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Alopecia different types - please explain
I know there are different types of Alopecia, but I need further explanation.
I was originally diagnosed with Areata, as I had small round patches on my head, this over the years progressed to almost total hair loss. I have hair on my legs, under arms, head, eyebrows, eyelashes, facial hair and hands in patches (more skin then hair). Is this now Univarlis, or is it still Areata.
Id love someone to explain the differences.
Thanks
Patricia
Replies to This Discussion
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Permalink Reply by Tiffany P on
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and there is AGA which is Androgenic or androgenetic alopecia which you dont have but thats another alopecia.
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Permalink Reply by Gale Moorman on
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Hi Patricia, yeah it sounds like you indeed have alopecia totalis. That is what I have. I have eyebrows but sometimes one gets thinner than the other. I have a bit of underarm hair but totally bald scalp.
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Permalink Reply by Patricia Hutchings on
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Thanks, as it gets somewhat confusing what is what.
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No problem Patricia. I did have alopecia areata, with round bald spots on the scalp then more of the hair was leaving and years later I had alopecia totalis (a clean scalp). I think it goes, if it goes in progression that way. Areata - Totalis - Universalis. Many never get universalis (no hair on any part of their body). Many don't even get totalis.
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Permalink Reply by Marianne on
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Alopecia Universalis is total hair loss over the entire body including eyebrows, eyelashes, leg hair, underarm hair, hair on the arms, pubic hair, and even your nose hair. Just so you are aware, alopecia areata can progress to alopecai universalis. I was unaware of this until it happened to me. It sounds like you have alopecia totalis which is total hair loss of the head.
Take care :)
MArianne
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Found this website that discusses some differences between totalis and univarlis, and some very interesting research with mice. They basically grafted Alopecia skin onto mice and the hair regrew thus showing whatever caused the hair loss was in the blood and not in the skin.
http://www.top-hair-loss-remedy.com/alopecia-totalis.html
PS: I dont have nose hair, pubic hair, arm hair, most of my scalp hair, and have lost most eye and eyebrow hair as well. I have had some regrowth though due to better nutrition.
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Permalink Reply by BaldGirlsDoLunch.org on
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The cause of AA hair loss has never been shown by scientific methods to be "in the blood". It's a complex community of actions and reactions of things like lymphocytes and infiltrates, proteins and antigens that have a communication problem of some sort that has not been figured out. If you can get a copy of this article you will have the most current understanding of what is known so far and where the next round of investigation is looking. I have a list of the easily understood and comprehensive journal articles in the medical links here and on the research and treatment page.
The page sited above is part of a "topic mill". There are "topic mills" all over the internet where people write about a topic like alopecia which they cobble together reading other websites. Sometimes bits of the information are correct if they are copied directly from an accurate source. Most often they are riddled with inaccuracies. They then sell these packaged articles to sites like the one sited which exists only to sell a hair loss product. Very often the splices of information are misleading and incomplete.
The About Alopecia Areata booklet that is free to US citizens from the National Institutes of Health is a good one to have for the basics. To know what's going on currently and see the original sources for treatments and research, my blog at baldgirlsdolunch.org is the go to source. Click on the tags for research and treatments to pull up lots of good stuff.
The mouse model for AA research has been around for a long time. I've posted interesting article about the mice themselves in case anyone wants to know who they are and where they come from and how they are purchased. I've posted about the surgical technique of grafting for AA research.
I track down and post all this information on a regular basis because I believe that the alopecia areata community should have it and know where to get it...especially keeping you up to date in real time as new information is released. My blog and the BGDL website are getting one of our two prestigious 2010 Gold Triangle awards next next week from the American Academy of Dermatology. The foundation that asks Americans for money for research is not getting even a single one of these 2010 AAD awards.
I hope everyone enjoys having these links to expand the knowledge base of accurate info.
Thea
BaldGIrlsDoLunch.org
When it comes to research and treatments we're not just for girls!
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Permalink Reply by Pamela Rosse on
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Hi Patricia, from what you wrote it certainly appears you have AAT versus AAU which is what I have, I am devoid of hair all over.
I am by no means a physician & that is the key person or persons who can accurately diagnosis you.
My suggestion is ask your dermatologist &/or physician who has been seeing you for your alopecia, with a new diagnosis can come other treatment options.
This disease of ours can be very frustrating, I feel so fortunate that we all have found AW, giving us the ability to ask questions of & support each other.
Hang in there my alopecian sister.
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