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Alopecia areata of only eyebrows and eye lashes
My 9 year old daughter has had hair loss of her eyebrows and eyelashes. She does not have any hair loss on her head or anywhere else on her body. We have tried different creams from the pediatric dermatologist and nothing has helped. We are grateful she hasn't lost any head hair and my daughter does not seem to care about the the loss of her eyebrows or eyelashes...Yet! Has anyone else just had a loss of eyebrows and eyelashes only? They seem to start to grow back sparsely and then all of a sudden they are gone again. Very frustrating!
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Permalink Reply by SK on
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My daughter is almost 10 and appears to have the exact condition. It happened gradually over the past year. She has lost almost all of her brows and top lashes. Her bottom lashes are still in tact. The paed dermatologist says it is the result of hair pulling but I know that that isn't the case. She has only prescribed topical steroids (hydrocortisone cream). I hope this thread is still active. I am desperate for answers. Would anyone else recommend other specialists? If yes, have you gotten helpful answers or course of treatment/management for your child? Hope to hear from some of you. Thanks!
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Also wondering if anyone has tried intralesional triamcinolone injections? I know my daughter isn’t up for that but I have read about them. One of the Indian authors of a journal publication on alopecia of eyelashes did mention this as an option and there is evidence of a potential regrowth. My question is this a one and done (or a few times) or is this something that is a life long injection process...one that I am not willing to commit her to. If it shocks the system into working properly, might be worth giving it a go. If it is a temporary solution, then no.
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Unfortunately, I have not gotten any answers 7 years on. Alopecia is unpredictable so things may come back or not. My daughter has had them intermittently over the years with none in last 3. She has eyebrows and hair everywhere else...only lashes!! The only thing I can recommend is do NOT let them just blow it off as pulling. If you are sure she isn’t pulling then you stick with researching and asking questions. I have yet to find anything that causes it or helps it. People like to recommend latisse but my daughter has light eyes and I didn’t want to risk iris color change as a child. She’s almost 14 now and doesn’t want to wear falsies despite kids starting to wear a bit of makeup. It’s frustrating for sure but I’ve learned not to dwell on it. I do keep up on any tips or thoughts but not many only have loss if eyelashes...but it is real.
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Thanks for the reply! Yes.. I will keep asking questions. I hope to bring her to another specialist who can get blood work done. Have you only seen dermatologists for your daughter @Simonrb ? I am also wondering if my daughter is going through other issues like thyroid or hormonal disorders. Will read more on Latisse. Not sure if they are commonly prescribed or easily available where we are. I will be sure to post updates.
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Hey! My daughter lost her eyelashes around 11 and it lasted over a year. And yes they always think it’s pulling. We went to nutritionist because I think she was not eating well and lost too much weight. She was going through middle school stress... she eventually had them start growing back and a dermatologist did give her Latisse and it did seem to help.
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We’ve been to GP, Pediatirician, opthamologist, child psychiatrist, allergist, and one of 3 pediatric determatologists in Australia. It started when we lived there so we saw a few Drs there. Have seen a few dermatologists and the allergist in US. The thing abt Latisse is you have to keep using it. She has been checked for thyroid. Her blood work was fine except for being high in a marker for potential auto immune. My daughter is not having any middle school issues. She’s pretty happy go lucky and even tempered. The psychiatrist visit was initially when they though it was pulling but it was determined not to be the issue as alopecia was diagnosed a year later by the pediatric dermatologist. Stress and nutrition can def be a reason but not in my daughters case. I considered doing gluten free to see if that did anything but she said she’d rather not have eyelashes than give up her fav gluten items!! :-)
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My daughter is 8.5 yrs and had her first episode last June, lost about 1/2 her brows and almost all lashes in matter of days. We saw a pediatric derm who diagnosed her based on no trauma/pulling them out and no other symptoms. I also saved some of the lashes that fell out and looked at the roots on a microscope and some showed changes consistent w anagen phase abnormalities which fits w AA. We treated brows w topical steroid and lids along lashes w Tacrolimus (a non steroidal immunosuppressive). Everything grew back by September. She had a relapse of losing about 3/4 of the upper lashes in January and we started the topical meds again. She’s now improving like before and has ton of new growth. Her lower lashes were minimally affected and brows minimally or not at all this time. No idea if the topicals actually help but it’s all we can do. She had normal bloodwork for thyroid testing and no overt anemia or vitamin deficiency..no other known medical issues.
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Thanks Simonrb, Kimmer and Wendy. I'm so relieved to have found this group and to know that we're not going through this alone. My daughter doesn't seem to be too concerned about her appearance (not yet at least .. But with puberty hitting probably soon that can all change!). She is an outgoing and confident girl, though I'm sure she feels stressed from school like a lot of kids in Malaysia where we're from. I'm more worried, if anything, about the lack of supportive doctors and specialists where we live to help us manage this in the long run. We saw whom we were told to be the top paed dermatologist in the country and it was infuriating to have her brush it off as hair pulling, and pass a remark about how she felt my daughter appeared unhappy after just 5-10 mins she took to examine her. At this point I am prepared for this to possibly turn out to be a long term / recurring issue. But yes... this gives me hope there are other parents out there who are going through this and managing it well! I'm interested to know how a gluten free diet would help. Did you hear this from the nutritionists or doctors you saw? Any online resources? I cannot imagine my kid going gluten free, or any of us Malaysians for that matter. All our food is gluten-everything haha!
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No one told me to try gluten free but I was wanting to try anything. She has no other gluten issues so prob not going to do anything. Just grasping.
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I read this article
https://www.sciencedaily.com/releases/2017/05/170525125626.html
I read a similar article that discussed the mice and the tregs and that they removed the tregs and got no growth but replaced tregs and hair grew.
Just posting for info...
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It seems looking through these posts on this thread most are talking about grade school aged girls when the eyelashes start to fall out. My daughter was 8/9 when this started and she is almost 11 and experiencing yet another cycle of no lashes except a few at the outer corners. Wonder if there is a common theme there?
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Hi. Just writing to see if anyone has any change in their child's eyelashes status. Daughter is now 14 and has had this issue for 7 years. Dermatologists have zero answers for the most unusual eyelashes only situation. There is little information about alopecia in general but even less when contained in one area.
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