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Alopecia and emotions and false assumptions
This stupid thing depresses me from time to time and makes me angry because it seems like nothing you do can stop It from happening.I lost around 40 percent of my scalp hair, started doing kenalog injections every month for the past year and a half. Finally , i have recovered and have 85 percent of the hair on my scalp. Many many months went by and I thought it was done . And then yesterday I noticed I was starting to lose eyelashes on my right eye and this decides to happen after I just regrew the eyelashes on my left eye .I just wish that someone could just figure this da*n thing out and provide a definite answer for It. Its like what doctors and dermatologists say , " There isnt really an answer for it ." I call bs , that is a crock of bs . Everything in this world has an answer,..even this too.. Its just that no one knows the answer to it. I pray and hope that a cure will be found and the exact cause that sets off alopecia. Im sure there arw more than one trigger. Im sure of it , but that doesnt explain as to why the immune system decides to go ape sh*t on our hair follicles. I don't believe that something just crops up without a given source. I've never had this before in my entire life. Im glad I didn't have to deal with it in school. Thank God, because I'm self conscious enough as it is now. I've Had it for two years now . I'm almost 26. years old , I feel like I'm too young to lose my hair. If this would have waited until I was 40 or older , it wouldn't have been as big of deal to me. And I hope my son and future children don't end up with it because it is a nightmare. Im not saying there is anything wrong with not having hair. It doesn't define a person whatsoever. I just don't want them to have to experience the horror of it. Like being in the shower and pulling handfuls of hair out while washing. Literally handfuls. And when you are new to it , it scares the heck out of you because you don't know what the he** is going on. I was scared to death when it first started. At first I thought someone put nair in my shampoo as a practical joke because I heard one of my friends talking about it. It wasn't until I realized that it wasn't a joke that I became scared as ever. Horrified to go the doctor because I was sure they were going to tell me something was seriously wrong. And I go there only to find out that there is nothing wrong with me and to be told that it is probably a bout of alopecia. Which they were right. It takes a lot of strength to hold your head up and live your life like it never happened. Im not to that stage yet , but that's what I plan to do . I plan to just live my life and forget about it because thinking about it just makes me depressed. I can't even stand to look at older pictures of myself. Not even ones thatb were taken right before this. Because as soon as I look at them I start wanting my hair back. And I start getting sad and feeling helpless and hopeless. And I should be happy that I have regrown a lot of it but I just don't trust this thing at all. That's why I'm not showing the happy and exciting feelings yet. I just don't trust this condition. Who's to say that all of the hair won't fall right back out after it has fully regrown? I just don't trust it . And I hate how people misunderstand the reason you shave your head or why you dont have hair. It's like the first thing that pops into their head is CANCER.
There is no correlation between alopecia and cancer.not a bit. They are two entirely different things. I would much rather a person walk up to me and ask a question rather than assume somthing. And cancer doesn't usually cause hairloss. Chemotherapy causes hairloss. And I also hate how people ask me how I ended up with it. Because I sure as heck don't know. There was nothing found on my blood test or panels. I don't have any serious diseases. My thyroid is in great shape. There is no health correlation what so ever. It's just a pain in the as* .
Replies to This Discussion
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Permalink Reply by arun on
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Be strong man. At least you are white and you can just shave it off. Being a brown indian man, my alopaecia barbae area looks whitish in that area and I hate everyone asking about it. Full shave doesn't help me. I am now rubbing pencil graphite on that area, surprisingly it works well. I am dealing with this for past 2 months. I am hoping to get it cured in a month or so. Trust me you are doing good. Everything will be alright soon. And remember, that not everyone is going to live or stay young for 6000 years. Just be happy and enjoy life as it goes.
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Permalink Reply by kimk on
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Nice post ....many of the points you made I connect with...
first, I am 56 years old and losing my hair sucks, I am okay. For young kids and your age its harder. Be strong.
Next I make gains with the kenalog shots and then lose 1/3 of my eye lashes, I am not sure where this all will go to next..... I feel your frustration.
The man that posted about his ethnic descent is tough too- I hate my gray patches, bald patches and black hair patches.....
i really agree that we will get more answers and I hate not knowing “why”.
Hang in there and keep writing.
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Hi kimk,
I too hate the bald, white, dark patches which are thin & fine. I look like a dalmation & do not have faith that it will ever grow back to being normal. I am wearing a HH wig of a color (100% reddish dark brown) which is not my normal self...85% dark brown, 15% white. Do you wear a wig? Can you recommend anything for someone who wants to look their age?
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Hi Carla
yes I wear a wig to work and dressed up in a/c but at all other times I am “natural-el”
not sure what u mean look your age? I am 56 and friends / family think I look younger with my head shaved?
but I am happy to help with feed back....
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Permalink Reply by Willhod3 on
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I can empathise with you, it’s horrible condition and Im 57, so I can appreciate how awful it must be for one as young as yourself. I agree entirely how frustrating it is not knowing what caused it. I’ve lost beard, sideburns, temple hair and eyebrows and my forehead continues to get ever longer as my hair falls out. I’m considering scalp pigmentation as transplant is out of the question and as it is a scarring alopecia I’ve been told it will never grow back. You seem to have had some success with the treatment you are taking, I do hope it gets better for you, remember what doesn’t kill you, generally makes you stronger.
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Permalink Reply by Terri on
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I was diagnosed with FFA after taking hydrochlorothiazide (HCTZ) for a year. My dermatologist said this medication has caused FFA in 2 other people at his clinic.
Did you take any prescription medications or over the counter supplements before you were diagnosed?
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Interesting Terri - I was just diagnosed five days ago and have five rapidly developing areas. I was hydrochlorothiazide for two months. I am certain it's related but can't get anyone to agree. I am 49 year old female going through the first experience.
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This is a good article. I didn't know NSAIDS could cause alopecia.
Medications that Can Cause Alopecia / Hair Loss
https://www.news-medical.net/health/Medications-that-Can-Cause-Alop...
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That's very interesting. The book i read also blames that for a bunch of the issues with health. I have had a good amount of success on the diet I am on. interesting to see other articles come to a similar conclusion.
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Everything will be great, believe me >))
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Permalink Reply by CET1993 on
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Terri, no I don't remember taking anything before it started. I do remember I experienced a bout of trauma over a house related accident. Seemed to start almost immediately after. Don't know if there's any connection. I've had AA for two and a half years now and this entire time it's been a hit and miss thing. I've had periods of hair loss and then periods of no hair loss. Sort of a cycle I guess. I'm the only one in my whole family that has it and I have a huge family. And this condition has never been recorded in my family so I don't believe there's a generic influence in my case. Good thing is it isn t a painful condition, although I do remember having some itchiness, slight tingling when it first began. And maybe a few areas on my scalp that felt bruised. Other than that I haven't noticed any feelings or pains when it comes to AS. My derm keeps telling me that a lot of times this condition burns out. And what I found extremely strange was when it did start to grow back it started off as this blondish peach fuzz hair then it changed back to my natural hair color. Lol
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