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Alopecia areata and Gilenya
A little about myself… I have Alopecia Areata and Multiple Sclerosis. I am male and 45 years old. I began losing hair in patches when I was 20. My hair and I eyebrows were the main targets. It would slowly grow back but in about 6 months another bald spot would form. I tried everything in the book with Alopecia. The only thing the worked was cortisone injections. But even with that, another bald spot would form elsewhere.
I was diagnosed with MS back in 2011.
I was on Copaxone first. I still had recurrences of Alopecia for the year or so I was on Copaxone. Mind you, I had no expectations it would do anything for Alopecia. My main concern was MS.
When I had my second relapse, my neurologist switched me to Novartis Gilenya. It has so far kept my MS in check, but as a nice side effect it has also kept my Alopecia Areata in check. For the 2 years I have been on Gilenya, I have been free of MS AND Alopecia. Both are autoimmune diseases.
Just my observations.
Replies to This Discussion
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Permalink Reply by ritchierich on
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Just an update... No recurrence of Alopecia (or MS) while on Gilenya.
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Permalink Reply by DJ88 on
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What type of drug is Gilenya? Do they give it to alopecia patients without ms? Im wondering if it'll work for people with AU.
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Gilenya, also called Fingolimod, is a phingosine 1-phosphate receptor modulator (whatever that means). It's only given to patients with MS. As far as I know, they don't prescribe it for anything else.
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