Biopsy results devastated and confused me

Well after 3 years of thinking I had AA, I got a biopsy done and apparently I dont! They don't know what on earth is wrong with me. He said there was something in the follicle that only shows up when the hair is being rubbed out or pulled out!!! I AM NOT DOING THIS TO MYSELF! Are the kidding! That even being asked made me sooo angry. I have struggled with this horribly for years trying everything to get my hair back and they have the audacity to ask me if I am pulling it out myself! He has seen how easily it falls out. Ugh I am so stressed now. Has anyone else gotten results like this? Something in the follicile I forgot what it is called and a completely empty follicle.
AA, AU, and other alopecias all show something in the biopsy that shows for sure you have this right?
Am I just getting the run around?
=/
He is taking me to some USC conference to parade me in front of a bunch of people to look, poke and prrod at me like a lab rat which I am so uncomfortable with.

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Permalink Reply by Becca74 on September 17, 2012 at 8:36pm

I was diagnosed by my derm with AA after a biopsy..BUT I can tell you that my family doctor asked me if I was pulling it out! This is a horrible thing to ask someone that is dealing with something like this and is trying to get help! I hope that they can find what is wrong! I would try a different dermatologist!

Permalink Reply by Lindsay on September 18, 2012 at 6:32pm

Thanks guys. Yeah I really don't want to go but I fear this is my last shot to try to find out what is going on with me. This dermatologist is actually my 3RD one I have seen! First one to even do a biopsy for me. The other 2 just looked at me and said it was AA and started doing injections which did nothing.
This one even tried putting me on thyroid medication. He has been very helpful but he is out of ideas.
I think i just might need to take some xanax and force myself to go and try to hold it together. It is just so hard.

Permalink Reply by Denise on October 21, 2012 at 11:01pm

Lindsay, sorry you are feeling this way . When I was frist seen he did not ask me directly, he said sometimes people pull there hair out. I was mortified and stared and said WHY? Who would do that? He never directly asked me or even mentioned it again. I have never had a biopsy done, he did the patch area test, 2 fingers, gently grab a patch of hair around an area of hair loss and see if it comes out easy & it did so easliy...... I say give the doctor another chance. WHY? why not, see if he has anything to offer and he may be able to help., Remember they are only human and have to ask many questions. I am sending positive vibes your way. :)

Permalink Reply by Tallgirl on October 22, 2012 at 6:55am

Trich is a real thing, and the doctor was trying to find out if you had it. Read these:

Trichotillomania
www.ncbi.nlm.nih.gov
Trichotillomania is hair loss from repeated urges to pull or twist the hair until it breaks off. Patients are unable to stop this behavior, even as their hair becomes thinner. Symptoms usually begin before age 17. The hair may ...
Causes - Symptoms - Tests - Treatment - Prognosis - Complications - Prevention

Trichotillomania - Wikipedia, the free encyclopedia
en.wikipedia.org/wiki/Trichotillomania
Trichotillomania is the compulsive urge to pull out (and in some cases, eat) one's own hair leading to noticeable hair loss, distress, and social or functional ...
Classification - Signs and symptoms - Photos - Causes and pathophysiology

Welcome to the Trichotillomania Learning Center
www.trich.org/
Trichotillomania Learning Center provides trichotillomania and skin picking treatment information, education, and support for infants, children and adults with ...
For Kids & Teens - Find a Treatment Provider - Treatment Options - Success Stories

Trichotillomania
kidshealth.org › Teens › Mind
Trichotillomania is a type of psychological condition that involves strong urges to pull hair. What causes it and how do people overcome it? Find out in this article.
Trichotillomania (hair-pulling disorder) - MayoClinic.com
www.mayoclinic.com/health/trichotillomania/DS00895

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