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Permalink Reply by Ashcookie on October 24, 2016 at 12:44am

Hey, I understand what you're going through. I have Alopecia Areata, so I lost ALL of my eyelashes, hair, and eyebrows. Im 12 years old, and I lost my hair at age 7 and I remember the days I lost my hair. I was brushing my hair when chunks came out and the hair felt lifeless and weird. My mom came in and started crying, but for some reason I was fine. I got picked on at school (now im home schooled), and since I'm getting older I cry a lot and I hate seeing myself without hair. I have no friends who understand me either, and I felt like I was the only one who suffered from this, I just felt alone. I wear a hairpiece, that's SOO real its unbelievable. I can go swimming with it, jump around, go on roller coasters and it WONT come off. I've had it for 5 years now, and I LOVE IT! You can honestly think its my real hair. But when I take it off, it hurts me really bad because I know im never am gonna experience having hair. Like when I was younger I didnt really care for my hair, I just tied it in ponytails and just had fun. But now I hate not sleeping with my hair, not having lashes & brows, just missing out on sooo many things. I can go on, but that will take forever. I just wanted to know that you're not alone, and that I understand what you're going through.

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Permalink Reply by Jem on January 17, 2019 at 11:58am

Hi Ashcookie, I have a daughter who is also 12 years old and was diagnosed with AA Aug 2018. She lost 99% of her hair in 3 weeks.  Can you please tell me where you get your wigs from?  I know exactly what you're talking about because my daughter is going through the same. I just wish I can take her place.  It's only been 5 mos. since her diagnosis but it feels like forever. We're still hoping for the day she grows her hair.  Can you share also what meds you're taking? My daughter is on Xeljanz cream since August but no progress.

  

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Permalink Reply by Kelljohn on November 19, 2016 at 8:37am

Hi I am a 17 year old girl with alopeica and I can relate a lot with what you're saying. I've had it for almost 5 years now and it hasn't been easy.

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Permalink Reply by Miller-mom on January 24, 2017 at 8:53pm

Hi Christina, I have a son with Alopecia Areata. He is 20 now but the first time he had it he was a senior in HS and it was very hard. I helped him everyday with styling his hair so no one could see the bald spot. Since then he has had 4 more episodes of losing hair. I call them episodes because he could be good for months and then all of a sudden it starts again. He actually knows when it starts because sometimes it itches or the skin/scalp gets these little red bumps. The minute it starts I start putting rosemary and lavender essential oils on it. They help with inflammation. I put it on everyday and the hair grows back. I have done so much research on AA and believe me doctors only want to give you steroids and they basically don't know much about it. I personally think it could very well be a vitamin D deficiency. It makes sense with my kid. I am curious to know do you spend time in the sun? There is a study that was done in Europe and 85 percent of people with Alopecia had a vitamin D Deficiency. I feel so bad for kids going through this. I hope your doing better.
Take care, Bridget

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Permalink Reply by AlopeciaSucks on January 30, 2017 at 10:47pm

What she said above, and more. 

I am a 16 year old who has alopecia, and what I would do is check and make sure your vitamins are a stable levels. Make sure your thyroid is all good, and try your best to keep your stress low (it's so hard I know,) If your vitamins are low in any way, I suggest you take vitamins every day especially things like Vitamin D, Iron, and Zinc. Losing hair definitely sucks, but at the end of the day, life goes on. Ask yourself: Is this going to take over my life? How can I be a better person? What can I do to better myself? These are questions i've been asking myself. Sure, I have a bald patch, but that doesn't mean I can't get better at playing the trumpet. That doesn't mean I can't play basketball. The good news is that a cure really imo will be here within 10-20 years. Just focus on vitamin intake for now, make sure everything else is good so your immune system is healthy! You'll be fine!

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Permalink Reply by Tallgirl on February 14, 2017 at 3:39am

Mine showed up at age 10. I am now 64...a teacher. Best things I did for myself at 16? Only tell one best friend, who lived an hour away and didn't go to my school. Make friends with and get formal dance dates from my Methodist city-wide camp/meeting youth group. Go to weekend seminars, trip to New York, etc. sponsored by the church. Travel to homes of friends around the state. Dive into my studies and get good grades for college. Join art, Spanish, Future Teachers, NHS, culture and drama clubs at school. Design posters, programs and make scenery for school plays. Go to cast parties and work on art/posters for dances with others at school. Still keep up with music trends and teen culture. Find the fun at school, but the REAL with my church/camp friends...who became life-long friends.

You. Can. Do. This.

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Permalink Reply by pauls14 on December 17, 2018 at 6:02am

Hey, maybe you should try to find some hobby, where you could meet people who don't care about your problem. Try music! Search some information FoxMusician find your instrument and play! Maybe this way could change your lifestyle in a good way.

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