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AA Treatments
Replies to This Discussion
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Permalink Reply by bibby on
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Its true. There is no real actual treatment for AA. Or AT/AU for that matter. Steroid shots are very shaky and painful as a treatment. DPCP painful and become ineffective over time. PUVA has been banned in alot of countries and only has 40-50% chance of positive results. Jak inhibitors are about the only treatment that exists that has a 70-80% chance of good results but they are prohibitively expensive presently and will be so for 2-3 years till patents expire. No treatment as you mention is also an option though
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Thank you for your reply. I had not previously heard of Jak inhibitors and from my checking this out, it looks like that could be a fix down the road if it doesn't come back before then. Knowing even that helps me keep a positive outlook.
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I noticed you said steroid shots can be painful. I didn't expect that. I had steroid shots in the top of my scalp 3 weeks ago and only recently experiencing tenderness in areas of my scalp. I had to remove my bicycle helmet a couple days ago as was too painful after period to wear but only in one small spot. I didn't have any pain at all during or following the injections. Can you describe the pain you mentioned could be caused by steroid shots? I'm expecting the Derm to try more on my follow-up visit next week and am considering the advisability of having more. If I didn't start out with a full head of very thick relatively long hair, I'd be bald now as it is still coming out at an alarming rate.
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hi bibby. So once patents expire would we be able to obtain xeljanz fot example for cheap prices? Do you know how long its patent? But even if patent expires dont we still need fda approval to obtain it? Thanks
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There are certain treatments that can slow down the process or may even clear the patches up but then again the hair could grow back if you are lucky with no treatment at all.
For myself personally, as my patches spread quickly over about 5 weeks my derm put me on prednisolone but this won't (and can't be) a long-term treatment it's more to hopefully slow down the hair loss I have been experiencing.
Also a treatment that doesn't work for some people may work for you a lot of trial and error I guess or we can all hope that the hair just comes back naturally.
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Thank you for your reply. Can you tell me how long have you been taking/using the prednisolone? As well have you or anyone experienced anything else unusual accompanying the Alopecia. I had developed what I believe to early Rhumentoid Arthritis in one hand in January this year - swollen knuckles and finger going crooked. Also my head was almost covered in pimples in April but that got cleared up with anitbiotics. Also I was diagnosed with Hypothroidism in February. Seemed to me to be a lot of issues leading up to this Alopecia as I always thought I was fairly healthy, active and ate well, etc. I first noticed a slight bald spot behind my ear late March this year, 2017. By late April I had many large asymmetrical bald spots with about 80% hair loss at this time. I saw a dermatologist 2 weeks ago who suggested I try Rogaine and I will be followed up by a travelling Dermatologist in June. I live in a remote northern town in Canada so not much available in medical treatment here. The D in St. John's said he'd refer me for DCPC if I lived near St. John's, NL, but after researching that I no longer am interested in trying that procedure even if it could be arranged for me to go there for it. I will be following this site for any pertinent info.
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knowing that you have RA and AA 80%, suggesting Rogaine is hilarious. for you it is almost obvious to jump on xeljanz. btw Xeljanz is for RA...
good news is that usually people with RA and alopecia are good responders of xeljanz
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Yip. Gotta agree with return to life here. Depending on where you are based a lot of dermatologists are not yet aware of xeljanz so are not aware of its benefits for our disease. Rogaine and topical creams are totally useless at 40% loss as at that point generally the disease is settling in nicely for the long term and going to progress regardless of what topicals are applied. Google xeljanz for info. Turkey offers the best value per bottle at about €500 per bottle with patent expiry from December 2019 prices will be very cheap as a generic product. Good luck either way.
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Hi Jo.
I was on prednisolone about 4 years ago when I had 2 spots of alopecia but I was only on it for 5 weeks and then again about a week ago I was prescribed it as my alopecia had spread pretty quickly but as I mentioned you can't take it for long as it is a steroid.
For myself the only other condition I had when I had my first bout of alopecia was very bad eczema which I was hospitalized for and at that time the alopecia came as well I was treated for the eczema with prednisolone and within 4-5 weeks the alopecia spots cleared up and I had no further spots until march 2017.
I am no expert on treatments but from what I have read topical creams don't have a very high success rate and I do believe having read lots about the condition it needs to be treated from within, but then again you may get some results with the creams. I agree with the DCPC as well I wouldn't feel happy using it myself given my history of eczema when I was younger.
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Thanks. Has it stopped spreading now since you went on prednisone again? Do u have a lot of hair loss this time around?
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I haven't noticed any new patches since I went on it but the patches on top of my scalp have spread a little and the hair has thinned out. Hard to tell if the prednisolone has done anything at this point as just as much hair has come out in the shower etc but then again I've only been on it for 10 days, my course is for 30 days.
I'd say I have about 30% hair loss from my scalp mainly the top of the scalp and then I have about 5 smaller patches around the back and sides of my head.
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