Replies to This Discussion

Permalink Reply by hagster on March 19, 2018 at 12:18am

If your hair is going to grow, it will grow regardless if wearing something on your head. 

Your physician can guide you about Xeljanz.  Assume you've read all the discussions on here about it?

There are lots of support groups on facebook for hair loss, Alopecia, wigs, etc.

• ▶ Reply

Permalink Reply by Modern Show on March 19, 2018 at 9:26pm

Does not affect hair growth
However, if you decide to use the wig for a long time (see below):
After wearing a wig, because the head is like wearing a thick hat, so that the scalp fever, and heat is a catalyst that can promote rapid metabolism of the scalp. Therefore, the scalp is prone to sweat, and it secretes more oil and becomes more oily. People who have a tendency to have dandruff increase wear wigs to make the symptoms worse.
Therefore, it is advisable for the wig wearer to wash his head once a night to remove greasy dirt and dirt from the head to protect the scalp and hair.
Also note that the shampoo and conditioner should be separated. Do not use what 2 in 1 is useless. Use shampoo made with herbal plants. Do not be lazy. Use hair conditioner for every shampoo. It can synthesize shampoo Alkaline material.

There are more wigs and wigs products that can keep me on follow-up:  MODERN SHOW employees co., LTD is a professional design and supply 100% of virgin hair including hair weft, lace closure, most of the hair, clip in hair and tape hair, etc., especially in Brazil, Peru, Malaysia, the European virgin hair and lace closure.

• ▶ Reply

Permalink Reply by Lisa on March 29, 2018 at 2:48pm

Hi Dear, 

I sympathize with what you are going through! It is understandable that you would have many questions! Parents and family might try to minimize the whole hair thing in an attempt to alleviate your pain and angst over what is happening. They are doing this in love and because the whole thing is overwhelming for them as well but it is totally understandable that you would be in shock over this loss as hair IS a body part and a very focused on one at that.

I believe you are experiencing this anomaly at a "good" time because you do have several sources for support and encouragement like this website and National Alopecia Areata Foundation (NAAF). There is far more awareness of this condition than there was when I started losing my hair at 5 years old. I am now 61 and have lived with this condition all my life except for a period of about 7 yrs when all of a sudden my hair grew back in with enough growth for me to go without a wig but it was still rather thin and I did not have a complete all over my body regrowth. I have A Universalis. 

I have never done the drug that you are mentioning here. When I was young the Dr's put me on steroidal medicine and monitored me closely. I also used to get some injections in my head...none of which gave me much improvement. But DO NOT lose hope as this disease has a mind of it's own and can affect many different people in many different ways! I am not sure of your age but because you are older than a young child, you might very well find some success with the new treatments that are out there today. I decided to stop treatments when I was a young adult as I grew to somewhat "accept" that this is my "hand I have been dealt".

I got married when I had the thin hair and became pregnant shortly thereafter. I prayed very very hard that my babies would not have this condition. They are both now almost 30 years old and so far...no sign of alopecia!

I encourage you to pursue a positive self-love. I have seen and read many stories from people with alopecia who have learned to say "this is who I am and I am going to be the best me I can be", regardless of what others think or say. I admire them and wish I had learned to have that mindset at a much younger age! 

I kind of "forgot" about my alopecia when I was raising my boys but since they are married with families of their own now, I am once again realizing how my lack of hair has affected my mindset and self-esteem in my life. So, I am now on a journey to "create my happy" (without hair) and learn to truly love myself...even when I look in the mirror. It is a very humbling disease to live with but being humbled isn't such a bad thing. I choose to look for what's right...not for what's wrong and am certainly learning I can create my own reality by the thoughts that I think. 

So...be brave my dear and accept and reach out for any support you can find. I would be happy to keep in communication with you if you desire.  I know one thing for sure... YOU HAVE GREATNESS WITHIN YOU!!! Let your light shine!!! It may be a "different color" than the multitudes but different is OK too...especially in the world we live in today!!  ;))

Oh, and I do not believe a hat or headband would stop your hair from growing if it wants to grow!!  :))

Much love and courage wished for you, 

Lisa   :}  

• ▶ Reply

Permalink Reply by HelpWanted on April 18, 2018 at 11:35am

 Thank you for the comment and all of the kind words !

• ▶ Reply

Permalink Reply by kimmy68 on April 19, 2018 at 8:15am

My Daughter has Aa.She grew her hair back a lot .Now the same area has fallen out again.I am just praying she doesnt lose all her hair.She has 2 more patches and they are getting bigger. How long did it take for you to lose all your hair? She had this since 16 she is 21 now.

• ▶ Reply

Permalink Reply by Modern Show on March 29, 2018 at 8:56pm

Refueling dear, there is nothing that cannot be done. If you like, I will be happy to keep in touch with you. I hope you will recover soon and return to normal life.

• ▶ Reply

Permalink Reply by Xeljanzgirl on April 4, 2018 at 7:30pm

I am on Xeljanz, and wore a wig for the first 1.5 years as my hair grew back... did not inhibit my hair growth at all. Hope that helps :)

• ▶ Reply

Permalink Reply by HelpWanted on April 18, 2018 at 11:38am

 Thank you! I did buy three wigs but I’ve only worn one of them a couple of times. Just doesn’t feel right to me. I don’t feel like myself.  Although being bald as a woman obviously sucks.  Praying that all of my hair grows back and I can be done with this disease. But who knows! I’m enjoying not having the responsibility of doing my hair for now. Trying to look for the few positives.

 BTW how long have you been on the medication? And did it work for you?  It’s been almost 3 months for me and I don’t have any more medication, and can’t afford thousands of dollars a month. But my hair is finally starting to grow in most areas!!  Trying to figure out what the future will hold and how I can get the medication.

• ▶ Reply

Permalink Reply by Modern Show on April 8, 2018 at 2:32am

Hope that these methods can help you.

A bathroom covered with loose strands or an ever-scrawnier ponytail can be startling but doesn’t necessarily mean anything’s wrong. By age 50, half of women will complain of hair loss. As we age, overall hair density changes and individual strands become finer. But just because thinning is natural doesn’t mean you have to accept it. There are solutions to help you keep the hair out of your brush and on your head. Now, this is easy!

1. Massage scalp
Whenever you wash your hair, you are in the middle: massage the head in the shower will improve blood flow to the scalp. This means a better hair growth environment, but it also helps you use any hair shampoo penetration.

2.Wear wigs cover
Wearing a wig can be used to modify the appearance, change human hair weaves style is simple and convenient, save time: you can avoid perm, hair, hair damage caused by hair; you can save your hairstyle in the hair salon, bleaching and dyeing, reduce Expenses; Wigs can be free to change hairstyles, avoid frequent hair salon haircut hair damage; can try a variety of different hairstyle design, matching different fashion, so wearing a wig increasingly people's apes.

3. Reduce the use of hair dryers
This is the simplest fix that you have never considered. Hair dryers and irons, especially if you have already coloured, may cause breakage and thinning, so reduce your use as much as possible.

• ▶ Reply