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Hello, I am new to this forum, but not new to Alopecia. Having suffered since 20 years old.
I have not accepted my AA easily and have always been on the lookout for a solution. I went to see a private dermatologist around 5 years ago who told me of the research in progress with Tofacitinib, I kept checking in only to find it hadn't been approved for use in the UK, nevertheless I found I could buy it in India and proceeded to buy Pfizers Tofacitinib in 60 x 5mg tablets at $580 I was buying three tubs at a time and they would arrive in only a week. I took them to my dermatologist and he confirmed them to be legitimate.
I was surprised after only 3 weeks to start seeing progress and after 4 months I was looking a little messy but didn't want to shave it off it was far from hair but I did have a furry covering all over my head apart from very light that would indicate male pattern baldness on the top.
To those who are saying about getting monitored by their GP when they buy Tofacitinib privately your GP will not help you but a private hospital (I used BMI hospital and paid to see a Rheumatoid Arthritis expert as these are the consultants trained to prescribe Tofacitinib should help you. but finding the right one is hard. The reason mine helped was I told him I intended to take the medication regardless and I would prefer that I could monitor it than not, and wrote a letter confirming explicitly that no responsibility for my actions would be on the consultant and it was at my risk with or without his help that I would take the medication. He accepted this, though I guess many won't.
It was a shock that after 33 years it actually could be activated to grow, I had tried prednisolone a few times and with methotrexate prescribed but the results where bad and the weight gain was even worse.
With Tofacitinib the biggest problem was I gained three stone (45lb/20kg) in only 4 months and I could barely breath when going up stairs or walking. My wife said I looked terrible and ill and my kids where worrying. I wanted to be selfish to get my hair back but eventually gave in and come off the tablets. I lost two stone in two months and after only a couple of weeks my breathing was fine again.
I have resided to aim at getting tofacitinib ointment/cream and applying it for my eyebrows and beard area. If I could recover this area I would be happy enough.
My question is this, does anyone have any source or knowledge how to purchase Tofacitinib Ointment, I have only found one pharmacy online that sells it (in the USA) but they will not sell to me with an USA prescription, which I will possibly fly to the states to try to get privately if I have to.
If anyone has any info would appreciate, if anyone has any questions regarding my experiences wit Tofacitinib feel free to ask.
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