Cyclosporine

My 24 year old son has due eloped alopecia totalis in the pst 4 mths. Has been dealing with stress recently and has a history of eczema and asthma. Can not get Xeljanz in Canada easily and the cost is prohibitive. One derm offered DPCP trt but it was 2 yr waiting list to get into Toronto sick Kids Hospital. he now has a prescription for cyclosporine. There are certainly risks but he thinks it is worth trying. Has anyone had success with cyclosporine? Thanks for all your support I read posts on here everyday and it has really helped.

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Permalink Reply by Return_life on January 9, 2016 at 11:49am
http://www.ncbi.nlm.nih.gov/pubmed/24147945

U probably saw it but just in case. (Am the text guy)
Permalink Reply by Merry on January 10, 2016 at 10:26pm

Yes, I have AU and have had hair regrow all over my scalp, eye lashes and brows within a few weeks of starting cyclosporine 3 different times. The problem is that my labs always start showing problems with my kidneys before my hair gets long and full enough to shed my wig. I have to take a large dose for it to work. We have tried starting on a low dose and increasing and starting high and decreasing, but my kidneys are always effected, and when I decrease or stop it, my hair falls right back out. That is very depressing. Good luck! I hope it works out for your son. 

Permalink Reply by Kris on January 11, 2016 at 7:41pm
Thanks for your reply. I am hoping at age 24 his kidneys will be alright. Are you using something else now? Hopefully all these oral treatments can be stopped once we have a topical cream that works. Perhaps xelijanz will be the one and be affordable.
Permalink Reply by Merry on January 12, 2016 at 12:31am

i am on xeljanz ad it is working without side effects so far.

Permalink Reply by Kris on January 12, 2016 at 7:54pm
Good luck Merry with the xelijanz. Hope it becomes more affordable and easier to access in Canada soon. Thanks for sharing your experience with us.

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