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Permalink Reply by Jen on February 15, 2016 at 9:39pm

You all are much braver than I am, and I couldn't afford this drug anyway. If I were you and I was on this drug internally, I would look into other auto-immune protocols that I could start now and continue after getting the hair growth back. You could try to taper off the med and keep the hair by staying on a low inflammation lifestyle. Maybe by then topical treatments could be effective for spots that appear.

Some ideas that I have (of course talk to your doctors about these while taking x, I don't know about interactions):  

First, a no gluten, high fat diet with probiotic supplementation added down the road.

We now know that Celiac, Diabetes and Alopecia are super related genetically. We know Celiac is induced by wheat and Diabetes can be induced by wheat, Alopecians by extension should not eat wheat IMO. Don't eat a bunch of sugary processed stuff even if it's gluten free. Eat whole foods. Fatty fish, real pastured butter, stay to the outside of the grocery store and away from the packaged stuff. A "Paleo-ish" diet is healing for the gut. I personally eat tubers and rice and full-fat dairy, I think all out Paleo is a bit much. Since almost all of immunity is centered in the gut it seems like a good place to start healing.  If damaged guts are part of our problem, it's probably best to add in the probiotics later as the intestines cool down. That said, fermented foods seem to be important.   

4,000 IU of vitamin D daily - to be taken in the morning right before eating a fatty breakfast. There appears to be a connection with low vitamin D and poor T Reg cell production. I am wondering if the reason internal vitamin D helps is because it's like lotion for your intestines and helps heal any inflammation/leaky gut you have. It's better absorbed with fat. Drink plenty of water with vitamin D. It's energizing so best taken in AM. Don't go taking more than 10,000 IU's daily without a doctor helping you, you can ruin your kidneys. And definitely don't take it with a calcium supplement for the same reason. 

Vitamin A supplementation and magnesium supplementation to complement your vitamin D. Take the magnesium at night, it's calming.

Try to lead a low stress, happy life with quality sleep, exercise and sunshine.

We all say we want to do this, but it takes actual effort and dedication. From what I gather almost all autoimmunity has a stress trigger of some kind, physical or psychological. Do be grateful for what you have and maybe that's part of your daily mediation. Sleep is totally underrated. Get it. Exercise is how your cells clean out toxins and garbage. Do it. You'll feel really good afterward. Sunshine. In addition to the vitamin D internally take in some sun when you can. Don't burn yourself of course. But remember there are more autoimmune diseases the further you get from the equator. The first thing we do with our Alopecia is hide it in the dark. That can't be good. Also don't wash your skin right after taking sun. The vitamin D you create is on the surface and needs to be reabsorbed.

Definitely no smoking and minimal to no alcohol. Both are highly inflammatory. 

Please keep us posted on your progess good and bad and I would love to know what markers your doctors are testing for in your blood and/or urine if you can inform me. Are they testing for cancer markers somehow? 

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Permalink Reply by Xeljanzmiracle on February 15, 2016 at 10:11pm

Hey Jen, all of that advice is good. I know from personal experience that gluten (a protein in wheat) gave me asthmatic symptoms. Can you repost (copy) that info to ADML's Xeljanz thread? I know it will benefit many. Thanks in advance. Valeri

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Permalink Reply by femmemuscle on February 15, 2016 at 7:14pm

Thanks Dom, for your post, that lady had some pretty good information. Medically as well as just plain old "attitude adjustment".

I like her attitude, and i don't see anything in your post as "negative"..

I do recall there were a few members on here taking Methotrexate actually for hair growth.

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Permalink Reply by Rach1992 on March 1, 2016 at 11:25am

any update on this coming to market? xD

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