Vicki
  • Female
  • United Kingdom
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Vicki's Discussions

Tofacinitab

Started Oct 28, 2020 0 Replies

Hi, I have sadly had to stop this medication as it has raised my cholesterol and I wasn't getting the results that others seem to be on here. I did get regrowth in my bald spots but my hair continued…Continue

Tags: tofacinitab

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Latest Activity

Vicki replied to NicoleT's discussion Xeljanz from India
"ok i am naive, you can’t sell medication. i didn’t realise that ☹️. "
Nov 22, 2020
Vicki replied to NicoleT's discussion Xeljanz from India
"Hi, I have 42 tablets which I would like to sell. I sadly had to stop due to cholesterol problems. I was on Tofacintab for just under a year and I spent a fortune. So if possible as I have tablets left I would like to sell them. I have the…"
Nov 21, 2020
Vicki replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I have had to stop due to high cholesterol- it went to 7.6 (should be below 5). Now it’s at 6.3 so lowering. I just couldn’t risk a stroke/heart attack as my mother had a stroke. I was on only it for just shy of 12 months. So upset I had…"
Nov 17, 2020
Vicki replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"How do I send you a message?"
Nov 15, 2020
Vicki replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hello I have 42 tablets to sell. I sadly had to stop taking Tofacinitab as my cholesterol levels went really high and I wasn’t a great responder.  I have spent a fortune but sadly this hasn’t helped. I live in London. "
Nov 14, 2020
Vicki posted a discussion

Tofacinitab

Hi, I have sadly had to stop this medication as it has raised my cholesterol and I wasn't getting the results that others seem to be on here. I did get regrowth in my bald spots but my hair continued to thin so I am still shaving my head.  I had hoped this would be the drug that worked for me.  If you think I am giving up too early let me know but the high cholesterol is a big worry.  I have been on Tofacinitab for 12 months.  I am sad to stop this medication as it did help with other aspects…See More
Nov 1, 2020
Vicki replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole, my hair is really so much thinner than yours at all your stages - i have to keep shaving as to thin to grow. That’s why I am wondering if I should continue. My derm suggested adding oral minoxidil but I don’t want to do that.…"
Oct 14, 2020
Vicki replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole Thank you for showing this photo.  I have been on Tofacinitab for 12 months and even though my patches filled in, they filled in very thinly.  It also raised my cholesterol level, I am now thinking of stopping but maybe I am…"
Oct 14, 2020
Vicki replied to NicoleT's discussion Xeljanz from India
"Surprised i have not had more replies to my list about cholesterol levels, how long do you think one should give this medication a go for? really need advice."
Oct 6, 2020
Vicki replied to NicoleT's discussion Xeljanz from India
"Hi everyone, How do you get tofacinitab from Beacon? I might have to stop taking this as it’s just too expensive in the U.K. Results are ok, been on them for 12 months. Bald spots filled in but hair is too thin so still shave. Did a break…"
Sep 21, 2020
Vicki replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi, Great photos, and I am so happy for you!!! I am currently on 2 tablets a day (one in the morning and one in the evening).  I have been on this for just over 3 months, seeing some improvement but it is costing me an absolute fortune…"
Jan 22, 2020
Vicki replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Steve, I am from London. Just started taking this medication 5mg once daily but it’s costing me a fortune!! Want to order from the same place you do. How do I do this? All help and advice gratefully received. Kind regards Vicki"
Oct 22, 2019

Profile Information

Relationship Status:
Married
About Me:
Hi I have been losing my hair slowly for the last 3 years but the last 6 months it has been rapidly disappearing. You can see my scalp and I am wondering if I should shave it off. Its all very terrifying and I don't sleep. Finding this very difficult.
Do you have alopecia?
Telogen effluvium
Are you age 18 or older?
Yes - I am 18 or older

Vicki's Blog

Wigs

Posted on May 1, 2016 at 1:39pm 11 Comments

Hi, I am based in London and am now looking to wear a wig.  I cannot stand to see my sorry face in the mirror anymore without hair.  Have looked at wigs before in various shops, but have left in tears.  Anyone who knows of a good wig shop or supplier, I would love to hear from you.  

Comment Wall (2 comments)

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At 2:27am on May 18, 2016, Dolly said…

Vicky, how are you doing? How is the ldn going for you?

At 6:03pm on November 2, 2013, LeslieAnn Butler said…

Hello and welcome!

How are you today?

Leslie Ann

 
 
 

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