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Permalink Reply by Charity on March 25, 2010 at 9:39am

Haha, I know I'd cry like a baby.
I can't imagine seeing young children with it though, I'm sure that'll get me as well. Thank you for the reply Rob! I'm really excited to be able to meet people who understand. My friends and family are supportive; which I'm thankful for, but they really don't understand because it's not something they have any experience in dealing with. But thanks!

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Permalink Reply by Jennifer Krahn on March 25, 2010 at 11:19am

Hey Charity,
I'm fromt he Peg and haven't gone to a meeting or know of any. I would be happy to meet with you though. Do a lunch or something? I've only met one other person with this and that was Giselle who sold me my hairpiece. She was totally awesome about the whole situation. Also, my husband just finished teaching a girl who had it...he had no idea until I was going through this and a colleague had told him to contact his student for help for me. I think we're good at hiding this condition. Would be happy to meet with ya'
Jenn

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Permalink Reply by Charity on March 25, 2010 at 11:28am

Definitely! I know my grandma was looking into a support group, and I have added it on facebook, but it doesn't seem to be going anywhere.
I'd love to meet up sometime! What kind of days/times would you be free? And what part of the city are you in?

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