margaret staib
  • Female
  • Greenlawn, NY
  • United States
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  • Lili Añel (aka Eulalia)
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margaret staib's Discussions

hats, scarfs, ponytail hat? websites?

Started this discussion. Last reply by margaret staib Mar 5, 2010. 2 Replies

Long Island Support Group

Started Feb 23, 2010 0 Replies

Gifts Received (1)

Red Ribbon From Heather L
 

margaret staib's Page

Profile Information

Relationship Status:
Married
About Me:
May there be support from the people that love us and know we are stronger than we think.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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Margaret staib's Blog

A big thank you

Posted on September 17, 2010 at 8:26am 18 Comments

I'm sure I am one of hundreds of you that want to say this but, thank you Alopecia World.

With out this wonderful site my alopecian days would be a little harder, the looks in the supermarket would sting a little stronger, the windy days on the soccer field with 18 girls would never happen, my confidence to walk on a tennis court in just a scarf would not be there, I would not have these wonderful friends that I feel so safe sharing my feelings that I never had before AA, I wouldn't have… Continue

Wigs for small heads?

Posted on April 7, 2010 at 12:47pm 1 Comment

Anyone have a favorite company that does wigs on the smaller size? I am not yet ready for the $$$ purchase for the vacuum wig, have to save up for that one. I know people love them. I'm looking for a synthetic one but small enough for my baby sized head :) Thank you!!

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At 7:12pm on April 22, 2013, Cheryl, Co-founder said…

You have been busy ;)

http://www.newsday.com/long-island/towns/long-island-now-1.1732330/greenlawn-woman-margaret-staib-creates-support-group-for-alopecia-1.5100213

Congratulations!

Cheryl

At 10:25am on April 14, 2011, RobynCS said…
Hi Margs! I'm great, a bit stressed, but it's all good. Are you excited about your upcoming Alaskan trip?

Dont know a lot of Grateful Dead fans, but my new beau is big time. Phil Lesh and Co. will be at the Saratoga Performing Art Ctr. on July 19th. Will you be back? Interested...?

Hope you & fam. are well. Yes, been golfing often already:)
At 8:53pm on December 25, 2010, Heather L said…

Hello Margaret! 

 

MERRY CHRISTMAS!!! 

 

xoxo, 

Heather

At 9:46pm on November 24, 2010, Heather L said…
Hey Girl!

Wishing you and your family a very Happy and Healthy Thanksgiving!!

Hope you are doing well!

xo
Heather
At 1:05pm on October 25, 2010, RobynCS said…
Happy Monday to you, Margs. Are you staying out of trouble? I am doing my thing and keeping positive. Actually saw my derm. dr. bright and early today. Do you send out flyers before you have a support group meeting? NAAF's first flyer is hard to beat.

Also, what else do you know about 'latisse'? I remember you mentioning that it changes eye color in it's pursuit to regrow eyelashes.

How are you and yours? Any chance of meeting me & a friend in NYC?

Ciao for now,
r.
At 1:01pm on October 18, 2010, RobynCS said…
Margs,

Back to the networking for the group...NAAF had sent out flyers to derm. drs. and NAAF members within a 100mi. radius. I guess upstate NY is more spacious than long, narrow LI. Some members had been in a group 10 or 15 yrs ago, but it was mostly moms and their young alopecians. Now the girls are HS-ers and all age groups had something to contribute to the group. Also, if I meet someone who knows a family w alopecia, I ask them to pass on the info about the meeting.

Need to get a flat tire replaced. Oh joy.
r.
At 8:24pm on October 17, 2010, Danielle said…
miss you too margs!! maybe we can meet for lunch or coffee someday soon?? ill be at the group meeting :) anything i can do to help, let me know!! hope everything is great! xoxoxo
At 11:23am on October 17, 2010, Jess said…
Hey Margaret! When and where are the meetings? How many people go? What's it like??
At 10:47pm on October 13, 2010, RobynCS said…
Margaret- I never saw what you wrote back to me. So sorry to have missed your email...Hope you are well & keeping the meltdowns to non-existent. We had our first meeting and it went very well with 15-18 people showing up. All age groups, friends/relatives of alopecians, and great jr.high & high school adolescents. So good for all of us.

The next day, I was laid off from my job! Downsizing. That was two weeks ago and I am just trying to scramble in finding a position in this economy. It's almost to the point where I could care less about my bald head because I'm in so much new pain. A definite wtf.

The dating scene picked up for me somehow. People are coming out of the woodwork...and decent, active good-looking males. Have a second date tomorrow. What do I say? Should I mention the whole wiggie issue or put it off until a third date...women say wait, men say tell him. Oy ee vay.

Did you end up finding a wig that suits you? You mentioned that you could not find one that fit properly. I think it is just fantastic that you are coaching soccer and being a good role model for your girls. What age group are you coaching?

Hi to your hubby. I think of you often too. And remember...It is all good.
Robyn
At 9:05am on September 11, 2010, RobynCS said…
Hi Margs- How's my girlfriend from Long Island doing? I'm sure youre going crazy shopping for school clothes and supplies yet this weekend. Wanted to tell you that the calls and emails are flowing for the first upstate support group meeting. It will happen at the end of the month. People are coming from all over. Thank you for all your help and encouragement. I could not have done it without you! ttys, Robyn

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