion topics."
"Hello. I'd like to share a useful betting portal that helped me decide on a reliable bookmaker, Mostbet mostbet-indir.com. By registering on the site I received a decent bonus, which was enough to help me figure out how to bet on football.…"
"with Alopecia we have to let go many comments and learn to be happy what we are and what we have. This is the only way we can live peacefully. responding to each comments and some times actions is hard and will bring negativity in…"
"Cheers, mate.I hope you will be fine. Let me hug you, dear."
"I truly hope that you don't let one woman's comment take up too much space in your heart and mind.
I've had more conversations than I can count over the past 8 years about the condition of my scalp; so far the record is six in one…"
"I think you have every right to be upset.
Recently I was in a chat room discussing who has a harder time dealing, coping with hair loss, men or women? I won't go over that now, but the one difference that I've noticed is that for…"
"I'll be honest; I know me, and I'm a reactive me. Those that can dish it out better be ready to take it. She was looking for company called Misery, and she didnt find it in you and your condition. She was pissed that you…"
"this same thing happened to me at the grocery store months ago. A woman with short-cropped hair chased me down even though I was clearly evading her. When she finally got to me she say “breast cancer?” Obviously she was desperate…"
"I don’t even tell people what I have anymore when cancer patients ask or anyone else- I just say no I don’t have cancer and smile and walk away- that’s your choice to engage or not to. But I find it best to not expend the emotional…"
Profile Information
- Relationship Status:
- Single
- About Me:
- It has been about 13 years since I went AU. I suffered from bouts of AA, but the shots worked, and it would go away for about 5 years. The last time, nothing worked, and I lost all my hair in a matter of 3 weeks. Shortly after going AU, I developed Psoriasis, which I have on my head as well as on other parts of my body, so I have never been without anything kind of wig or cap. I have never seen myself in the mirror without something on my head, because just the thought of it gives me a gag reflex.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
TurboK's Blog
You're One Of Them
Posted on July 5, 2022 at 1:18am 11 Comments 3 Likes
I was at Hobby Lobby a couple months ago when a woman came up to me and asked how my chemo treatments were going. I was wearing a ball cap. When I looked at her, I saw that she was wearing a bandana and must have been going through chemo herself.
When I explained that I suffered from Alopecia Universalis, she looked me dead in the eye and said, "Oh, you're one of them," and walked away.
Now, I have been mistaken for having cancer and going through chemo many times, but it has…
ContinueWhy do I fight for a cure?
Posted on March 7, 2020 at 12:35am 16 Comments 1 Like
I have been AU for almost 15 years. I lost every hair on my body over a period of three weeks, and in the process, I lost almost everything. I lost my business because people refused to do business with me. I lost my day job because I no longer had a "professional appearance." I lost the vast majority of my family and friends, because no one wanted to be seen with me. I was told never to come back to the church I was attending because they thought it was contagious.
I fight…
ContinueComment Wall
- No comments yet!
© 2024 Created by Alopecia World.
Powered by
