Alopecia World
www.alopeciaworld.com
Do you have any other autoimmune issues?
I've had alopecia since September 2008. Lately I feel like my autoimmune system is completely out of whack.
For those who have other autoimmune issues, how soon after getting alopecia did they surface? What do you do about them? Diet? Supplements? Exercise? Acupuncture? Thanks!
For those who have other autoimmune issues, how soon after getting alopecia did they surface? What do you do about them? Diet? Supplements? Exercise? Acupuncture? Thanks!
Replies to This Discussion
-
Permalink Reply by Mary on
-
Right, Maritza! At this point in my life, with age-related problems cropping up such as arthritis and joint problems, I just want to be HEALTHY and be able to remain active and do the things I love! Being hairless is honestly the least of my problems. I've told people that if a magic genie granted me one "health"- related wish, I wouldn't choose to have my hair back...I'd choose to have a chronic pain or joint problem gone!
-
Permalink Reply by Norm on
-
I suppose that "chronic pain and stress-inducer" that you'd like to see the back of wouldn't happen to include men in some shape or form, would it...?? ;)
-
Permalink Reply by Erika on
-
Oh Mary, I can relate in such a big way. Im 31 with Alopecia, arthritis and gout - and like you, my alopecia is the least of my concerns. It is great to find people to relate to. :)
-
Permalink Reply by Patrick Quigley on
-
We all may have certain "bad" genes, but with the right diet we can help eliminate the bad gene expression...
-
-
Susan, again, THANKS for your input on this!! Let food be thy medicine is so overlooked these days. You are what you eat. I feel that most people don't take it far enough. It's no fun avoiding all the good bread and pizza out there. As I said earlier, it took me years to finally see results. When I was on again, off again, did not have any real lasting effect. But when I got serious, it started to work. They say that children of diabetics (Type 1) usually have other autoimmune problems (and the diabetes might show up with their children). Well, here I am with AA! And the rest of my family have multiple autoimmune problems. My two sisters are currently being tested for Celiac Disease (the old figure was like 1 out of 250k have the disease; now its a startling 1 out of 133!!); what does that tell you about the introduction of grains 10k years ago? Humans are not always right about what they need to survive and live a healthy life. The way I look at it, nothing tastes better than being healthy!!!
-
Permalink Reply by Tanya Stone on
-
Any comments on prednisone for alopecia areata
-
-
I'm with Mary on this. Tallgirl, Asthma inhalers are steroids. : ( Sad but true. Asthmatics need to take steroids most of the time, thru inhalers, pills and even nebulizers.
-
Permalink Reply by Tallgirl on
-
Okay, I think this is connected to the news report, because some of the words are the same. My hope that was IF this treats other things besides asthma, maybe it connects to alopecia, too.
__________________________________________________________________________________________
There is new hope for millions of asthma sufferers.
Researchers are on the verge of a major breakthrough that could make inhalers a thing of the past.
Dr. David Farrar and his research team at the University of Texas Southwestern discovered that Interferon, an immune system protein already used to treat certain cancers, Multiple Sclerosis and Hepatitis C also blocks certain immune cells that cause asthma.
“We want to know if Interferon can reverse those cells. If it can, this could be a promising potential therapy to treat asthma patients,“ Dr. Farrar explained.
The next step: Clinical trials with asthma patients.
Because Interferon has been used as a treatment for so long, early phase safety trials won’t be necessary.
-
-
I didn't mean to stir you up Susan. As you said we are here to support one another's theories and decisions. Just like scientists have to prove their theories and others challenge them, I was merely challenging your theory since my son has AU and has been 100% free of those foods. It's not like he was able to cheat on his diet, because it was life and death. Like I said before, we chose to accept it and by accept it I meant not trying anything that may have cause more harm or take away from quality of life (being a kid). My son has chosen to go bald even IF there is a cure. He said he doesn't want hair and that's after I told him that there may be a cure in the future since the report came out of the genes that were found. I don't knock anyone for trying and I know you came across your growth through mere accident, because you were trying to help your other ailments. I just feel that some people can be so vulnerable to anything and everything that is said on these blogs and forums and I just wanted to put out what I know about the diet and there being no connection to hair growth in my son with AU. I hope that your health continues to improve and that your hair continues to grow.
-
-
Changing your diet for the better is sound. I have some hair regrowth. I have not entirely eliminated dairy. I eliminated milk, but still eat yogurt and cheese. I also eliminated all gluten and grains. No corn, no wheat, no rice. I'm eating healthier. I do have some translucent hairs starting to grow on my head. Not sure if they will continue or not. The reason I chose this diet is because I was getting too many cavities. I eliminated fruits and sugars for awhile. I do allow myself one serving of fruit a day now. Not sure if there is any correlation between the hair regrowth or not. Still testing it out.
-
-
Regarding the teeth, I had the same experience you had. My teeth were getting progressively worse. No amount of fluoride toothpaste or vigorous use of the waterpik was slowing down the problem. The only recommendation my dentist made was to try flossing instead of the water pik. I originally eliminated fruits and anything with sugars from my diet thinking that sugar was the main culprit but it didn't help. I noticed a big difference going gluten free within a couple of weeks. My teeth stopped hurting. Then I went on a low carb diet and SCD eliminating all grains from my diet for several months and have not developed any new cavities.
-
-
I totally believe in diets and the benefits they provide. I avoid MSG and turn down meals because I choose not to suffer the consequences. I think we all know what I mean by consequences. All my life I suffered stomach disorders and frequented different gastroenterologists, but they usually prescribe a diet that is so general that they honestly think the same foods cause the same problems, IBS, Crohns disease, etc. It was after doing my own research and trial and error such as yourself that I came to the conclusion that, YES I did have to avoid certain foods, but it was not the ones the doctor had mentioned. I was tested for food allergies, environmental allergies, etc., and basically I am anaphylactic to Shellfish (found out the hard way, almost died) and iodine (after being injected for medical testing), but not to so many other foods the allergist thought I was allergic to. I was told to avoid Tuna and codfish. I avoided them for a while but still felt the same, I am now happy to report that I can eat Tuna (which I do 2x a week) without incident. Sometimes the tests show false-positive results, guess that was the case.
I can't have too much orange juice (which I love the way an alcoholic loves his booze) but have learned it's very unhealthy for my stomach. It debilitates my stomach and wrecks havic in all kinds of ways. So I limit my orange juice comsumption. I have oral allergy syndrome and if I eat apples, pears, grapes, etc., I get a very itchy, scratchy throat and have a hairy like feeling in my throat and have to use benedryl right away. Organic or not, it doesn't matter, it's the fact that I'm allergic to Birch. So if I avoid these foods I am fine, if I don't I have consequences to pay for. Of course I haven't touched shellfish since I almost died and I always tell the waiter to notify the cook so they don't cross-contaminate my meal. In all respects I understand food allergies, intolerances, chemical sensitivities, oral allergy syndrome, etc. in depth.
so getting back to Thomas, now that you know a little about my history. Thomas, as I mentioned before is 100% free of Dairy, eggs, soy, wheat, barley, oat, shellfish, nuts, peanutes, etc. WE don't keep any nuts in the house, nor do we allow anyone to eat it around him. We don't attend birthday parties b/c of all the foods that he is allergic to. If you merely eat dairy and kiss him on the check he breaks out in hives. His 5 y/o sister used to suck her thumb since birth, and at a very young age she took the thumb out of her mouth after drinking regular formula and wiped her thumb across his face and he broke out in hives. His milk allergy is the worst level you can have. She has since been put on Rice milk as well for his well-being. It's a family affair. He eats Tinkyada Rice pasta, made in a wheat free, gluten free factory. As is his corn pasta. All his foods for that matter are made in facilities with no dairy, eggs, nuts, gluten, soy.. ....the top ten most common food allergens. He doesn't eat bread, crackers, cookies, etc of any kind unless I bake it for him (strictly). He is so allergic to eggs that he cannot get the flu vaccine, he was also tested with a minute amount of the flu vaccine under his skin last September and reacted immediately.
The rice milk is dairy free, lactose free, gluten free, etc. He eats Glatt Kosher meats (NO milk allowed in factory) He drinks ONLY apple juice. He eats Organic chicken broth mixed with his pasta. He's only allowed to eat Yummy Organic lollipops, free of artificial dyes and flavors, contains none of the 8 most common allergens. His vitamins the same, DO not contain any of the 8 most common allergens.
He has been tested for every allergen under the sun due to my request, so that I can introduce more foods into his diet.
NO CASEIN, WHEY, LACTALBUMIN, NATURAL INGREDIENTS, ARTIFICIAL INGREDIENTS IN HIS FOODS, ETC. The list goes on and on. I've been dealing with this for 7 years and the doctors say I know more of what I can do for him then they could and have even suggested I write a book. We have no rugs in the house, no curtains, dust mite covers on ALL matresses and pillows in the house and a leather sofa. Wood dining room furniture (nothing upholstered). He also suffers from dust-mite allergens (that's why the caution). No one is allowed in his room to play except he and his little sister. They cannot wear the same pajamas again if they wore them out of the room and played in them or ate in them.
I think you get the picture.......it's been a long ride and that's why Alopecia takes a back seat in this journey.
Again, I truly believe in diets, they can be lifesavers, I'm just saying if you remove it from your diet when you ONLY have alopecia then it's probably not a good idea.
I belong to a support group and I shared what one BIG SHOT dermatologist suggested I try on Thomas, (I tried NONE, TOO CRAZY) and well some of them tried it and it made things worse or didn't help at all.
Thank you Susan for asking me once more for me to explain Thomas' situation, so that some misconceptions could be clarified
- ‹ Previous
- 1
- 2
- 3
- Next ›
© 2024 Created by Alopecia World.
Powered by
