I know there has been a lot of discussion about this topic, however not recently. Since studies prove that this is probably the most effective treatment, I have started this some weeks ago and hope there are some people out here that have experience with this and can answer some questions or share their experience.

- I am reacting perfect (mild rash, etc.) - on 0,1% dose. When can you expect first sign of growth? 

- I did developed a full body rash 2 weeks ago and I've read that this is a good sign, however it's been 9 weeks since sensabilisation, but I have no results yet, not a single new hair. Am I being impatient?

- I also had very painful swollen lymph nodes. This means that the immune system is triggered. Anyone experienced this and had growth?

- I'm still losing hair (18% left), is this normal? It terrifies me:-(.

- What does a first sign of growth look like?

Anyone please share their thoughts/experience?

Views: 269

Reply to This

Replies to This Discussion

I had dpcp done in a Dublin hospital. 2 mornings per weeks. My reactions were similar to yours in so far as rash. Behind my ears were little lumps constantly. It took 6 weeks for hair to start growing for me. It grew very thin and wispy. After 10 weeks my head was covered in short thin wispy hair approx 1 inch long which tended to stick straight out of my scalp unlike my previous flat type of hair. I used to cover my hair in dermatch thickening powder which made the hair very thick looking and presentable. Sadly this hair only lasted about 6 weeks before it gradually disappeared. Everybody reacts differently to this treatment. The overall success is SAID to be 40-60% however I was told clearly that once treatment stops (even though my hair fell out during treatment) everyone will loose their hair again so it's to be viewed as a long term treatment if it works. I'm considering doing it again in the future for short term return of my hair but it's an extremely uncomfortable regium and requires time travelling to hospital etc. I hope you get results from it. Good luck

That doesn't sound promising, Bibby:-(. Did you develop a full body rash as well? I have a constant itch all over. I can live with that (only) if my hair will grow back. 6 weeks is also fast to develop hair, so that was a good sign then. I still don't see growth, except from some faint hairs on my arms and stomache. I hope there are some positive stories out here...

I had all over body rash wish I could tolerate and at the time I viewed the rash as a positive as the drug was taking effect. My rash 1st appeared after week 3 (6th treatment) . The positive story may be you. If you have a rash then your body is reacting as it should to the treatment and you are showing evidence of some small hair regrowth. Your delay of 9 weeks for a hair regrowth may be also a good sign of longer term hair regrowth than myself. If the hair grows back and grows back thick,according to my nurse at the time,  then all you will need is a maintenance treatment a few times a month. 

I so hope you are right, Bibby. I'm so desperate; tried everything. I lost 80% of my hair after giving birth. The steroid shots worked in the beginning, but then it got worse. I also go the hospital, but my derm said that every 2 weeks is fine as well (I told her that everywhere I read it's weekly). I do need the 2 weeks to heal, though. I'm on 0,1% dose. My rash started 6 weeks after treatment. I had hives all over, now it's almost gone, but the itch remains. If dcp doesn't work, there's not a lot left; Xeljanz won't be in Europe until 2018:-(. I can't stand wearing a wig; it's just not me...How much hair did you have when you started this treatment? Are you considering doing it again? I've read that some people need as much as 6-8 months, but that eventually everyone should see growth. Thanks for your reply!

Yeah, its true about Xeljanz , I went to my derm and they didnt know anything about Xeljanz or pretended not to know anything about it. Xeljanz is my main hope that I am holding out for. I had severe AA at the time of my DPCP treatment. About 75% LOST. I am presently 100% scalp hair LOST and now eyebrows are going too. I have a pretty amazing wig which is shaved down very short but I feel fake wearing it. The hair quality in some lights can also look unrealistically shiny which gives away the game. Not my bag really. I am currently starting a regime of system clearing/diet change/and Rogaine 3 times a day to see if improvement can be achieved. If this fails I will consider going back to DPCP and hopefully gain hair for next summer. Please keep us updated to your response to the DPCP treatment. A rash after 6 weeks is a good reaction time so you are having a response so hair regrowth should be the next phase of the treatment. The IL-2 interleukin treatment and Xeljanz are on the horizon and look very promising once they both clear in Europe hopefully 2018. 

I will keep you posted on here! 2018 is such a long time to wait:-(. There's also dr Brotzu's lotion, hopefully that will be on the market earlier although I'm a little bit sceptical about the success.

Never heard of dr brotzus lotion. Always am aware of snake oil sellers though.

Hi Buddy, sorry to cut in on this tread, but could you tell me who is your dermatologists is, I live in Donegal and can't find anybody that knows or wants try anything for alopecia, thanks Ben

- I had first regrowth only 3/4 weeks after first rash but only tiny white hair. they became darker after another month.

- I have also an enlarged lynph node an the back of my head ( only one) 

- I think you lose air till the scalp zone are "clear" from lymphocytes

- first growth are white air ( for me)

Hi Mattia r, thanks for your reply! Question: how bad was your AA (how much hair left)? So, it's normal to lose hair for a while, because the lymphocytes need to go away? I don't have hair on my scalp yet, but I do on my arms. Not a lot, though. It's been 11 weeks. Did all of your hair grow back on dcp? Would you recommend it?

I have alopecia Universalis.

After 5 months of treatment I had 70/80% of my hair back. Unfortunately I stopped the treatment and they fell out again. 

Yes I recommend it ;)

RSS

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service