Both my pinky toenails have fallen off for no reason...is this related to my AA??

Hi All,

I did my hair in a braid one evening 2 months ago and noticed a small bald patch on the side of my head. I went to my local GP who said it was AA..I am still waiting to get in to see a dermatolgist specialist so have had no treatment as such.

2 months on and the initial patch the size of my thumb nail has grown into a large patch the size of my palm and I have another patch now close to the top of my head that is size of a milk lid. Everytime I brush my hair I have a considerable amount of hair loss and the hair over my entire head has thinned substantially. I have also lost half of both my eyebrows.

Now just a few days ago both my pinky toenails fell off for no apparent reason..no pain no redness no reason..Has anyone else had this happen?? will more of my nails just drop off??

I'm reading everyones posts and they make me feel as though I'm not alone but I am still trying to come to terms with this issue. I think it is the unknown that affects me the most. I try to stay positive and put on a brave face for my friends and family but I feel like crap on the inside. I talk myself into thinking that it's all good and wont get any worse and that it will grow back tomorrow but everyday i'm reminded by my hairbrush and now my feet!!

I understand that everyone is different and has different stories to tell but I would love some feedback on whether anyone has been through similar to me..should I prepare for all my hair falling out?? Even though I can cover it up at the moment should I consider shaving it off and going down the wig or head covering option now so I can get over it and on with life or suck it up and see what happens??

Should I get treatment or just let nature take its course??

Im sure there are so many out there with issues far greater than mine but it still doesn't change how upset I am. There is barely a day that goes by where I dont cry and although I am a very positive person and don't let my emotions out in view of others I still find it very hard to deal with.

Any advise would be great

Lou

Views: 2202

Reply to This

Replies to This Discussion

Do what you feel comfortable with this is such an indiscriminate disease and can be so different in its ferocity and its damage. Try what you think will work but there are a lot of scammers out there with every lotion and potion going and all very expensive. If there was a cure it would be on the market I would pay anything to have Pat get her hair back . We can get together for a coffee sometime if you like and have a good vent or laugh or probably both about this horrible disease.

My story is rather different, my hair all fell out when I was 12 in 7 days. It was a real shock factor (and I have only had a peach fuzz regrowth once since then) so had AT untill I was 30 then when i gave birth to my daughter lost my eyebrows and eyelashes...... my daughters (8) hair fell out in a month (earlier year) she does have peach fuzz on her head at the moment which is so cute (she has AT). Anyway please remember it does not happen this way for everyone!!!.....

She has seen a endocronologist (RCH), as she has another autoimmune disease and they are checking for more. She is seeing both the endo and a dermatologist in Aug at the Royal Childrens melb. I know after my experiences that I will NOT be letting her go through any treatments for her hair that the dermatologist is going to suggest.

The only reason I am keeping that appointment is for her skin, what to know what they are to say about that as it is always flairing up with eczema.

Talk to others, with experiences similar to you, and there is heaps to read on here about what others are doing for treatments, you need to do what you feel right with, as it is your decision only. Support and venting is good, talk to your friends and people on here. It will help.

I'm not sure if my replies are going through.. So sorry if you've received it several times. (damn iPhones.. Lol)
Hey Bridget.. It truly is amazing how wonderful everyone is on this site.. Reading the stories others have to tell certainly inspire me & give hope that there is a light at the end of this tunnel.. Perhaps not in a cure as such but certainly in coping with alopecia in whatever degree..your daughter sounds just beautiful & she certainly couldn't have wished for a more amazing mum..Keep doing what you are doing as you certainly have lifted my spirits x

RSS

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service